Selected publications for disability services

Outcomes Monitoring

Consolidated list of recent publications related to outcomes monitoring and analysis listed by country and/or region:

United States of America

Outcomes monitoring and analysis in the USA using outcomes data from the annual National Core Indicators survey: www.nationalcoreindicators.org

Collaboration with the University of Minnesota’s Research and Training Center on Community Living , the Human Services Research Institute, and the National Association of State Directors of Developmental Disability Services

 Bershadsky, J.,Taub, S., Bradley, V., Engler, J., Moseley, C., Lakin, K. C., Stancliffe, R. J., Larson, S., Ticha, R. & Bailey, C. (2012). Place of residence and preventive health care for developmental disabilities services recipients in twenty states. Public Health Reports, 127, 475-485. 

Hewitt, A. S., Stancliffe, R. J., Johnson Sirek, A., Hall-Lande, J., Taub, S., Engler, J., Bershadsky, J., Fortune, J., & Moseley, C. (2011). Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states.Research in Autism Spectrum Disorders, 6(2), 741-751. doi: 10.1016/j.rasd.2011.10.007

Lakin, K. C., Doljanac, R., Byun, S., Stancliffe, R. J., Taub, S., & Chiri, G. (2008). Choice making among Medicaid Home and Community-Based Services (HCBS) and ICF/MR recipients in six states. American Journal on Mental Retardation, 113 (5), 325-342.

Lakin, K. C., Doljanac, R., Byun, S., Stancliffe, R. J., Taub, S., & Chiri, G. (2008). Factors associated with expenditures for Medicaid home and community based services (HCBS) and intermediate care facilities for persons with mental retardation (ICF/MR) services for persons with intellectual and developmental disabilities. Intellectual and Developmental Disabilities (formerly Mental Retardation),46(3), 200-214.

Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Bershadsky, J., Taub, S., Fortune, J., & Tichá , R.(2011). Overweight and obesity among adults with intellectual disabilities who use intellectual disability/developmental disability services in 20 U.S. states. American Journal on Intellectual and Developmental Disabilities, 116(6), 401-418. DOI: 10.1352/1944-7558-116.6.401

Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., & Fortune, J. (2011). Choice of living arrangements. Journal of Intellectual Disability Research, 55(8), 746-762. doi: 10.1111/j.1365-2788.2010.01336.x  

Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., Fortune, J., & Bershadsky, J. (2012). Demographic characteristics, health conditions, and residential service use in adults with Down syndrome in twenty-five U.S. states. Intellectual and Developmental Disabilities, 50(2), 92–108. DOI: 10.1352/1934-9556-50.2.92

Stancliffe, R. J., Lakin, K. C., Taub, S., Chiri, G., & Byun, S. (2009). Satisfaction and sense of well-being among Medicaid ICF/MR and HCBS recipients in six states. Intellectual and Developmental Disabilities (formerly Mental Retardation), 47(2), 63-83. doi: 10.1352/1934-9556-47.2.63

Stancliffe, R. J., Lakin, K. C., Taub, S., Doljanac, R., Byun, S., & Chiri, G. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities (formerly Mental Retardation), 45(6), 380-390.

Stancliffe, R. J., Larson, S. A., Auerbach, K., Engler, J., Taub, S. & Lakin, K. C. (2010). Individuals with intellectual disabilities and augmentative and alternative communication: Analysis of survey data on uptake of aided AAC, and loneliness experiences.Augmentative and Alternative Communication, 26(2), 87-96. doi: 10.3109/07434618.2010.481564   

Tichá, R., Lakin, K. C., Larson, S., Stancliffe, R. J., Taub, S., Engler, J., Bershadsky, J., & Moseley, C. (2012).  Correlates of everyday choice and support-related choice for 8,892 randomly sampled adults with intellectual and developmental disabilities in 19 states. Intellectual and Developmental Disabilities, 50(6), 486–504. DOI: 10.1352/1934-9556-50.06.486

Tichá, R., Lakin, K.C., Stancliffe, R. J., Larson, S., Taub, S., Engler, J., Bershadsky, J., & Moseley, C. (2012). Community participation of adults with intellectual and developmental disabilities receiving residential supports in 19 states.  Manuscript submitted for publication.

Australia

Einfeld, S. L., Ellis, L., Doran, C. M., Emerson, E., Horstead, S., Madden, R., & Tonge, B. J  (2010). Behaviour problems increase costs of care of children with intellectual disabilities. Journal of Mental Health Research in Intellectual Disabilities, 3, 202-209.

Emerson, E., Honey, A., Madden, R., & Llewellyn, G. (2009). The well-being of Australian adolescents and young adults with self-reported long-term health conditions, impairments or disabilities: 2001 and 2006. Australian Journal of Social Issues, 44(1), 37-51.

Emerson, E., Llewellyn, G., Honey, A., & Kariuki, M. (in press). The lower well-being of young Australian adults with self-reported disability reflects their poorer living conditions rather than health issues. Australian & New Zealand Journal of Public Health online doi: 10.1111/j.1753-6405.2011.00810.x

Emerson, E., & Robertson, J.  (2010). Obesity in young Australian children with intellectual disabilities or borderline intellectual functioning. International Journal of Pediatric Obesity, 5, 320-326.

Honey, A., Kariuki, M., Emerson, E., & Llewellyn, G. (2011). The mental health of young people with disabilities: Impact of social conditions. Social Psychiatry & Psychiatric Epidemiology, 46, 1-

United Kingdom

Emerson, E., Felce, D. & Stancliffe, R. J. (2013). Issues concerning self-report data and population-based data sets involving people with intellectual disabilities. Intellectual and Developmental Disabilities51(5), 333-348. DOI: 10.1352/1934-9556-51.5.333

Allerton, L., & Emerson, E. (2012). Individuals with impairments face significant barriers to accessing health services in the United Kingdom. Public Health http://dx.doi.org/10.1016/j.puhe.2012.08.003

Emerson, E. (2011). Health status and health risks of the ‘hidden majority’ of adults with intellectual disability. Intellectual & Developmental Disabilities, 49, 155-165.  

Emerson, E. (2010). Self-reported exposure to disablism is associated with poorer self-reported health and well-being among adults with intellectual disabilities in England: Cross sectional survey. Public Health, 124, 682-689

Emerson, E. (2009). Overweight and obesity in 3 and 5 year old children with and without developmental delay. Public Health, 123, 130-133.

Emerson, E., Baines, S., Allerton, L, & Welch, V. (2011). Health inequalities and people with Learning Disabilities in the UK: 2011. Durham: Improving Health & Lives: Learning Disability Observatory.http://www.improvinghealthandlives.org.uk/securefiles/120911_0735//IHaL%202011-09%20HealthInequality2011.pdf

Emerson, E., Baines, S., & Hatton, C. (2007). Disability Equality: How will we know we are making a difference? London: Office for Disability Issues. http://www.officefordisability.gov.uk/docs/consultations/ded-difference.pdf

Emerson, E., Hatton, C., Robertson, J., Roberts, H., Baines, S., Evison, F., & Glover, G. (2012). People with Learning Disabilities in England 2011. Durham: Improving Health & Lives: Learning Disability Observatory.http://www.improvinghealthandlives.org.uk/securefiles/120911_0736//IHAL2012-04PWLD2011.pdf

Glover, G. , Emerson, E., & Evison, F. (2012). The Uptake of Health Checks for People with Learning Disabilities: 2008/9 to 2011/12. Durham: Improving Health & Lives: Learning Disability Observatory.http://www.improvinghealthandlives.org.uk/uploads/doc/vid_16402_IHAL2012-07%20Health%20Checks%20for%20People%20with%20Learning%20Disabilities%202008-9%20to%202011-12v3.pdf

Robertson, J., & Emerson, E. (2010). Participation in sports by people with intellectual disabilities in England.Journal of Applied Research in Intellectual Disabilities, 23, 616-622.

Shahtahmasebi, S., Emerson, E., Berridge, D & Lancaster, G (2011). Child disability and the dynamics of family poverty, hardship and financial strain: Evidence from the UK. Journal of Social Policy, 40, 653-673.

Welch, V., Hatton, C., Emerson, E., Robertson, J., Collins, M., Langer, S. & Wells, E. (2012) Do short breaks and respite services for families with a disabled child in England make a difference to siblings? A qualitative analysis of sibling and parent responses.Children and Youth Services Review, 34, 451-459.

Europe and International

Emerson, E. (2010). The quality of life of disabled children. In R. Kober (Ed.) Enhancing the quality of life of persons with disabilities: from theory to practice. Dordrecht, Netherlands: Springer.

Fahey, A., Walsh, P. N., Emerson, E., &Guerin, S. (2010). Characteristics, supports, and quality of life of Irish adults with intellectual disability in life-sharing residential communities. Journal of Intellectual & Developmental Disability,35, 66-76.

Haveman, M., Perry, J., Salvador-Carulla, L., Walsh ,P. N., Kerr, M., Van Schrojenstein Lantman-de Valk ,H., et al. 2011). Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellect & Developmental Disability, 36(1):49-60.

Irazábal, M., Marsà, F., García, M., Gutiérrez-Recacha, P., Martorell, A., Salvador-Carulla, L., & Ochoa, S. (2012). Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder. Research in Developmental Disabilities, 33(3):796-803.

Lucas-Carrasco, R., & Salvador-Carulla, L. (2012). Life satisfaction in persons with intellectual disabilities. Research in Developmental Disabilities, 33, 1103–1109.

Luciano, J. V., Bertsch, J., Salvador-Carulla, L., Tomás, J. M., Fernández, A., Pinto-Meza, A., et al. (2010). Factor structure, internal consistency and construct validity of the Sheehan Disability Scale in a Spanish primary care sample. Journal of Evaluation and Clinical  Practice,16(5), 895-901.

Ochoa, S., Salvador-Carulla, L., Vilalta, V., Gibert, K., Haro, J. M. (2012). Use of functioning-disability, and dependency for case-mix and subtyping of schizophrenia. European Journal of Psychiatry, 26 (1), 1-12.

Salvador-Carulla L, Olson Walsh C, Alonso F, Gómez R, de Teresa C, Cabo-Soler JR, Cano A, Ruiz M. (2012). eVITAL: A preliminary taxonomy and electronic toolkit of health-related habits and lifestyle. Scientific World Journal, 379752.

Walsh, P. N. Emerson, E., Lobb, C., Hatton, C., Bradley, V., Schalock, R L., & Moseley., C. (2010). Supported accommodation for people with intellectual disabilities and quality of life:  An overview. Journal of Policy and Practice in Intellectual Disability 7, 137-142.


Improving Outcomes

Increased participation in meaningful activities following active support intervention

Qian, X., Tichá, R., Larson, S., Stancliffe, R. J., & Wuorio, A. (Epublication 25/7/14). The Impact of individual and organisational factors on engagement of individuals with intellectual disability living in community group homes: A multilevel model. Journal of Intellectual Disability Research

Chng, J. P. L., Stancliffe, R. J., Wilson, N. J. & Anderson, K. (2013) Engagement in retirement: An evaluation of the effect of Active Mentoring on engagement of older adults with intellectual disability in community activities. Journal of Intellectual Disability Research.57(12), 1130-1142. doi: 10.1111/j.1365-2788.2012.01625.x 

Stancliffe, R. J., Harman, A. D., Toogood, S., & McVilly, K. R. (2011). Staffing numbers and Active Support: A case study. Tizard Learning Disability Review16(3), 21–30. doi: 10.1108/13595471111158666

Stancliffe, R. J., Harman, A. D., Toogood, S., & McVilly, K. R. (2008). Staff behaviour and resident engagement before and after Active Support training. Journal of Intellectual & Developmental Disability, 33(3), 257-270.

Stancliffe, R. J., Harman, A. D., Toogood, S., & McVilly, K. R. (2007). Australian implementation and evaluation of active support.Journal of Applied Research in Intellectual Disabilities, 20, 211-227.

Stancliffe, R. J., Jones, E., & Mansell, J. (2008). Editorial. Active support research. Journal of Intellectual & Developmental Disability, 33(3), 194-195.

Stancliffe, R. J., Jones, E., & Mansell, J. (2008). Active support[Special issue]. Journal of Intellectual & Developmental Disability, 33(3), 194-277.

Stancliffe, R. J., Jones, E., Mansell, J., & Lowe, K. (2008). Active support: A critical review and commentary. Journal of Intellectual & Developmental Disability, 33(3), 196-214.

Stancliffe, R. J., McVilly, K. R., Radler, G., Mountford, L. & Tomaszewski, P. (2010). Active Support, participation and depression.Journal of Applied Research in Intellectual Disabilities, 23, 312-321doi: 10.1111/j.1468-3148.2009.00535.x  

Social inclusion in mainstream community groups for older people with a disability as they transition toward retirement

Roger J. Stancliffe, Nathan J. Wilson, Nicolette Gambin, Christine Bigby & Susan Balandin (2013) Transition to Retirement: A Guide to Inclusive Practice. Sydney: Sydney University Press ISBN: 9781743323274
Based on a 3-year ARC Linkage research project plus several years of service delivery experience, this manual provides disability practitioners with detailed practical information about how to effectively support older people with long-term disability (such as intellectual disability) to join mainstream community groups or volunteering groups. 
Click here to preview the table of contents and first few chapters.

The Transition to Retirement manual and DVD is available for purchase online here
More information can be found here

Development of healthy sexuality

Wilson, N. J. (2005). Men, health and intellectual disability: The current status. The Journal of the Association of Practitioners in Learning Disabilities, 21(3), 6-13.

Wilson, N. J., Cumella, S., Parmenter, T. R., Stancliffe, R. J., & Shuttleworth, R. P. (2009). Penile hygiene: puberty, paraphimosis and personal care for men and boys with an intellectual disability. Journal of Intellectual Disability Research, 53(2), 106-114. doi: JIR1133 [pii] 10.1111/j.1365-2788.2008.01133.x

Wilson, N. J., Parmenter, T. R., Stancliffe, R. J., & Shuttleworth, R. P. (2011). Conditionally Sexual: men and teenage boys with moderate to profound intellectual disability. Sexuality and Disability, 29(3), 275-289.

Social inclusion of men and boys with lifelong disability

Usall, J. L., Haro, J. M., Araya, S., Moreno, B., Muñoz, P. E., Martínez, A., Salvador, L. & PSICOST group. (2007). Social functioning in schizophrenia: what is the influence of gender?. European Journal of Psychiatry, 21 (3), 199-205.

Wilson, N. J., Parmenter, T. R., Stancliffe, R. J., Shuttleworth, R. P., & Parker, D. (2010). A masculine perspective of gendered topics in the research literature on males and females with intellectual disability. Journal of Intellectual and Developmental Disability, 35(1), 1-8.

Wilson, N. J., Shuttleworth, R. P., Stancliffe, R. J., & Parmenter, T. R. (2012). Masculinity theory in applied research with men and boys with intellectual disability. Intellectual and Developmental Disabilities, 50(3), 261-272. doi: 10.1352/1934-9556-50.3.261

Wilson, N. J., Stancliffe, R. J., Parmenter, T. R., & Shuttleworth, R. P. (2011). Gendered service delivery: A masculine and feminine perspective on staff gender. Intellectual and Developmental Disabilities, 49(5), 341-351.


Understanding the Disability Service System

Consolidated list of recent publications about disability services organised by country and/or region:

Australia

Anderson, K., Balandin, S., & Stancliffe, R. J. (in press, accepted 19/8/14). Alternative service delivery models for families with a new SGD: Perspectives of parents and therapists. International Journal of Speech-Language Pathology.

Anderson, K., Balandin, S., & Stancliffe, R. J. (Epublication 26/9/14). “It’s got to be more than that.” Parents and speech-language pathologists discuss training content for families with a new speech generating device. Disability and Rehabilitation: Assistive Technology.DOI: 10.3109/17483107.2014.967314

Anderson, K., Balandin, S., & Stancliffe, R. (2014). Australian parents’ experiences of speech generating device (SGD) service delivery. Developmental Neurorehabilitation, 17(2), 75-83. DOI: 10.3109/17518423.2013.857735

Arnold, S., Riches, V. & Stancliffe, R. J. (in press, accepted 7/9/14). Does a measure of support needs predict funding need better than a measure of adaptive and maladaptive behavior? American Journal on Intellectual and Developmental Disabilities.

Arnold, S. R. C., Riches, V. C. & Stancliffe R. J. (2014). I-CAN: The classification and prediction of support needs.Journal of Applied Research in Intellectual Disabilities, 27(2), 97-111. doi 10.1111/jar.12055

Ballin, L. Balandin, S., & Stancliffe, R. J. (2013). The speech generating device (SGD) mentoring program: Supporting the development of people learning to use an SGD. Journal of Developmental and Physical Disabilities, 25(4), 437-459. DOI 10.1007/s10882-012-9322-0

Ballin, L., Balandin, S., & Stancliffe, R. J. (2012). The speech generating device (SGD) mentoring program: Training adults who use an SGD to mentor. AAC: Augmentative and Alternative Communication, 28(4), 254-265. DOI: 10.3109/07434618.2012.708880

Ballin, L. Balandin, S., Stancliffe, R. J., & Togher, L. (2012). The views of people who use speech generating devices (SGDs) on mentoring new learners. Disability and Rehabilitation: Assistive Technology, 7(1), 63-74.

Cahill, S., Stancliffe, R. J., Clemson, L., & Durvasula, S. (2014). Reconstructing the fall: Individual, behavioural and contextual factors associated with falls in individuals with intellectual disability.Journal of Intellectual Disability Research, 58(4), 321-332. DOI: 10.1111/jir.12015

Chan, J., Merriman, B., Parmenter, T., & Stancliffe, R. (2012). Rethinking respite policy for people with intellectual and developmental disabilities.  Journal of Policy and Practice in Intellectual Disabilities, 9(2), 120-126.

Hillman, A. Donelly, M., Dew, A., Stancliffe, R.J., Whitaker, L., Knox, M., Shelley, K., &. Parmenter, T.R. (2013). The dynamics of support over time in the intentional support networks of nine people with intellectual disability. Disability and Society, 28(7), 922-936.DOI:10.1080/09687599.2012.741515

Hillman, A. Donelly, M., Whitaker, L., Dew, A., Stancliffe, R.J., Knox, M., Shelley, K., &. Parmenter, T.R. (2012). Experiencing rights within positive, person-centred support networks of people with intellectual disability in Australia.Journal of Intellectual Disability Research, 56(11), 1065-1075.doi: 10.1111/j.1365-2788.2012.01647.x

Lante, K., Stancliffe, R. J., Bauman, A., van der Ploeg, H. P., Jan, S., & Davis, G. M. (in press, accepted 1/10/14). Embedding sustainable physical activities into the everyday lives of adults with intellectual disabilities: a randomised controlled trial. BMC Public Health.

Stancliffe, R. J. (2014). Inclusion of adults with disability in Australia:  Outcomes, legislation and issues. International Journal of Inclusive Education, 18(10), 1053-1063.DOI:10.1080/13603116.2012.693395

Wiese, M., Stancliffe, R. J., Dew, A. Balandin, S., & Howarth, G. (2014). What is talked about? Community living staff experiences of talking with older people with intellectual disability about dying and death. Journal of Intellectual Disability Research, 58(7), 679-690. doi: 10.1111/jir.12065

Wiese, M., Dew, A., Stancliffe, R. J., Howarth, G., & Balandin, S. (2013). "If and when?": the beliefs and experiences of community living staff in supporting older people with intellectual disability to know about dying. Journal of Intellectual Disability Research, 57(10), 980-992. doi: 10.1111/j.1365-2788.2012.01593.x

Wiese, M., Stancliffe, R. J., Balandin, S., Howarth, G. & Dew, A. (2012). End-of-life care and dying: Issues raised by staff supporting older people with intellectual disability in community living services. Journal of Applied Research in Intellectual Disabilities, 25(6), 571-583.  DOI: 10.1111/jar.12000

Europe

Martínez-Leal R, Salvador-Carulla L, Linehan C, Walsh P, Weber G, Van Hove G, et al. (2011). The impact of living arrangements and deinstitutionalisation in the health status of persons with intellectual disability in Europe. Journal of Intellectual Disability Research55(9), 858-872.

Perry J, Linehan C, Kerr M, Salvador-Carulla L, Zeilinger E, Weber G, et al. (2010). The P15 - a multinational assessment battery for collecting data on health indicators relevant to adults with intellectual disabilities. Journal of Intellectual Disability Research, 54(11), 981-991.

Salvador-Carulla L, Garcia-Gutierrez C. (2011). The WHO construct of health-related functioning (HrF) and its implications for health policy. BMC Public Health, 11 Suppl 4:S9.

Salvador-Carulla L, Poole M, Gonzalez-Caballero JL, Romero C, Salinas JA, Lagares-Franco CM. (2006). Development and usefulness of an instrument for the standard description and comparison of services for disabilities (DESDE). Acta Psychiatr Scand Suppl., 432, 19-28.

Veenstra MY, Walsh PN, van Schrojenstein Lantman-de Valk HMJ, Haveman MJ, Linehan C, Kerr MP, et al. (2010). Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities. J Clin Epidemiol., 63(10), 1091-1100.

Walsh PN, Linehan C, Kerr MP, Lantman H, Buono S, Azema B, Aussilloux C, Maata T, Salvador-Carulla L, Garrido M, Hove G, Bjorkman M, Ceccotto R, Kamper M, Weber G, Heiss C, Haveman M, Jordensen, F, O´Farrell L. (2006). Brief research report: Developing a set of health indicators for people with intellectual disabilities: Pomona Project.  Journal of Policy and Practice in Intellectual Disabilities, 2, 260-263.

Spain

Martínez-Leal R, Salvador-Carulla L, Gutiérrez-Colosía MR, Nadal M, Novell-Alsina R, Martorell A, González-Gordón RG, Mérida-Gutiérrez MR, Ángel S, Milagrosa-Tejonero L, Rodríguez A, García-Gutiérrez JC, Pérez-Vicente A, García-Ibáñez J, Aguilera-Inés F. (2011). Health among persons with intellectual disability in Spain: the European POMONA-II study. Rev Neurol., 53(7), 406-14.

Salvador-Carulla L, Costa-Font J, Cabases J, McDaid D, Alonso J. Evaluating mental health care and policy in Spain. J Ment Health Policy Econ. 2010 ;13(2):73-86.

Salvador-Carulla L, Gibert K, Ochoa S. (2010). Definition of «functional dependency». Implications for health and social policy. Aten Primaria, 42(6), 344-345.

United Kingdom

Allerton, L., & Emerson, E. (2012). Individuals with impairments face significant barriers to accessing health services in the United Kingdom. Public Healthhttp://dx.doi.org/10.1016/j.puhe.2012.08.003

Emerson, E. & Ramcharan, P. (2010). Models of service delivery. In G Grant, P Ramcharan, M Flynn & M Richardson (Eds.) Learning Disability: A Life Cycle Approach. Maidenhead: McGraw Hill & Open University Press.

Emerson, E., & Robertson, J. (2008). Commissioning person-centered, cost-effective, local support for people with learning difficulties. London: SCIE.http://www.scie.org.uk/publications/knowledgereviews/kr20.asp

Hatton, C., Emerson, E., Kirby, S., Kotwal, H., Baines, S., Hutchinson, C., Dobson, C., Marks, B. (2010). Majority and minority ethnic family carers of adults with intellectual disabilities: Perceptions of challenging behaviour and family impact. Journal of Applied Research in Intellectual Disabilities 23, 63-74.

Robertson, J., & Emerson, E. (2007). A review of evaluative research on case management for people with intellectual disabilities.  C Bigby, E Ozanne & C Fyffe (Eds) Issues in Case Management Practice for People with Intellectual Disabilities: A Handbook for Practitioners. London: Jessica Kingsley.

Robertson, J., Hatton, C., Wells, E., Collins, M., Langer, S., Welch, V., & Emerson, E. (2011).  The Impacts of short break provision on families with a disabled child: an international literature review. Health & Social Care in the Community 19, 337–371.

Robertson, J., Roberts, H., Emerson, E., Turner, S., & Greig, R. (2011).  The impact of health checks for people with intellectual disabilities: a systematic review of evidence.Journal of Intellectual Disability Research 551009-1019. doi: 10.1111/j.1365-2788.2011.01436.x

Welsh, V., Hatton, C., Emerson, E., Collins, M., Robertson, J., Langer, S., & Wells, E.(published online). Using direct payments to fund short breaks for families with a disabled child. Child: Care, Health & Development doi:10.1111/j.1365-2214.2011.01339.x

Welch, V., Hatton, C., Emerson, E., Robertson, J., Collins, M., Langer, S. & Wells, E. (2012) Do short breaks and respite services for families with a disabled child in England make a difference to siblings? A qualitative analysis of sibling and parent responses. Children and Youth Services Review 34, 451-9.

United States of America

Hewitt, A., Stancliffe, R. J., & Emerson, E. (Eds.). (2013). Community living and participation.[Special issue]. Intellectual and Developmental Disabilities,51(5), 293-427.

Hewitt, A. S., Stancliffe, R. J., Johnson Sirek, A., Hall-Lande, J., Taub, S., Engler, J.,Bershadsky, J., Fortune, J., & Moseley, C. (2011). Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states. Research in Autism Spectrum Disorders, 6(2), 741-751. DOI:10.1016/j.rasd.2011.10.007

Lakin, K. C., Doljanac, R., Byun, S., Stancliffe, R. J., Taub, S., & Chiri, G. (2008).Factors associated with expenditures for Medicaid home and community based services (HCBS) and intermediate care facilities for persons with mental retardation (ICF/MR) services for persons with intellectual and developmental disabilities.Intellectual and Developmental Disabilities (formerly Mental Retardation), 46(3), 200-214.

Lakin, K. C. & Stancliffe, R. J. (2007). Residential supports for persons with intellectual and developmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 151-159.

Stancliffe, R. J., & Abery, B. H. (1997). Longitudinal study of deinstitutionalization and the exercise of choice. Mental Retardation, 35, 159-169.

Stancliffe, R. J., & Hayden, M. F. (1998). Longitudinal study of institutional downsizing: Effects on individuals who remain in the institution. American Journal on Mental Retardation, 102, 500-510.

Stancliffe, R. J., Hayden, M. F., & Lakin, K. C.  (1999a). Interventions for challenging behavior in residential settings. American Journal on Mental Retardation, 104, 364-375.

Stancliffe, R. J., Hayden, M. F., & Lakin, K. C. (1999b). Effectiveness of challenging behavior IHP objectives in residential settings: A longitudinal study. Mental Retardation, 37, 482-493.

Stancliffe, R. J., Hayden, M. F., & Lakin, K. C. (1999c). Effectiveness and quality of individual planning in residential settings: An analysis of outcomes. Mental Retardation, 37, 104-116.

Stancliffe, R. J., Hayden, M. F., & Lakin, K. C. (2000). Quality and content of individualized habilitation plan objectives in residential settings. Education and Training in Mental Retardation and Developmental Disabilities, 35, 191-207.

Stancliffe, R. J., Hayden, M. F., Larson, S. & Lakin, K. C. (2002). Longitudinal study on the adaptive and challenging behaviors of deinstitutionalized adults with intellectual disability. American Journal on Mental Retardation, 107, 302-320.

Stancliffe, R. J., & Lakin, K. C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal on Mental Retardation, 102, 552-568.

Stancliffe, R. J., & Lakin, K. C. (1999). A longitudinal comparison of day program services and outcomes of people who left institutions and those who stayed. The Journal of the Association for Persons with Severe Handicaps, 24, 44-57.

Stancliffe, R. J., & Lakin, K. C. (2006a). Longitudinal frequency and stability of family contact in institutional and community living. Mental Retardation, 44(6), 418-429.

Stancliffe, R. J., & Lakin, K. C. (2006b). Minority status, consumer outcomes and service inputs in four states. Mental Retardation, 44(3), 165-183.

Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., & Fortune, J. (2011). Choice of living arrangements. Journal of Intellectual Disability Research, 55(8), 746-762. doi: 10.1111/j.1365-2788.2010.01336.x  

Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., Fortune, J., &Bershadsky, J. (2012). Demographic characteristics, health conditions, and residential service use in adults with Down syndrome in twenty-five U.S. states. Intellectual and Developmental Disabilities, 50(2), 92–108. DOI: 10.1352/1934-9556-50.2.92

Stancliffe, R. J., Lakin, K. C., Taub, S., Doljanac, R., Byun, S., & Chiri, G. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities45(6), 380-390.

Low Income Countries

Einfeld, S. L., Stancliffe, R. J., Gray, K. M., Sofronoff, K., Rice, L., Emerson, E. & Yasamy, M. T. (2012). Interventions provided by parents for children with intellectual disabilities in low and middle income countries. Journal of Applied Research in Intellectual Disabilities, 25, 135-142DOI: 10.1111/j.1468-3148.2011.00678.x