RESEARCH UNDERWAY

Health and well-being indicators for disabled children and youth (HWI-DCY Program) (2010-2011)

This project brings together international experts from universities in the World Universities Network to develop a robust set of health and well-being indicators for disabled children and youth. Work is also being carried out in the home country of each researcher with the intention of bringing this work together under the auspices of an international agency in the future.

Project team

University of Sydney:
Prof Gwynnyth Llewellyn
Prof Anita Bundy
Ros Madden
Dr Anne Honey
Prof Eric Emerson

External collaborators:
Prof Helen Leonard (University of Western Australia)
Prof David McConnell (University of Alberta)
Prof Bryony Beresford (University of York)
Prof David Gordon (University of Bristol)
Prof Rune Simeonsson (University of North Carolina)
Prof Sally Hartley (University of East Anglia)

Overview

Children and youth with disabilities internationally fare poorly compared to their non-disabled peers, a situation that is in direct contravention to the United Nations Convention on the Rights of the Child and the United Nations Convention on the Rights of Persons with Disabilities. Progress on developing indicators to monitor well-being for children and youth has not extended to those with disabilities and there is reason to believe that additional indicators may be appropriate.

The HWI-DCY Program brings together leading universities (Australia, Canada, United Kingdom, United States) to develop a robust set of indicators to advance policy and measure progress toward improving the health and well-being of disabled children and youth.

The project, began in 2010, has been funded by the International Program Development Fund, University of Sydney. Applications will be submitted for matching funding from their own universities from each World Universities Network partner.

Anticipated outcomes

  1. Sustainable international collaboration to develop robust indicators of health and wellbeing for disabled children and youth in high and low income countries
  2. Review and critical analysis of indicators used to measure the wellbeing of disabled children and youth internationally
  3. Dissemination of findings: (i) critical analysis of state of the field, (ii) appropriate frameworks for indicator development.
  4. Acquisition of national competitive funding in 2011 to forge ahead with indicator development and testing.
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