Honorary Associates

Honorary Professor Shane Clifton

Shane Clifton is Dean of Theology at Alphacrucis College in Sydney. In 2010 Shane had a serious accident that left him a quadriplegic (C5 incomplete). Following his rehabilitation, Shane has concentrated his research on the contribution of virtue ethics and positive psychology to the challenge of flourishing with a spinal cord injury. He is currently working with Gwynnyth Llewellyn and Tom Shakespeare on a project entitled "The Good Life and Quadriplegia," Shane is married to Elly, and together they are raising three teenage boys.

Honorary Professor Tom Shakespeare

Tom Shakespeare trained in sociology at Cambridge University, and has researched and taught both there and at the Universities of Sunderland, Leeds, and Newcastle. He is currently senior lecturer in medical sociology at Norwich Medical School at the University of East Anglia, Norwich, UK. His research interests center on disability studies and bioethics. His books include The Sexual Politics of Disability (1996), Genetic Politics (2002) and Disability Rights and Wrongs (2006, 2nd edition 2013). From 2008-2013, he was part of the Department of Violence and Injury Prevention and Disability at the World Health Organization, Geneva, where he helped write and edit the World Report on Disability (WHO 2011) and International Perspectives on Spinal Cord Injury (2013). He also led development of the UN Statement on Eliminating Forced Sterilization (2014). He has been involved in the disability movement for 25 years, and has been a regular visitor to Sydney since 2001. Currently he is part of the team led by Dr Shane Clifton, Honorary Associate, CDRP and including Professor Gwynnyth Llewellyn working on the topic of “Living the good life with quadriplegia”.

Honorary Senior Lecturer Dr Ros Madden

Rosamond (Ros) Madden AM has worked on disability information, statistics and research since 1992, at the Australian Institute of Health and Welfare for 14 years and at the University of Sydney for 7+ years, leading research in the Centre for Disability Research and Policy and in the WHO Collaborating Centre in Health Workforce Development in Rehabilitation and Long Term Care.

Her continuing interests include: disability measurement and policy, in the framework of the UN CRPD and using the International Classification of Functioning, Disability and Health (ICF); education and technical support for ICF ; research and monitoring for community-based rehabilitation (CBR) and other disability-inclusive development programs.

Ros’ current and recent international positions include Member, Editorial Board of Disability, CBR and Inclusive Development (2011-current); Co-Chair, Functioning and Disability Reference Group, WHO Family of International Classifications Network (2006-2012) and Member, Editorial Committee for the World Report on Disability (2007-2011).

Ros was made a Member of the Order of Australia in June 2014 for significant service to leadership and reform in the disability sector as an administrator, statistician and academic.

Honorary Senior Lecturer Dr Nathan Wilson

Nathan Wilson is a Senior Lecturer at Western Sydney University based in the School of Nursing and Midwifery. His research interests are in applied research that enhances the health, wellbeing and social participation of people with long-term disabilities. In particular, Dr Wilson has expertise on the intersection of disability, men’s health and sexual health with over 25 published scientific articles in the area. Dr Wilson was recently elected to the role of Vice President of the Professional Association of Nurses in Developmental Disabilities, Australia (PANDDA) Dr Wilson currently works with Professor Roger Stancliffe on projects about retirement and end of life for people with ID.

Honorary Senior Research Fellow Dr Michele Wiese

Doctor Michele Wiese is lecturer at Western Sydney University School of Social Sciences and Psychology. Throughout her 35 years working in the disability sector she has aimed for a strong marriage between research and practice. Michele’s research focus is on end-of-life care for people with intellectual disability and she currently manages a number of research projects on this topic, engaging with researchers in Australia and overseas, the non-government disability sector, and government departments. Michele is on the editorial board of two international scientific journals, is the current chair of a Restricted Practices Authorisation Panel at a non-government disability service, and is an Honorary Associate with the Centre for Disability Research and Policy at the University of Sydney.

Honorary Senior Research Fellow Associate Professor Tianxi Xu

Tianxi Xu is an Associate Professor at Central China Normal University’s School of Education. Tianxi’s research focuses on transition education and services for adolescents with intellectual and developmental disabilities (IDD). In particular, Tianxi has expertise in school-to-work transition and supported employment for adolescents with IDD. Tianxi is passionate about facilitating post school transition for people with IDD and promoting the quality of life for people with IDD and their families. In 2015, Tianxi worked as an Australian Endeavour Fellow with Prof Roger Stancliffe on a project evaluated school-to-work transition services for people with disabilities in Sydney Metropolitan area, and currently works with Prof Stancliffe on several projects that aim to promote supported employment outcomes for young adults with IDD in China.

Honorary Research Fellow Dr Damian Mellifont

Damian's passion is to research and inform policy that empowers people with disabilities to demonstrate their 'abilities' in the workplace by challenging negative stereotypes and the ways that things are 'normally' done. Damian is also passionate about exploring work performance benefits that may be attributed to neurodiversity.

Honorary Research Fellow Dr Charlotte Scarf

Charlotte Scarf is a freelance researcher, writer and editor. Her research interests span the fields of information and knowledge management, and disability and development studies. She is interested in questions about power, partnership, participation, communication and learning in the context of disability inclusive development. Dr Scarf is a member of the editorial team of the Knowledge Management for Development Journal, and a committee member of friends of the Pascal International Observatory. She is based in New York City.

Honorary Research Fellow Ms Catherine Sykes

MSc, MCSP, Grad Dip Phys, Cert Ed, DipTP.

Catherine Sykes is working with Ros Madden, Director, Australian ICF Disability and Rehabilitation Research Program in the Centre for Disability Research and Policy on education about and maintenance of the World Health Organization’s (WHO) International Classification of Functioning, Disability and Health (ICF) and with Richard Madden, Director, National Centre for Classification in Health and his team on the development of the International Classification of Health Interventions.

Honorary Associate Mr Paul Williamson

Paul has worked in policy roles with the Commonwealth Public Sector for nearly 20 years. Together with Dr Jennifer Smith-Merry, Paul is undertaking research on the employment and social outcomes of people who develop physical disability in the middle stage of their career. Having lived experience of disability, Paul is passionate about this work - he suffered an aneurism in 2002 and manages a serious case of early onset arthritis. Paul has an 11 year old son and leads a very busy life between his family, work and commitments with the University.