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Ms Ros Madden

M.Sc.
Senior Research Fellow

C43T - T Block Cumberland Campus
The University of Sydney

Telephone +61 2 9351 9115
Fax +61 2 9351 9128

Website Centre for Disability Research and Policy
Australian ICF Disability and Rehabilitation Research Program

Biographical details

Ros has played a major role in the development of national disability definition, measurement and statistics in Australia since 1992, and internationally in the development and implementation of the WHO's International Classification of Functioning, Disability and Health (ICF). Ros was Co-Chair of the Functioning and Disability Reference Group, WHO Family of International Classifications Network from 2006 to 2012 and a member of the Editorial Committee for the World Report on Disability from 2007 to 2011.


From 1992 to 2006 Ros led the work on functioning and disability statistics at the Australian Institute of Health and Welfare (AIHW). A key to successful development during this period was the consultation process instituted by Ros - advisory committees involving people with disabilities, NGOs and independent researchers as well as government officials. Previously Ros worked on the development and analysis of information and statistics in areas including health; welfare; justice; traffic accidents; and safety, rehabilitation and compensation. Her work was primarily in government, as well as in non-government organisations and as a consultant.

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Research interests

Ros Madden leads the Australian ICF Disability and Rehabilitation Research Program (AIDARRP), with research on evidence for Community-Based Rehabilitation (CBR), and measurement and assessment of functioning based on the ICF. She is co-leader of two streams in the Centre for Disability Research and Policy: the National Disability Insurance Scheme, and Disability and Development.

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Teaching and supervision

Ros delivers occasional guest lectures to undergraduates and postgraduates, and supervises honours students.
Nationally and internationally Ros provides ICF training to a range of professionals interested in improving their knowledge of and ability to use the ICF

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Associations

Ros is currently a Member of the Eligibility and Assessment Expert Group for the NDIS, and an Editorial Board Member of Disability, CBR and Inclusive Development

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Awards and honours

Since joining the University in 2008 Ros has been associated with grants totalling some $1.2 million.

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Selected grants

2013

  • NSW Government Audit of Disability Research in Australia; Kavanagh A, Llewellyn G, Bleasdale M, Emerson E, Madden R, Smith-Merry J, Gilroy J, Veitch C; Department of Ageing, Disability and Home Care (NSW)/Research Grants Program.

2009

  • Health and well-being indicators for children and youth with disabilities; Llewellyn G, Leonard H, Emerson E, Madden R, Mason J, Bundy A, Honey A, Hindmarsh G, Mathur S, Blackmore A; Australian Research Alliance for Children & Youth (ARACY)/Research Support.
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Selected publications

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Book Chapters

  • Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B., Robertson, J. (2012). Disablement and Health. In Nick Watson, Alan Roulstone, Carol Thomas (Eds.), Routledge Handbook of Disability Studies, (pp. 253-270). United Kingdom: Routledge imprint of Taylor & Francis.
  • Madden, R., Glozier, N., Mpofu, E., Llewellyn, G. (2012). Health, functioning and disability: how common language and data can enhance policy making. In Andrew Robertson (Eds.), Commonwealth Health Partnerships, (pp. 126-129). Cambridge, UK: Commonwealth Secretariat.
  • Mpofu, E., Madden, R., Gitchel, W., Peterson, D., Chou, C., Athanasou, J., Manga, R. (2012). Person-centered assessment in rehabilitation and health care. In Paul J. Toriello, Malachy L. Bishop, & Phillip D. Rumrill (Eds.), New Directions in Rehabilitation Counselling: Creative Responses to Professional, Clinical, and Educational Challenges, (pp. 209-235). Linn Creek, Missouri: Aspen Professional Services.

Journals

  • Doran, C., Einfeld, S., Madden, R., Otim, M., Horstead, S., Ellis, L., Emerson, E. (2012). How much does intellectual disability really cost? First estimates for Australia. Journal of Intellectual and Developmental Disability, 37(1), 42-49.
  • Madden, R., Ferreira, M., Einfeld, S., Emerson, E., Manga, R., Refshauge, K., Llewellyn, G. (2012). New directions in health care and disability: the need for a shared understanding of human functioning. Australian and New Zealand Journal of Public Health, 36(5), 458-461.
  • Anderson, P., Madden, R. (2011). Design and quality of ICF-compatible data items for national disability support services. Disability and Rehabilitation, 33(9), 758-769.
  • Madden, R., Glozier, N., Mpofu, E., Llewellyn, G. (2011). Eligibility, the ICF and the UN Convention: Australian perspectives. BMC Public Health, 11(Supplement 4), S6-1-S6-11.
  • Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C., Robertson, J. (2011). The health of disabled people and the social determinants of health. Public Health, 125(3), 145-147.
  • Einfeld, S., Ellis, L., Doran, C., Emerson, E., Horstead, S., Madden, R., Tonge, B. (2010). Behavior Problems Increase Costs of Care of Children With Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities, 3(4), 202-209.
  • Anderson, P., Madden, R. (2010). Design and quality of ICF-compatible data items for national disability support services. Disability and Rehabilitation, , 1-12.
  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2009). The Well-Being of Australian Adolescents and Young Adults with Self-Reported Long-Term Health Conditions, Impairments or Disabilities: 2001 and 2006. Australian Journal of Social Issues, 44(1), 39-54.

Conferences

  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2012). The wellbeing of young people with disabilities in Australia: A rights based framework for investigating progress. Inaugural Disability Studies Conference, Sydney: Disability Studies Conference.
  • Dew, A., Veitch, C., Bulkeley, K., Gallego, G., Bundy, A., Lincoln, M., Brentnall, J., Madden, R., Griffiths, S. (2011). Addressing the barriers: People with a disability accessing mainstream and specific services in rural and remote areas. Proceedings of The World Report on Disability Symposium, Faculty of Health Sciences Sydney: Faculty of Health Sciences, University of Sydney.
  • Veitch, C., Madden, R., Britt, H., Brentnall, J., Georgiou, A., Llewellyn, G. (2011). Using ICF and ICPC in primary Health Care provision and evaluation. Meeting of the WHO collaborating Centres for the family of international classifications, Sydney: Sydney University.
  • Veitch, C., Brentnall, J., Bundy, A., Madden, R. (2009). Measuring recovery across time: a universal client-centred rehabilitation recovery measure. 6th Health Services and Policy Research Conference, Brisbane: Faculty of Health Sciences, University of Sydney.
  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2009). The Relative Well-Being of Young Australian Adults with Self-Reported Disabilities: 2001 and 2006. Disability Studies and Research Centre Conference, Sydney: Center on Disability Studies.

Report

  • Gilroy, J., Bundy, A., Madden, R., Glozier, N., Manga, R., Clemson, L., Mpofu, E., Kayess, R., Einfeld, S., Llewellyn, G., Stancliffe, R. (2011). Submission to the Productivity Commission on Disability Care and Support - Submission DR942.
  • Llewellyn, G., Makuwira, J., Madden, R., Brentnall, J., Lukersmith, S., Mpofu, E., Bundy, A., Veitch, C., Broom, A. (2010). Developing a disability and development research agenda for Asia and the Pacific.
  • Fraser, V., Madden, R., Honey, A., Llewellyn, G., Emerson, E. (2010). Indicators of Health and Well-being for Children and Young People with Disabilities: Mapping the Terrain and Proposing a Human Rights Approach.
  • Emerson, E., Madden, R., Robertson, J., Graham, H., Hatton, C., Llewellyn, G. (2009). Intellectual and physical disability, social mobility, social inclusion and health.

2012

  • Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B., Robertson, J. (2012). Disablement and Health. In Nick Watson, Alan Roulstone, Carol Thomas (Eds.), Routledge Handbook of Disability Studies, (pp. 253-270). United Kingdom: Routledge imprint of Taylor & Francis.
  • Madden, R., Glozier, N., Mpofu, E., Llewellyn, G. (2012). Health, functioning and disability: how common language and data can enhance policy making. In Andrew Robertson (Eds.), Commonwealth Health Partnerships, (pp. 126-129). Cambridge, UK: Commonwealth Secretariat.
  • Doran, C., Einfeld, S., Madden, R., Otim, M., Horstead, S., Ellis, L., Emerson, E. (2012). How much does intellectual disability really cost? First estimates for Australia. Journal of Intellectual and Developmental Disability, 37(1), 42-49.
  • Madden, R., Ferreira, M., Einfeld, S., Emerson, E., Manga, R., Refshauge, K., Llewellyn, G. (2012). New directions in health care and disability: the need for a shared understanding of human functioning. Australian and New Zealand Journal of Public Health, 36(5), 458-461.
  • Mpofu, E., Madden, R., Gitchel, W., Peterson, D., Chou, C., Athanasou, J., Manga, R. (2012). Person-centered assessment in rehabilitation and health care. In Paul J. Toriello, Malachy L. Bishop, & Phillip D. Rumrill (Eds.), New Directions in Rehabilitation Counselling: Creative Responses to Professional, Clinical, and Educational Challenges, (pp. 209-235). Linn Creek, Missouri: Aspen Professional Services.
  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2012). The wellbeing of young people with disabilities in Australia: A rights based framework for investigating progress. Inaugural Disability Studies Conference, Sydney: Disability Studies Conference.

2011

  • Dew, A., Veitch, C., Bulkeley, K., Gallego, G., Bundy, A., Lincoln, M., Brentnall, J., Madden, R., Griffiths, S. (2011). Addressing the barriers: People with a disability accessing mainstream and specific services in rural and remote areas. Proceedings of The World Report on Disability Symposium, Faculty of Health Sciences Sydney: Faculty of Health Sciences, University of Sydney.
  • Anderson, P., Madden, R. (2011). Design and quality of ICF-compatible data items for national disability support services. Disability and Rehabilitation, 33(9), 758-769.
  • Madden, R., Glozier, N., Mpofu, E., Llewellyn, G. (2011). Eligibility, the ICF and the UN Convention: Australian perspectives. BMC Public Health, 11(Supplement 4), S6-1-S6-11.
  • Gilroy, J., Bundy, A., Madden, R., Glozier, N., Manga, R., Clemson, L., Mpofu, E., Kayess, R., Einfeld, S., Llewellyn, G., Stancliffe, R. (2011). Submission to the Productivity Commission on Disability Care and Support - Submission DR942.
  • Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C., Robertson, J. (2011). The health of disabled people and the social determinants of health. Public Health, 125(3), 145-147.
  • Veitch, C., Madden, R., Britt, H., Brentnall, J., Georgiou, A., Llewellyn, G. (2011). Using ICF and ICPC in primary Health Care provision and evaluation. Meeting of the WHO collaborating Centres for the family of international classifications, Sydney: Sydney University.

2010

  • Einfeld, S., Ellis, L., Doran, C., Emerson, E., Horstead, S., Madden, R., Tonge, B. (2010). Behavior Problems Increase Costs of Care of Children With Intellectual Disabilities. Journal of Mental Health Research in Intellectual Disabilities, 3(4), 202-209.
  • Anderson, P., Madden, R. (2010). Design and quality of ICF-compatible data items for national disability support services. Disability and Rehabilitation, , 1-12.
  • Llewellyn, G., Makuwira, J., Madden, R., Brentnall, J., Lukersmith, S., Mpofu, E., Bundy, A., Veitch, C., Broom, A. (2010). Developing a disability and development research agenda for Asia and the Pacific.
  • Fraser, V., Madden, R., Honey, A., Llewellyn, G., Emerson, E. (2010). Indicators of Health and Well-being for Children and Young People with Disabilities: Mapping the Terrain and Proposing a Human Rights Approach.

2009

  • Emerson, E., Madden, R., Robertson, J., Graham, H., Hatton, C., Llewellyn, G. (2009). Intellectual and physical disability, social mobility, social inclusion and health.
  • Veitch, C., Brentnall, J., Bundy, A., Madden, R. (2009). Measuring recovery across time: a universal client-centred rehabilitation recovery measure. 6th Health Services and Policy Research Conference, Brisbane: Faculty of Health Sciences, University of Sydney.
  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2009). The Relative Well-Being of Young Australian Adults with Self-Reported Disabilities: 2001 and 2006. Disability Studies and Research Centre Conference, Sydney: Center on Disability Studies.
  • Emerson, E., Honey, A., Madden, R., Llewellyn, G. (2009). The Well-Being of Australian Adolescents and Young Adults with Self-Reported Long-Term Health Conditions, Impairments or Disabilities: 2001 and 2006. Australian Journal of Social Issues, 44(1), 39-54.
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