Disability and Inequity Publications

General Publications concerning disability and inequity

Tomlinson, M., Yasamy, M.T., Emerson, E., Officer, A., Richler, D., & Saxena, S. (2014). Setting global research priorities for developmental disabilities, including intellectual disabilities and autism. Journal of Intellectual Disability Research doi: 10.1111/jir.12106

Malam, S., Emerson, E., & Davies, I. (2014). Challenges in the first ever national survey of people with intellectual disabilities. In Tourangeau, R., Edwards, B., Johnson, T.P., Wolter, K.M., & Bates, N. (eds) Hard-to-Survey Populations. Cambridge: Cambridge University Press.

Brown, I., Hatton, C., & Emerson, E. (2013). Quality of Life Indicators for Individuals with Intellectual Disabilities: Extending current practice. Intellectual & Developmental Disabilities 51, 316-332.

Emerson, E., Felce, D & Stancliffe, R. (2013). Issues concerning self-report data and population-based data sets involving people with intellectual disabilities. Intellectual & Developmental Disabilities 51, 333-348.

Monitoring the disadvantage and discrimination experienced by people with disabilities in Australia

Emerson, E., Honey, A., & Llewellyn, G. (2013). LEFT BEHIND 2013: Monitoring the social inclusion of young Australians with self reported long term health conditions, impairments or disabilities 2001-2011, Technical Report. Sydney: Centre for Disability Research and Policy.

Llewellyn, G., Emerson, E., & Honey, A. (2013). LEFT BEHIND 2013: Monitoring the social inclusion of young Australians with self reported long term health conditions, impairments or disabilities 2001-2011. Sydney: Centre for Disability Research and Policy.

Llewellyn, G., Emerson, E., Honey, A., & Kariuki, M. (2012). Monitoring the Social Inclusion of Young Australians with Self-Reported Long Term Health Conditions, Impairments or Disabilities 2001 – 2009. Sydney: Centre for Disability Research & Policy, University of Sydney

Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (2009). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments or disabilities: 2001 and 2006. Australian Journal of Social Issues 44(1), 37-51

Emerson, E., Honey, A., & Llewellyn, G. (2008). The Well-Being and Aspirations of Australian Adolescents and Young Adults with a Long-term Health Condition, Disability or Impairment. Canberra: Australian Research Alliance for Children & Youth.

The extent and nature of adversity and disadvantage

Emerson, E., & Brigham, P. (2015). Exposure of children with developmental delay to social determinants of poor health: Cross sectional case record review study. Child: Care, Health, Development 41, 249-257. doi:10.1111/cch.12144

Gore, N., Emerson, E., & Brady, S. (2015). Rates of breastfeeding and exposure to socio-economic adversity amongst children with intellectual disability. Research in Developmental Disabilities 39, 12-19.

Hindmarsh, G., Llewellyn, G., & Emerson, E., (2015). Mothers with intellectual impairment and their 9 month old infants. Journal of Intellectual Disability Research 59, 541-550. doi: 10.1111/jir.12159

Wigham, S., & Emerson, E. (2015, online early). Trauma and life events in adults with intellectual disability. Current Developmental Disorders Reports DOI 10.1007/s40474-015-0041-y

Emerson, E. & Hatton, C. (2014). Health Inequalities and People with Intellectual Disabilities. Cambridge: Cambridge University Press.

Emerson, E., & Roulstone, A. (2014). Developing an evidence base for violent and disablist hate crime in the Britain: Findings from the Life Opportunities Survey. Journal of Interpersonal Violence 29, 3086-3104 doi: 10.1177/0886260514534524

Emerson, E., Robertson, J., Baines, S., & Hatton, C. (2014). The self-rated health of British adults with intellectual disability. Research in Developmental Disabilities, 35, 591-6.

Families Special Interest Research Group of IASSIDD (2014). Families supporting a child with intellectual or developmental disabilities: The current state of knowledge. Journal of Applied Research in Intellectual Disabilities 27, 420-30. DOI: 10.1111/jar.12078

Haider, S.I., Ansari, Z., Vaughan, L., Matters, H & Emerson, E. (2014). Prevalence and characteristics of polypharmacy in Victorian adults with intellectual disability: Medicine use and characteristics associated with polypharmacy in Victorian adults with intellectual disability. Research in Developmental Disabilities 35, 3071-3080.

Robertson, J., Emerson, E., Baines, S., & Hatton, C. (2014). Obesity and health behaviours of British adults with self-reported intellectual impairments: Cross sectional survey.  BMC Public Health, 14, 219.

Savage, A., McConnell, D., Emerson, E., & Llewellyn, G.. (2014). Disability-based inequity in youth subjective well-being: Current findings and future directions. Disability & Society 29, 877-92. DOI: 10.1080/09687599.2014.880331

Totsika, V, Hastings, R.P., Vagenas, D., & Emerson, E. (2014). Parenting and the behaviour problems of young children with an intellectual disability: Concurrent and longitudinal relationships in a population-based study. American Journal of Intellectual and Developmental Disabilities 119, 422-435.

Emerson, E. (2013). Commentary: Childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disability Research, 57, 589-600. doi: 10.1111/j.1365-2788.2012.01577.x
View full text

Emerson, E., & Brigham, P. (2013). Health behaviours and mental health status of parents with intellectual disabilities: Cross sectional study. Public Health 127, 1111-1116. http://dx.doi.org/10.1016/j.puhe.2013.10.001

Emerson., E & Halpin, S. (2013). Anti-social behaviour and police contact among 13-15 year English adolescents with and without mild/moderate intellectual disability. Journal of Applied Research in Intellectual Disabilities 26, 362-369. DOI: 10.1111/jar.12041

Emerson, E., Honey, A., & Llewellyn, G. (2013). Disability Transitions Across The Life-Course: Preliminary Data From Australia. Sydney: Centre for Disability Research and Policy.

Haider, S. I., Ansari, Z., Vaughan, L., Matters, H., & Emerson, E. (2013). Health and wellbeing of Victorian adults with and without an intellectual disability. Research in Developmental Disabilities 34, 4034-4042.

Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B., & Robertson, J. (2012). Disablement and health. In N Watson, C Thomas & A Roulestone (Eds)The Routledge Companion to Disability Studies. London: Routledge. 

Emerson, E. (2011). Health status and health risks of the ‘hidden majority’ of adults with intellectual disability. Intellectual & Developmental Disabilities 49, 155-165.

Emerson, E. (2010). The quality of life of disabled children. In R Kober (Ed.) Enhancing the Quality of Life of Persons with Disabilities: From Theory to Practice. Dordrecht, Netherlands: Springer. 

Emerson, E., Einfeld, S., & Stancliffe, R. (2010). The mental health of young children with intellectual disabilities or borderline intellectual functioning. Social Psychiatry & Psychiatric Epidemiology 45, 579-87. 

Emerson, E., Shahtahmasebi, S., Berridge, D & Lancaster, G (2010). Factors associated with poverty transitions among families supporting a child with intellectual disability. Journal of Intellectual & Developmental Disability 35, 224-234.
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Emerson, E., Madden, R., & Robertson, J., Graham, H., Hatton, C. & Llewellyn, G. (2009). Intellectual and Physical Disability, Social Mobility, Social Inclusion & Health. Lancaster: Centre for Disability Research, Lancaster University.

The impact of disadvantage

Hatton, C., & Emerson, E. (2015). Health Disparities and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, Vol 48. New York: Elsevier.

Emerson, E., & Spencer, N. (2015). Health inequity and children with intellectual disabilities. In Hatton, C., & Emerson, E. (eds) Health Disparities and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, Vol 48, p73-114. New York: Elsevier.

Hatton, C., Bonardi, A., Emerson, E., Fox, M.H., Glover, G., Krahn, G.L., Ouellette-Kuntz, H., & Turner, S. (2015). Health surveillance and people with intellectual disabilities. In Hatton, C., & Emerson, E. (eds) Health Disparities and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, Vol 48, p1-10. New York: Elsevier.

Hatton, C., & Emerson, E. (2015). Introduction: Health disparities, health inequity, and people with intellectual disabilities. In Hatton, C., & Emerson, E. (eds) Health Disparities and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, Vol 48, p1-10. New York: Elsevier.

Llewellyn, G., Vaughan, C., & Emerson, E. (2015). Discrimination and the health of people with intellectual disabilities. In Hatton, C., & Emerson, E. (eds) Health Disparities and People with Intellectual Disabilities. International Review of Research in Developmental Disabilities, Vol 48, p43-72. New York: Elsevier.

Emerson, E., & Hatton, C. (2015). Levekår og helse. In Kermit, P., Gustavsson, A., Kittelsaa, A., & Ytterhus, B (eds) Utviklingshemming: Hverdagsliv, levekår og politick, p59-72. Oslo: Universitetsforlaget.

Totsika, V., Hastings, R.P., Emerson, E., Berridge, D., Lancaster, G.A. (2015). Prosocial skills in young children with autism, and their mothers’ psychological well-being: longitudinal relationships. Research in Autism Spectrum Disorders 13-14, 25-31 doi: 10.1016/j.rasd.2015.01.001

Wigham, S., & Emerson, E. (2015, online early). Trauma and life events in adults with intellectual disability. Current Developmental Disorders Reports DOI 10.1007/s40474-015-0041-y

Emerson, E., Blacher, J., Einfeld, S., Hatton, C., Robertson, J., & Stancliffe, R.J. (2014). Environmental risk factors associated with the persistence of conduct difficulties in children with intellectual disabilities and autistic spectrum disorders. Research in Developmental Disabilities 35, 3508–3517.

Emerson, E., & Brigham, P. (2014). The developmental health of children of parents with intellectual disabilities. Research in Developmental Disabilities 35, 917-21.Emerson, E. & Hatton, C. (2014). Health Inequalities and People with Intellectual Disabilities. Cambridge: Cambridge University Press.

Emerson, E., & Giallo, R. (2014). The wellbeing of siblings of children with disabilities. Research in Developmental Disabilities 35, 2085-2092.

Emerson, E., Hatton, C., Robertson, J. & Baines, S. (2014). Perceptions of neighbourhood quality, social and civic participation and the self rated health of British adults with intellectual disability: cross sectional study. BMC Public Health 14, 1252  doi:10.1186/1471-2458-14-1252

Emerson, E., Kariuki, M., Honey, A., & Llewellyn, G. (2014). Becoming disabled: The association between disability onset in younger adults and subsequent changes in productive engagement, social support, financial hardship and subjective wellbeing. Disability & Health Journal 7, 448-456. http://dx.doi.org/10.1016/j.dhjo.2014.03.004

Emerson, E., & Roulstone, A. (2014). Developing an evidence base for violent and disablist hate crime in the Britain: Findings from the Life Opportunities Survey. Journal of Interpersonal Violence 29, 3086-3104 doi: 10.1177/0886260514534524

Emerson, E., Robertson, J., Baines, S., & Hatton, C. (2014). The self-rated health of British adults with intellectual disability. Research in Developmental Disabilities, 35, 591-6.

Families Special Interest Research Group of IASSIDD (2014). Families supporting a child with intellectual or developmental disabilities: The current state of knowledge. Journal of Applied Research in Intellectual Disabilities 27, 420-30. DOI: 10.1111/jar.12078

Honey, A., Kariuki, M., Emerson, E., & Llewellyn, G. (2014). Young adults, disability and employment transition dynamics: An Australian perspective. Australian Journal of Social Issues 49, 1561-170.

Robertson, J., Emerson, E., Baines, S., & Hatton, C. (2014). Obesity and health behaviours of British adults with self-reported intellectual impairments: Cross sectional survey.  BMC Public Health, 14, 219.

Allen, D., Langthorne, P., Tonge, B., Emerson, E., McGill, P., Fletcher, R., Dosen, A., & Kennedy, C. (2013), Towards the prevention of behavioural and psychiatric disorders in people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26, 501-514.

Emerson, E. (2013). Commentary: Childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disability Research, 57, 589-600. doi: 10.1111/j.1365-2788.2012.01577.x
View full text  

Emerson, E., & Brigham, P. (2013). Health behaviours and mental health status of parents with intellectual disabilities: Cross sectional study. Public Health 127, 1111-1116. http://dx.doi.org/10.1016/j.puhe.2013.10.001

Emerson., E & Halpin, S. (2013). Anti-social behaviour and police contact among 13-15 year English adolescents with and without mild/moderate intellectual disability. Journal of Applied Research in Intellectual Disabilities 26, 362-369. DOI: 10.1111/jar.12041

Emerson, E., Honey, A., & Llewellyn, G. (2013). Disability Transitions Across The Life-Course: Preliminary Data From Australia. Sydney: Centre for Disability Research and Policy.

Emerson, E & Jahoda, A. (2013). Social and psychological factors as determinants of emotional and behavioral difficulties. In J. L. Taylor, W. R. Lindsay, R. P. Hastings & C. Hatton (eds) Psychological Therapies for Adults with Intellectual Disabilities. p15-30. Chichester: Wiley.

Totsika, V, Hastings, R.P., Emerson, E., Lancaster , G.A., Berridge, D.M., Vagenas, D. (2013). Is there a bidirectional relationship between maternal well-being and child behavior problems in autism spectrum disorders? Longitudinal analysis of a population-defined sample of young children. Autism Research 6, 201-11.

Emerson, E., Llewellyn, G., Honey, A., & Kariuki, M. (2012). The lower well-being of young Australian adults with self-reported disability reflects their poorer living conditions rather than health issues. Australian & New Zealand Journal of Public Health 36, 176-182. doi: 10.1111/j.1753-6405.2011.00810.x 

Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B., & Robertson, J. (2012). Disablement and health. In N Watson, C Thomas & A Roulestone (Eds)The Routledge Companion to Disability Studies. London: Routledge.

Allerton, L., Welch, V., & Emerson, E. (2011). Health inequalities experienced by children and young people with intellectual disabilities: A review of literature from the United Kingdom.Journal of Intellectual Disabilities 15, 269–278. 

Emerson, E. (2011). Health status and health risks of the ‘hidden majority’ of adults with intellectual disability. Intellectual & Developmental Disabilities 49, 155-165. 

Emerson, E., Einfeld, S., & Stancliffe, R. (2011). Predictors of the persistence of conduct difficulties in children with cognitive delay. Journal of Child Psychology & Psychiatry and Allied Disciplines 52, 1184-1194.

Emerson, E.,  Madden, R.,  Graham, H.,  Llewellyn, G.,  Hatton., C., &  Robertson, J. (2011). The health of disabled people and the social determinants of health. Public Health 125, 145-7. 

Honey, A., Kariuki, M., Emerson, E., & Llewellyn, G. (2011). The mental health of young people with disabilities: Impact of social conditions. Social Psychiatry & Psychiatric Epidemiology 46, 1-10. 

Emerson, E. (2010). Self-reported exposure to disablism is associated with poorer self-reported health and well-being among adults with intellectual disabilities in England: Cross sectional survey. Public Health 124, 682-689.

Emerson, E., & Einfeld, S. (2010). Emotional and behavioural difficulties in young children with and without developmental delay: A bi-national perspective. Journal of Child Psychology & Psychiatry and Allied Disciplines 51, 583-93.  

Emerson, E., McCulloch, A., Graham, H., Blacher, J., Llewellyn, G., & Hatton, C.  (2010). Socio-economic circumstances and risk of common psychiatric disorders among parents of young children with and without early cognitive delay in the UK. American Journal on Intellectual and Developmental Disability 115, 30-42. 

Emerson, E., & Robertson, J.  (2010). Obesity in young Australian children with intellectual disabilities or borderline intellectual functioning. International Journal of Pediatric Obesity 5, 320-326.

Hatton, C., Emerson, E., Graham, H., Blacher, J., & Llewellyn, G. (2010). Changes in family composition and marital status in families with a young child with cognitive delay. Journal of Applied Research in Intellectual Disabilities 23, 14-26.

Emerson, E. (2009). Overweight and obesity in 3 and 5 year old children with and without developmental delay. Public Health 123, 130-133.

Emerson, E., Madden, R., & Robertson, J., Graham, H., Hatton, C. & Llewellyn, G. (2009). Intellectual and Physical Disability, Social Mobility, Social Inclusion & Health. Lancaster: Centre for Disability Research, Lancaster University.

The impact of disability

Robertson, J., Hatton, C., Emerson, E., & Baines, S. (2015). Prevalence of epilepsy among people with intellectual disabilities: a systematic review. Seizure 29, 46-62.

Robertson, J., Hatton, C., Emerson, E., Baines, S. (2015 online early). Systematic reviews of the health or healthcare of people with intellectual disabilities: a systematic review to identify gaps in the evidence base. Journal of Applied Research in Intellectual Disabilities doi: 10.1111/jar.12149

Totsika, V., Hastings, R.P., Emerson, E., Berridge, D., Lancaster, G.A.(2015). Prosocial skills in young children with autism, and their mothers’ psychological well-being: longitudinal relationships. Research in Autism Spectrum Disorders 13-14, 25-31 doi: 10.1016/j.rasd.2015.01.001

Emerson, E., Blacher, J., Einfeld, S., Hatton, C., Robertson, J., & Stancliffe, R.J. (2014). Environmental risk factors associated with the persistence of conduct difficulties in children with intellectual disabilities and autistic spectrum disorders. Research in Developmental Disabilities 35, 3508–3517.

Emerson, E., & Brigham, P. (2014). The developmental health of children of parents with intellectual disabilities. Research in Developmental Disabilities 35, 917-21.

Emerson, E. & Hatton, C. (2014). Health Inequalities and People with Intellectual Disabilities. Cambridge: Cambridge University Press.

Emerson, E., Kariuki, M., Honey, A., & Llewellyn, G. (2014). Becoming disabled: The association between disability onset in younger adults and subsequent changes in productive engagement, social support, financial hardship and subjective wellbeing. Disability & Health Journal 7, 448-456. http://dx.doi.org/10.1016/j.dhjo.2014.03.004

Emerson, E., & Roulstone, A. (2014). Developing an evidence base for violent and disablist hate crime in the Britain: Findings from the Life Opportunities Survey. Journal of Interpersonal Violence 29, 3086-3104 doi: 10.1177/0886260514534524

Families Special Interest Research Group of IASSIDD (2014). Families supporting a child with intellectual or developmental disabilities: The current state of knowledge. Journal of Applied Research in Intellectual Disabilities 27, 420-30. DOI: 10.1111/jar.12078

Giallo, R., Roberts, R., Emerson, E., Wood, C., & Gavidia-Payne, S. (2014). The emotional and behavioural functioning of siblings of children with special health care needs across childhood. Research in Developmental Disabilities 35, 814-825.

Honey, A., Kariuki, M., Emerson, E., & Llewellyn, G. (2014). Young adults, disability and employment transition dynamics: An Australian perspective. Australian Journal of Social Issues 49, 1561-170.

Allen, D., Langthorne, P., Tonge, B., Emerson, E., McGill, P., Fletcher, R., Dosen, A., & Kennedy, C. (2013), Towards the prevention of behavioural and psychiatric disorders in people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26, 501-514.

Totsika, V, Hastings, R.P., Emerson, E., Lancaster , G.A., Berridge, D.M., Vagenas, D. (2013). Is there a bidirectional relationship between maternal well-being and child behavior problems in autism spectrum disorders? Longitudinal analysis of a population-defined sample of young children. Autism Research 6, 201-11.

Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B., & Robertson, J. (2012). Disablement and health. In N Watson, C Thomas & A Roulestone (Eds) The Routledge Companion to Disability Studies. London: Routledge. 

Emerson, E.,  Madden, R.,  Graham, H.,  Llewellyn, G.,  Hatton., C., &  Robertson, J. (2011). The health of disabled people and the social determinants of health. Public Health 125, 145-7. 

Allerton, L., & Emerson, E. (2012). Individuals with impairments face significant barriers to accessing health services in the United Kingdom. Public Health http://dx.doi.org/10.1016/j.puhe.2012.08.003 

Emerson, E. (2011). Health status and health risks of the ‘hidden majority’ of adults with intellectual disability. Intellectual & Developmental Disabilities 49, 155-165.

Kariuki, M., Honey, A., Emerson, E., & Llewellyn, G. (2011). Mental health trajectories of young people after disability onset. Disability and Health Journal 4, 91-101.

Shahtahmasebi, S., Emerson, E., Berridge, D & Lancaster, G (2011). Child disability and the dynamics of family poverty, hardship and financial strain: Evidence from the UK. Journal of Social Policy 40, 653-673.

Emerson, E., McCulloch, A., Graham, H., Blacher, J., Llewellyn, G., & Hatton, C.  (2010). Socio-economic circumstances and risk of common psychiatric disorders among parents of young children with and without early cognitive delay in the UK. American Journal on Intellectual and Developmental Disability 115, 30-42.

Emerson, E., & Robertson, J.  (2010). Obesity in young Australian children with intellectual disabilities or borderline intellectual functioning. International Journal of Pediatric Obesity 5, 320-326.

Emerson, E., Shahtahmasebi, S., Berridge, D & Lancaster, G (2010). Factors associated with poverty transitions among families supporting a child with intellectual disability. Journal of Intellectual & Developmental Disability 35, 224-234.
View full text

Hatton, C., Emerson, E., Graham, H., Blacher, J., & Llewellyn, G. (2010). Changes in family composition and marital status in families with a young child with cognitive delay. Journal of Applied Research in Intellectual Disabilities 23, 14-26.

Emerson, E., Madden, R., & Robertson, J., Graham, H., Hatton, C. & Llewellyn, G. (2009). Intellectual and Physical Disability, Social Mobility, Social Inclusion & Health. Lancaster: Centre for Disability Research, Lancaster University.

Resilience in the face of disadvantage

Emerson, E. (2013). Commentary: Childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disability Research, 57, 589-600. doi: 10.1111/j.1365-2788.2012.01577.x
View full text   

Emerson, E., Madden, R., & Robertson, J., Graham, H., Hatton, C. & Llewellyn, G. (2009). Intellectual and Physical Disability, Social Mobility, Social Inclusion & Health. Lancaster: Centre for Disability Research, Lancaster University.