Professor Gwynnyth Llewellyn

Grants

2011 - 2013. Gwynnyth Llewellyn, Russell Shuttleworth, Nikki Wedgwood. Disability and ability: how young people with impairments make the transition to adulthood, Australian Research Council/Discovery Projects (DP). $285,000

2010 - 2011. Yinfang Ao, Yang Ke, Gwynnyth Llewellyn, Kathryn Refshauge, Patrick Brennan, . Sino-Australian Symposium: Sports and Rehabilitation Science, Australia China Council/Research Support – Workshop Funding. $17,480

2010 - 2010. Eric Emerson, Nicola Hancock, Ian Hickie, Gwynnyth Llewellyn, Anne Honey, . Indicators of well-being for young people with mental illness, Schizophrenia Fellowship of New South Wales Inc/Research Support. $18,448
2009 - 2011. Eric Emerson, Anne Honey, Gwynnyth Llewellyn. Improving the life chances of young disabled Australians, Australian Research Council/Discovery Projects (DP). $190,000

2009 - 2010. Amanda Marie Blackmore, Anita Bundy, Jacqueline Burns, Eric Emerson, Rebecca Anne Glauert, Gabrielle Hindmarsh, Anne Honey, Helen Leonard, Ros Madden, Jan Mason, Sushma Mathur, Melissa O'Donnell, Anne Marie Pearce, Debra Jane Turner, Gwynnyth Llewellyn. Health and well-being indicators for children and youth with disabilities, Australian Research Alliance for Children & Youth Research Network/Research Support. $20,000
2009 - 2011. Gwynnyth Llewellyn. Healthy start: a national strategy for children of parents with learning disabilities, Parenting Research Centre/Research Support. $371,083

2007 - 2007. Anne Honey, Rachel Mayes, Julie Schneider, Nikki Wedgwood, Gwynnyth Llewellyn, . Achieving better health outcomes for youth with chronic health conditions: A pan disciplinary approach, Australian Research Alliance for Children & Youth Research Network/Research Support. $38,276

2006 - 2009. Susan Balandin, Gwynnyth Llewellyn. The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers, Australian Research Council/Linkage Projects (LP). $76,124

2005 - 2009. Nalin Singh, Gwynnyth Llewellyn. Healthy Start:a national strategy for children of parents with intellectual disability - Source funding from Commonwealth Dept Family & Community Services through Victorian Parenting Centre Inc, Department of Family and Community Services (Federal)/Research Support. $1,326,927

2005 - 2007. Gwynnyth Llewellyn, Michael Monteiro, David McConnell. Maintaining family-based placements for children and young people with disabilities, Australian Research Council/Linkage Projects (LP). $264,667

2005 - 2007. Susan Balandin, Ann Poulos, Gwynnyth Llewellyn. Optimising participation by women with disabilities in mammography screening, National Breast Cancer Foundation/Project Grants. $212,123

Publications - refereed journals

2012

Collings, S. & Llewellyn, G. (2012). Children of parents with intellectual disability: Facing poor outcomes or faring okay? Journal of Intellectual and Developmental Disability, 37(1)65-82.

Foley, K.R., Blackmore, A.M., Girdler, S., O’Donnell, M., Glauert, R., Llewellyn, G. & Leonard, H. (2012). To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Well-Being. Child Indicators Research, (online first 25 February 2012), http://www.springer.com/social+sciences/well-being/journal/12187

2011

Llewellyn, G., Emerson, E., Honey, A. & Kariuki, M. (2011). Left behind: Monitoring the social inclusion of young Australians with disabilities, 2011-2009. Policy briefing on social inclusion of young disabled Australians.

Australian Family and Disability Studies Research Collaboration, Faculty of Health Sciences, University of Sydney.  ISBN 978-1-74210-245-0 http://sydney.edu.au/health_sciences/afdsrc/about/publications.shtml

Llewellyn, G., Balandin, S., Poulos, A. & McCarthy, L. (2011). Disability and mammography screening: intangible barriers to participation. Disability and Rehabilitation, 33(19-20), 1755–1767.

Wade, C., Llewellyn, G. & Matthews, J. (2011).  Modeling contextual influences on parents with intellectual disability and their children. American Journal on Intellectual and Developmental Disabilities, 116(6), 419-437.

Emerson, E., Llewellyn, G. , Honey, A. & Kariuki, M. (2011). Lower Well-Being of Young Australian Adults with Self-Reported Disability Reflects their Poorer Living Conditions Rather than the Presence of Health Conditions or Impairments. Australian New Zealand Journal of Public Health (online), DOI: 10.1111/j.1753-6405.2011.00810.x

Dew, A. Balandin, S. & Llewellyn, G. (2011). Using a life course approach to explore how the use of AAC impacts on adult sibling relationship. Augmentative and Alternate Communication, 27(4), 245-255.

Madden, R., Glozier, N., Mpofu, E. & Llewellyn, G. (2011). Eligibility, the ICF and the UN Convention: Australian perspectives. BMC Public Health, 11(suppl 4), S6.

Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C. & Robertson, J. (2011). The health of disabled people and the social determinants of health. Public Health, 12(3), 145-147.

Honey, A., Kariuki, M., Emerson, E. & Llewellyn, G. (2011). Mental health trajectories of young people after disability onset.  Disability and Health Journal, 4(2), 91-101.

Mayes, R., Llewellyn, G. & McConnell, D. (2011). “That’s who I choose to be”: The mother identity for women with intellectual disabilities. Women’s Studies International Forum 34(2), 112-120.                                                

Honey, A., Emerson, E. & Llewellyn, G. (2011). The mental health of young people with disabilities: Impact of social conditions. Social Psychiatry and Psychiatric Epidemiology, 46(1), 1-10.

Poulos, A., Llewellyn, G., Balandin, S., McCarthy, L. & Dark, L. (2011). Women with disability and the mammogram: An observational study to identify barriers and facilitators. Radiography, 17(1), 14-19.

 

2010

Llewellyn, G., Makuwira, J., Madden, R., Brentnall, J., Lukersmith, S., Mpofu, E., Bundy, A., Veitch, C. & Broom, A. (2010). Developing a disability and development research agenda for Asia & the Pacific. CBM, Melbourne, Australia. http://www.addc.org.au/2011/02/ddra-asia-pacific

Fraser, V., Madden, R., Honey, A., Llewellyn, G., & Emerson, E.   (2010). Indicators of Health and Well-being for Children and Young People with Disabilities: Mapping the Terrain and Proposing a Human Rights Approach.   http://www.aracy.org.au/publicationDocuments/Indicators_of_Health_and_Wellbeing_Literature_Review.pdf

Llewellyn, G., McConnell, D., Gething, L., Cant, R. & Kendig, H. (2010). Health status and coping strategies among older parent-carers of adults with intellectual disabilities in an Australian sample. Research in Developmental Disabilities 31(6), 1176-1186.

Beltran, R.0., Silove, D. & Llewellyn, G. M. (2010). Reply to the Commentary by Dr. Karolina Krysinska, PhD, on the Article by Beltran et al in Psychopathology 2009;42:113–118, Psychopathology, 43(3), 207-208.

Emerson, E., McCulloch, A., Graham, H., Blacher, J., Llwellyn, G. & Hatton, C. (2010). Socioeconomic circumstances and risk of common psychiatric disorders among parents of young children with early cognitive delay. American Journal on Intellectual and Developmental Disabilities, 115(1), 30-42.

Hatton, C., Emerson, E., Graham, H., Blacher, J. & Llewellyn, G. (2010). Changes in family composition and marital status in families with a young child with cognitive delay.  Journal of Applied Research in Intellectual Disabilities, 23(1), 14-26.

Llewellyn, G., Bundy, A., Mayes, R., McConnell, D., Emerson, E. & Brentnall, J. (2010). The development and psychometric properties of the family life interview. Journal of Applied Research in Intellectual Disabilities, 23(1), 52-62.

 

2009

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G. & Chan, J. (2009). The reliability, validity and practical utility of measuring supports using the I-CAN Instrument: Part II. Journal of Applied Research in Intellectual Disabilities, 22(4), 340-353.

Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G. & Chan, J. (2009). I-CAN: A new instrument to classify support needs for people with disability: Part I. Journal of Applied Research in Intellectual Disabilities, 22(4), 326-339.

Beltran, R., Silove, D. & Llewellyn, G. (2009). Comparison of ICD-10 diagnostic guidelines and research criteria for enduring personality change after catastrophic experience. Psychopathology, 42(2), 113-118.

Emerson, E., Honey, A., Madden, R. & Llewellyn, G. (2009). The well-being of Australian adolescents and young adults with self reported long-term health conditions, impairments or disabilities, 2001 and 2006. Australian Journal of Social Issues, 44(1), 39-53.

Mayes, R. & Llewellyn, G. (2009). What happens to parents with intellectual disability following removal of their child in child protection proceedings? Journal of Intellectual and Developmental Disability, 34(1), 92-95.

McConnell, D., Dalziel, A., Llewellyn, G., Laidlaw, K., & Hindmarsh, G. (2009). Strengthening the social relationships of mothers with learning difficulties.  British Journal of Learning Disabilities, 37(1), 66-75.

 

2008

McConnell, D, Mayes, R A, Llewellyn, G M 2008, Pre-partum distress in women with intellectual disabilities, Journal of Intellectual and Developmental Disability, 33(2), 177-183

Riches, V C, Parmenter, T R, Llewellyn, G M, Hindmarsh, G J, Chan, J 2008, The Reliability, Validity and Practical Utility of Measuring Supports using the I-CAN Instrument: Part II, Journal of Applied Research in Intellectual Disabilities, 10.1111/j.1468-3148.2008.00467.x(22(4)), 1-14

MConnell, D, Mayes, R A, Llewellyn, G M 2008, Women with intellectual disability at risk of adverse pregnancy and birth outcomes., Journal of Intellectual Disability Research, 52(6), 529-535

Emerson, E, Llewellyn, G M 2008, The mental health of Australian mothers and fathers of young children at risk of disability, Australian and New Zealand Journal of Public Health, 32(1), 53-59

"McConnell, D, Matthews, J, Llewellyn, G M, Mildon, R, Hindmarsh, G J 2008, ""Healthy Start"". A national strategy for parents with intellectual disabilities and their children., Journal of Policy and Practice in Intellectual Disabilities, 5(3), 194-202"

McConnell, D, Dalziel, A, Llewellyn, G M, Knights (nee Laidlaw), K J, Hindmarsh, G J 2008, Strengthening the social relationships of mothers with learning difficulties, British Journal of Learning Disabilities, doi:10.1111/j.1468-3156.2008.00526.x(volume 37 (1) [2009 hard copy]), 10 pages, 66-75

Mayes, R A, Llewellyn, G M, McConnell, D 2008, Active negotiation: Mothers with intellectual disabilities creating their social support networks, Journal of Applied Research in Intellectual Disabilities, 21(4), 341-350

Wade, C, Llewellyn, G M, Matthews, J 2008, Review of Parent Training Interventions for Parents with Intellectual Disability, Journal of Applied Research in Intellectual Disabilities, 21(4), 351-366

Grace, R, Llewellyn, G M, Wedgwood, N M, Fenech, M, McConnell, D 2008, Far from Ideal: Everyday experiences of mothers and early childhood professionals negotiating an inclusive early childhood experience in the Australian context., Topics in Early Childhood Special Education, 28(1), 18-30

Beltran, R, Llewellyn, G M, Silove, D 2008, Clinicians understanding of International Statistical Classification of diseases and Related Health Problems. 10th Revision diagnostic criteria: F62.0 enduring personality change after catastrophic experience., Comprehensive Psychiatry, 49(6), 593-602

Dew, A H, Balandin, S, Llewellyn, G M 2008, The psychosocial impact on siblings of people with lifelong physical disability: A review of the literature, Journal of Developmental and Physical Disabilities, 20(2008), 485-507

Riches, V C, Parmenter, T R, Llewellyn, G M, Hindmarsh, G J, Chan, J 2008, I-CAN: A New Instrument to Classify Support Needs for People with Disability: Part I, Journal of Applied Research in Intellectual Disabilities, 10.1111/j.1468-3148.2008.00466.x(22(4)), 326-339

2006

Schneider, J M, Wedgwood, N M, Llewellyn, G M, McConnell, D B 2006, Families challenged by and accommodating to the adolescent years, Journal of Intellectual Disability Research, 50(12), 926-936

Balandin, S A, Llewellyn, G M, Dew, A H, Ballin, L D 2006, We couldn't function without volunteers: Volunteering with a disability, the perspective of not-for-profit agencies, International Journal of Rehabilitation Research, 29(2), 131-136

Balandin, S A, Llewellyn, G M, Dew, A H, Ballin, L D, Schneider, J M 2006, Older disabled workers' perceptions of volunteering, Disability & Society, 21(7), 677-692

Dew, A H, Llewellyn, G M, Gorman, J J 2006, 'Having the time of my life': an exploratory study of women with intellectual disability growing older, Health Care for Women International, 27(10), 908-929

Emerson, E, Hatton, C, Llewellyn, G M, Blacker, J, Graham, H 2006, Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities, Journal of Intellectual Disability Research, 50(12), 862-873

Mayes, R A, Llewellyn, G M, McConnell, D B 2006, Misconception: The Experience of Pregnancy for Women with Intellectual Disabilities, Scandinavian Journal of Disability Research, 8(2 - 3), 120-131

McConnell, D B, Llewellyn, G M, Ferronato, L A 2006, Context-contingent decision-making in child protection practice, International Journal of Social Welfare, 15(3), 230-239

Poulos, A E, Balandin, S A, Llewellyn, G M, Dew, A H 2006, Women with cerebral palsy and breast cancer screening by mammography, Archives of Physical Medicine and Rehabilitation, 87(2), 304-307

Sharp, N, Bye, R, Llewellyn, G M, Cusick, A 2006, Fitting back in: Adolescents returning to school after severe acquired brain injury, Disability and Rehabilitation, 28(12), 767-778

McConnell, D B, Llewellyn, G M, Matthews, J, Hindmarsh, G J, Mildon, R, Wade, C 2006, Healthy Start: a national strategy for children of parents with learning difficulties., Developing Practice (online), 2006(16), 34-42

Books and book chapters

Llewellyn, G., Traustadottir, R., McConnell, D. & Sigurjonsdottir, H.B. (2010). Parents with Intellectual Disabilities: Past, present and futures. West Sussex: Wiley-Blackwell. ISBN 978-0470772942

Emerson, E., Vick, B., Graham, H., Hatton, C., Llewellyn, G., Madden, R., Rechel, B. & Robertson, J. (2 Feb 2012). Disablement and health. In N. Watson, C. Thomas & A. Roulestone (Eds), The Routledge Companion to Disability Studies. London: Routledge.

Beltran, R.O., Silove, D. & Llewellyn, G. (2011). Enduring personality change after catastrophic experience: a review. In A.M. Columbus (Eds), Advances in Psychology Research; Volume 81. (pp. 75-106). New York: Nova Science Publishers Inc.

Honey, A., Emerson, E., Llewellyn, G. & Kariuki, M. (2011). Mental health and disability. In J.H. Stone & M. Blouin (Eds.), International Encyclopedia of Rehabilitation. Available online http://cirrie.buffalo.edu/encyclopedia/en/article/305/

Llewellyn, G. (2011). Ecocultural theory: Everyday cultures of children. In S.J Lane & A.C Bundy (Eds), Kids can be kids: A childhood occupations approach. (pp. 180-193). Philadelphia: F.A. Davis.

Llewellyn, G., Traustadottir, R., McConnell, D. & Sigurjonsdottir, H.B. (2010). Introduction. In G. Llewellyn, R. Traustadottir, D. McConnell & H.B Sigurjonsdottir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp.1-14). West Sussex: Wiley-Blackwell.

Llewellyn, G. & McConnell, D. (2010). Looking back on their own upbringing. In G. Llewellyn, R. Traustadottir, D. McConnell & H.B. Sigurjonsdottir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp.33-47). West Sussex: Wiley-Blackwell. ISBN 978-0470772942

Llewellyn, G. & Gustavsson, M. (2010). Understanding community in the lives of parents with intellectual disabilities. In G. Llewellyn, R. Traustadottir, D. McConnell, H.B. Sigurjonsdottir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp.79-94). West Sussex: Wiley-Blackwell. ISBN 978-0470772942

McConnell, D & Llewellyn, G. (2010). Supporting mothers’ community participation. In G. Llewellyn, R. Traustadottir, D. McConnell & H.B. Sigurjonsdottir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp.205-223). West Sussex: Wiley-Blackwell. ISBN 978-0470772942

McConnell, D., Llewellyn, G., Traustadottir, R., & Sigurjonsdottir, H.B. (2010). Conclusion: Taking stock and looking to the future. In G. Llewellyn, R. Traustadottir, D. McConnell & H.B. Sigurjonsdottir, (Eds.), Parents with Intellectual Disabilities: Past, present and futures (pp.241-262). West Sussex: Wiley-Blackwell.ISBN 978-0470772942

Llewellyn, G. & McConnell, D. (2010). You have to prove yourself all the time: people with learning disabilities as parents. In G. Grant, P. Ramcharan, M. Flynn & M. Richardson, (Eds.), (2nd ed.), Learning Disability: A life cycle approach (pp.311-328). Berkshire: Open University Press.

Honey, A., Llewellyn, G., Schneider, J., & Wedgwood, N. (2009). Approaching adulthood with a chronic health condition: Professionals’ and young people’s perspectives. In D. Bennett, S. Towns, E. Elliott, & J. Merrick (Eds.), Challenges in adolescent health: An Australian perspective. (pp.177-188). New York: Nova Science Publishers Inc.