Dr Hayley Smithers-Sheedy

NHMRC Early Career Fellow
Children's Hospital at Westmead Clinical School


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Biographical details

Dr Hayley Smithers-Sheedy is an NHMRC Early Career Fellow at the Sydney Medical School, The University of Sydney and Postdoctoral Research Fellow in Epidemiology, Australasian Cerebral Palsy Clinical Trials Network. She has expertise in epidemiology, congenital infection, neurodevelopmental disability and consumer involvement in research with >25 publications and >$2M in funding. She plays a key role in her work with both the Australian Cerebral Palsy Register, the Australasian congenital Cytomegalovirus Register and is a member of the International Cerebral Palsy Genomics Consortium. Current projects include:
• Development of a continuing professional development e-learning module for midwives focused on opportunities for the prevention of cytomegalovirus infection during pregnancy
• Establishment of the Australasian congenital Cytomegalovirus Register
• Data linkage study: congenital cytomegalovirus hospital admissions and mortality, NSW
• Understanding Emotions and Cerebral Palsy
• A pilot study of the PEERS® Social Skills Intervention in Young Adults with Developmental Disability and Social Skills Difficulties in Australia
• Research focused on opportunities for prevention of cerebral palsy and improved outcomes in Australian Aboriginal and Torres Strait Islander children through the examination of sociodemographic and clinical profiles (in partnership with the ACPR Group)
• Multiple investigations considering temporal trends in rates of cerebral palsy by gestational age and timing of injury (in partnership with the ACPR Group)
• Investigator on the Sri Lankan Cerebral Palsy Register and the Bangladesh Cerebral Palsy Register

Current research students

Project title Research student
Oral health priorities for people with Cerebral Palsy Karen LANSDOWN
Investigating the aetiological risk factors and opportunities for prevention of post-neonatally acquired cerebral palsy Emma WAIGHT

Selected grants

2018

  • Congenital cytomegalovirus: understanding the long-term sequelae and identifying opportunities for secondary prevention; Smithers-Sheedy H; National Health and Medical Research Council (NHMRC)/Early Career Fellowships.

2013

  • What is the profile and burden of cerebral palsy due to congenital CMV infection in Australia- population based molecular testing for CMV on stored newborn screening cards from children on the NSW CP Register; Jones C, Smithers-Sheedy H; Cerebral Palsy Alliance Research Foundation/Research Support.

2012

  • What is the profile and burden of cerebral palsy (CP) due to congenital cytomegalovirus (CMV) infection in Australia - population based molecular testing for CMV on stored newborn screening cards from children on Australian National CP register; Jones C, Badawi N, Smithers-Sheedy H, Kesson A; Rebecca L Cooper Medical Research Foundation/Equipment Grant.

Selected publications

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Journals

  • Galea, C., McIntyre, S., Smithers-Sheedy, H., Reid, S., Gibson, C., deLacy, M., Watson, L., Goldsmith, S., Badawi, N., Blair, E. (2019). Cerebral palsy trends in Australia (1995-2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. [More Information]
  • Jahan, I., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., Badawi, N., Khandaker, G. (2019). What makes children with cerebral palsy vulnerable to malnutrition? Findings from the Bangladesh cerebral palsy register (BCPR). Disability and Rehabilitation, 41(19), 2247-2254. [More Information]
  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Akhter, R., Hassan, N., Martin, E., Muhit, M., Haque, M., Smithers-Sheedy, H., Jones, C., Badawi, N., Khandaker, G. (2017). Risk factors for dental caries among children with cerebral palsy in a low-resource setting. Developmental Medicine and Child Neurology, 59(5), 538-543. [More Information]
  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • deLacy, M., Louca, C., Smithers-Sheedy, H., McIntyre, S. (2016). Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort. Developmental Medicine and Child Neurology, 58(Suppl. 2), 60-65. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Smithers-Sheedy, H. (2016). Declining prevalence of cerebral palsy in Europe: Good news? Developmental Medicine and Child Neurology, 58(1), 14-14. [More Information]
  • Blair, E., Smithers-Sheedy, H. (2016). Strabismus, a preventable barrier to social participation: A short report. Developmental Medicine and Child Neurology, 58(Suppl. 2), 57-59. [More Information]
  • Khandaker, G., Smithers-Sheedy, H., Islam, J., Alam, M., Jung, J., Novak, I., Booy, R., Jones, C., Badawi, N., Muhit, M. (2015). Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurology, 15(1), 1-7. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Khandaker, G., Menzies, R., Jones, C. (2015). Cytomegalovirus-related childhood mortality in Australia 1999-2011. Journal of Paediatrics and Child Health, 51(9), 901-905. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., McIntyre, S., Jones, C. (2014). Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study. Developmental Medicine and Child Neurology, 56(9), 846-852. [More Information]
  • Khandaker, G., Raynes-Greenow, C., Smithers-Sheedy, H., Booy, R., Menzies, R., Jones, C. (2014). Mortality from Herpes Simplex Virus (HSV) Infection in Australian Children, 1999-2011 Using National Datasets. Infectious Disorders - Drug Targets, 14(2), 89-92. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Reid, S., Meehan, E., Gibson, C., Dale, R., Jones, C. (2014). Neuroimaging Findings in a Series of Children with Cerebral Palsy and Congenital Cytomegalovirus Infection. Infectious Disorders - Drug Targets, 14(3), 185-190. [More Information]
  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]
  • Novak, I., Smithers-Sheedy, H., Morgan, C. (2012). Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study. Disability and Rehabilitation: Assistive Technology, 7(1), 30-36. [More Information]

2019

  • Galea, C., McIntyre, S., Smithers-Sheedy, H., Reid, S., Gibson, C., deLacy, M., Watson, L., Goldsmith, S., Badawi, N., Blair, E. (2019). Cerebral palsy trends in Australia (1995-2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. [More Information]
  • Jahan, I., Muhit, M., Karim, T., Smithers-Sheedy, H., Novak, I., Jones, C., Badawi, N., Khandaker, G. (2019). What makes children with cerebral palsy vulnerable to malnutrition? Findings from the Bangladesh cerebral palsy register (BCPR). Disability and Rehabilitation, 41(19), 2247-2254. [More Information]

2018

  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]

2017

  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Akhter, R., Hassan, N., Martin, E., Muhit, M., Haque, M., Smithers-Sheedy, H., Jones, C., Badawi, N., Khandaker, G. (2017). Risk factors for dental caries among children with cerebral palsy in a low-resource setting. Developmental Medicine and Child Neurology, 59(5), 538-543. [More Information]

2016

  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • deLacy, M., Louca, C., Smithers-Sheedy, H., McIntyre, S. (2016). Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohort. Developmental Medicine and Child Neurology, 58(Suppl. 2), 60-65. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Smithers-Sheedy, H. (2016). Declining prevalence of cerebral palsy in Europe: Good news? Developmental Medicine and Child Neurology, 58(1), 14-14. [More Information]
  • Blair, E., Smithers-Sheedy, H. (2016). Strabismus, a preventable barrier to social participation: A short report. Developmental Medicine and Child Neurology, 58(Suppl. 2), 57-59. [More Information]

2015

  • Khandaker, G., Smithers-Sheedy, H., Islam, J., Alam, M., Jung, J., Novak, I., Booy, R., Jones, C., Badawi, N., Muhit, M. (2015). Bangladesh Cerebral Palsy Register (BCPR): A pilot study to develop a national cerebral palsy (CP) register with surveillance of children for CP. BMC Neurology, 15(1), 1-7. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Khandaker, G., Menzies, R., Jones, C. (2015). Cytomegalovirus-related childhood mortality in Australia 1999-2011. Journal of Paediatrics and Child Health, 51(9), 901-905. [More Information]

2014

  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., McIntyre, S., Jones, C. (2014). Congenital cytomegalovirus is associated with severe forms of cerebral palsy and female sex in a retrospective population-based study. Developmental Medicine and Child Neurology, 56(9), 846-852. [More Information]
  • Khandaker, G., Raynes-Greenow, C., Smithers-Sheedy, H., Booy, R., Menzies, R., Jones, C. (2014). Mortality from Herpes Simplex Virus (HSV) Infection in Australian Children, 1999-2011 Using National Datasets. Infectious Disorders - Drug Targets, 14(2), 89-92. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Reid, S., Meehan, E., Gibson, C., Dale, R., Jones, C. (2014). Neuroimaging Findings in a Series of Children with Cerebral Palsy and Congenital Cytomegalovirus Infection. Infectious Disorders - Drug Targets, 14(3), 185-190. [More Information]
  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]

2012

  • Novak, I., Smithers-Sheedy, H., Morgan, C. (2012). Predicting equipment needs of children with cerebral palsy using the Gross Motor Function Classification System: A cross-sectional study. Disability and Rehabilitation: Assistive Technology, 7(1), 30-36. [More Information]

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