Professor Kirsten McCaffery

BSc (Hons), PhD
Professorial Research Fellow, School of Public Health, Sydney Medical School
NHMRC Career Development Fellow
Deputy Director, Public Health Section, Centre for Medical Psychology and Evidence based Decision Making (CeMPED)

Telephone +61 2 9351 7220
Fax +61 2 9351 7420

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Biographical details

Professor Kirsten McCaffery is a behavioural scientist at the School of Public Health at the University of Sydney Medical School. She has a national and international reputation for her psychosocial research in the fields of Screening, Shared Decision Making and Health Literacy. As a health psychologist, Professor McCaffery’s research covers three themes: (a) investigating the psychosocial impact of screening and testing; (b) health literacy research; and (c) shared health decision-making. “I am interested in understanding the psychological harms associated with screening programs”, she says. “Consequently, I am also interested in patient communication and the process of shared health decision-making, which in turn has paved the way for my research on health communication in people with low health literacy”. Professor McCaffery’s studies on the psychosocial consequences of Human Papilloma Virus (HPV) testing and vaccination have informed policy on communication relating to HPV testing and on the introduction of HPV vaccination in the UK and Australia. She developed the first decision aid relating to bowel cancer screening, for adults with low education and literacy, which increased informed choice in bowel cancer screening. Additionally, she has developed the first patient decision aid that includes information on overdetection, to support informed choice in breast cancer screening (Lancet 2015). Professor McCaffery is academic lead of the International Health Literacy Research Network and leads the Health Literacy Node at the Charles Perkins Centre at the University of Sydney, and the Psychosocial Research Group of the Screening and Diagnostic Test Evaluation Program (STEP) at the Sydney School of Public Health.

Research interests

Professor McCaffery leads a team of researchers in the field of behavioural science studying the psychosocial impact of screening and testing programs, research around patient communication and shared health-decision making, and in the field of health literacy. As leader of the Psychosocial Research Group of STEP, she is continuing research projects relating to the development and evaluation of decision aids supporting informed choice for screening programs.

She is a principal investigator on a large ARC Grant-funded study evaluating the impact of a health literacy intervention delivered within literacy and numeracy programs at TAFEs in NSW. The study will assess whether the program could help increase rates of health literacy and shared decision making while improving students’ literacy and numeracy. Additionally, as leader of the International Health Literacy Network comprising >200 members worldwide, Professor McCaffery is involved in a number of initiatives to promote collaborations in health literacy research in Australia and internationally.

Professor McCaffery’s more recent research focuses on the areas of overdiagnosis, overtreatment and low value health care and the communication issues around these. Current projects include assessment of communication around thyroid cancer, breast cancer screening, and relating to appropriate prescribing of medications for older adults in an effort to address the issue of polypharmacy in the elderly population.

Selected grants

2014

  • Informing women about over-diagnosis in mammography screening: a randomised trial; McCaffery K, Barratt A, Jansen J, Houssami N, Dhillon H, McGeechan K; National Health and Medical Research Council (NHMRC)/Project Grants.
  • The Breathing for Life Trial: a randomised trial of fractional exhaled nitric oxide based management of asthma during pregnancy and its impact on perinatal outcomes and infant and childhood respiratory health; Murphy V, Gibson P, Hensley M, Mattes J, Giles W, Peek M, Bisits A, Callaway L, McCaffery K, Barrett H; National Health and Medical Research Council (NHMRC)/Project Grants.
  • A randomised trial to investigate whether heart age can improve CVD prevention; McCaffery K, Bonner C, Doust J, Teixeira-Pinto A; Heart Foundation of Australia/Vanguard Grant.

2013

  • Development and evaluation of an Australian adult health literacy program for socially disadvantaged adults attending TAFE; McCaffery K, Smith S, Dhillon H, Hayen A, Shepherd H, Comings J, Luxford K, Nutbeam D, Wright C, Wedyan M; Australian Research Council (ARC)/Linkage Projects (LP).

2012

  • Psychosocial issues in screening, testing and monitoring; McCaffery K; National Health and Medical Research Council (NHMRC)/Career Development Fellowships.
  • Analysis of lifestyle risk factor management for the Heart Foundation; Bonner C, McCaffery K, Jansen J, Dhillon H, McKinn S, Irwig L; Heart Foundation of Australia/Research Support.
  • WUN Health Literacy Collaboration: the role of health literacy in addressing the social determinants of non-communicable disease.; McCaffery K, Hickson W, Coetzee M, Nutbeam D, Adams J, Dixon R, Roderick P, Fuller S, Johnson O, Awakame J, Smith S; DVC International/IPDF Grant.
  • Randomised Controlled Evaluation of a Complex Intervention to Promote Uptake of School-based HPV Vaccination; Skinner R, Cooper S, McCaffery K, Zimet G, McGeechan K, Whyte P, Regan D, Marshall H, Stoney T; National Health and Medical Research Council (NHMRC)/Project Grants.
  • WUN Global Health Literacy Network: the role of health literacy in addressing the social determiniants of NCDs; Smith S, McCaffery K, Nutbeam D, Dixon R, Fuller S, Coetzee M, Adebajo A, Bhalotra S, Springett J, Johnson O; Worldwide Universities Network/Research Support.

2011

  • Adolescents & Parents Shared Decision-Making about HPV Vaccination; McCaffery K, Cooper S, Skinner R; BUPA Foundation (Australia) Limited/Expression of Interest Grants Program.

2010

  • FUSION - Investigating the doctor-patient-family triad to gain an understanding of shared decision making; Juraskova I, Butow P, Tattersall M, Charles C, Lam W, McCaffery K, Shepherd H, Jansen J; Foundation for Informed Medical Decision Making/Research Support.
  • LNK: ARC Linkage Project LP100200007 Optimising intersectorial collaboration between the health and; Kelly A, McCaffery K.

2009

  • Evaluation of 2 FIMDM Programs in Australia; Barratt A, McCaffery K, Shepherd H; Foundation for Informed Medical Decision Making/Research Support.

2008

  • A randomised trial of a web-based toolkit for applying evidence in the general practice cervical cancer prevention visit; Trevena L, McCaffery K, Barratt A, Leask J, Brotherton J, Dobbins T; Cancer Council New South Wales/Research Project Grants.

2007

  • How do lay people understand the risk of developing cancer A qualitative study using grounded theory procedures.; Carter S, Ankeny R, Kerridge I, Komesaroff P, Hu W, McCaffery K, Jordens C, Hooker C, Thomas S; National Health and Medical Research Council (NHMRC)/Project Grants.
  • A randomised controlled trial of a decision aid for bowel cancer screening for adults with low education and literacy; McCaffery K, Trevena L, Barratt A, Simpson J, Nutbeam D; National Health and Medical Research Council (NHMRC)/Project Grants.

2006

  • A randomised controlled trial of a meta-decision aid for evidence based; Trevena L, Barratt A, Dobbins T, McCaffery K; Cancer Council New South Wales/Research Project Grants.
  • Developing And Evaluating Enhanced Decision Aids For Consumers For Informed Participation In Cancer Screening Programs; McCaffery K; National Health and Medical Research Council (NHMRC)/Established Career Fellowships.

2005

  • Development and evaluation of a literacy-sensitive decision aid for adults eligible for colorectal c; McCaffery K, Trevena L, Nutbeam D, Barratt A, Butow P, Simpson J; University of Sydney/Cancer Research Fund.

2004

  • Development and evaluation of a literacy sensitive decision aid for colorectal cancer screening; Butow P, Simpson J, Nutbeam D, McCaffery K, Trevena L, Barratt A; Sydney Cancer Research Fund /Research Grant.

2003

  • Psychosocial consequences of HPV screening. Examination of women with persistent HPV infection; McCaffery K, Wardle J, Waller J, Nazroo J, Kitchener H; Cancer Research UK /Project Grant.
  • A randomised controlled trial of a decision aid for the management of pain in labour and childbirth; Roberts C, Trevena L, Raynes-Greenow C, McCaffery K, Peat B; National Health and Medical Research Council (NHMRC)/Project Grants.
  • HPV DNA testing versus conventional management for women with minor atypia on Pap smear: examination of womens preferences, decision-making and psychosocial ou; McCaffery K; DVC Research/Research and Development Scheme: Research and Development (R&D).
  • Department of Health & Ageing - Development of a decision tool for women considering HRT; Trevena L, Armstrong B, Barratt A, McCaffery K, O'Connor A, Callan P; Commonwealth Department of Health and Aged Care/BLO Project.

2002

  • Womens understanding of cervical screening and human papillomavirus (HPV); McCaffery K; National Health and Medical Research Council (NHMRC)/Early Career Fellowships.

Selected publications

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Book Chapters

  • Wolf, M., Cooper Bailey, S., McCaffery, K. (2010). Health Literacy: A Brief Introduction. In A. Steptoe (Eds.), Handbook of Behavioural Medicine, (pp. 355-366). New York, NY, USA: Springer Science+Business Media.
  • Michie, S., McCaffery, K., Heneghan, C. (2008). Monitoring as a learning and motivational tool. In P Glasziou, L Irwig and J K Aronson (Eds.), Evidence-based Medical Monitoring:From Principles to Practice, (pp. 123-139). Oxford: Blackwell Publishers.
  • McCaffery, K., Michie, S. (2008). Monitoring from the patient's perspectives: social and psychological implications. In P Glasziou, L Irwig and J K Aronson (Eds.), Evidence-based Medical Monitoring:From Principles to Practice, (pp. 140-157). Oxford: Blackwell Publishers.
  • Trevena, L., Barratt, A., McCaffery, K. (2008). Using decision aids to involve clients in clinical decision-making. In Joy Higgs, Mark A Jones, Stephen Loftus, Nicole Christensen (Eds.), Clinical Reasoning in the Health Professions, (pp. 367-376). Oxford, United Kingdom: Butterworth Heinemann.

Journals

  • Davis, E., McCaffery, K., Mullan, B., Juraskova, I. (2015). An exploration of decision aid effectiveness: the impact of promoting affective vs. deliberative processing on a health-related decision. Health Expectations, in press. [More Information]
  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., McCaffery, K. (2015). How Do General Practitioners and Patients Make Decisions About Cardiovascular Disease Risk? Health Psychology, 34(3), 253-261. [More Information]
  • Morony, S., Flynn, M., McCaffery, K., Jansen, J., Webster, A. (2015). Readability of Written Materials for CKD Patients: A Systematic Review. American Journal of Kidney Diseases, 65(6), 842-850. [More Information]
  • Bell, K., McCaffery, K., Irwig, L. (2015). Screening tests for gonorrhoea should first do no harm. Medical Journal of Australia, 202(6), 281-282. [More Information]
  • Sublette, V., Smith, S., George, J., McCaffery, K., Douglas, M. (2015). The Hepatitis C treatment experience: Patients' perceptions of the facilitators of and barriers to uptake, adherence and completion. Psychology & Health, 30(8), 987-1004. [More Information]
  • Hersch, J., Barratt, A., Jansen, J., Irwig, L., McGeechan, K., Jacklyn, G., Thornton, H., Dhillon, H., Houssami, N., McCaffery, K. (2015). Use of a decision aid including information on overdetection to support informed choice about breast cancer screening: A randomised controlled trial. The Lancet, 385(9978), 1642-1652. [More Information]
  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., McCaffery, K. (2014). Communicating cardiovascular disease risk: an interview study of General Practitioners' use of absolute risk within tailored communication strategies. BMC Family Practice, 15(1), 1-8. [More Information]
  • Smith, S., Simpson, J., Trevena, L., McCaffery, K. (2014). Factors associated with informed decisions and participation in bowel cancer screening among adults with lower education and literacy. Medical Decision Making, 34(6), 756-772. [More Information]
  • Jansen, J., Bonner, C., McKinn, S., Irwig, L., Glasziou, P., Doust, J., Teixeira-Pinto, A., Hayden, A., Turner, R., McCaffery, K. (2014). General practitioners' use of absolute risk versus individual risk factors in cardiovascular disease prevention: an experimental study. BMJ Open, 4(5), 1-7. [More Information]
  • Bonner, C., Jansen, J., Newell, B., Irwig, L., Glasziou, P., Doust, J., Dhillon, H., McCaffery, K. (2014). I Don't Believe It, But I'd Better Do Something About It: Patient Experiences of Online Heart Age Risk Calculators. Journal of Medical Internet Research, 16(5), 1-17. [More Information]
  • Smith, S., Kearney, P., Trevena, L., Barratt, A., Nutbeam, D., McCaffery, K. (2014). Informed choice in bowel cancer screening: A qualitative study to explore how adults with lower education use decision aids. Health Expectations, 17(4), 551-522. [More Information]
  • Dodd, R., McCaffery, K., Marlow, L., Ostini, R., Zimet, G., Waller, J. (2014). Knowledge of human papillomavirus (HPV) testing in the USA, the UK and Australia: an international survey. Sexually Transmitted Infections, 90(3), 201-207. [More Information]
  • Hersch, J., Jansen, J., Barratt, A., Irwig, L., Houssami, N., Jacklyn, G., Thornton, H., Dhillon, H., McCaffery, K. (2014). Overdetection in breast cancer screening: development and preliminary evaluation of a decision aid. BMJ Open, 4(9), 1-10. [More Information]
  • De Oliveira, G., Holl, J., McCarthy, R., Butt, Z., Nouriel, J., McCaffery, K., Wolf, M. (2014). Overestimation of mortality risk and preoperative anxiety in patients undergoing elective general surgery procedures: A propensity matched analysis. International Journal of Surgery, 12(12), 1473-1477. [More Information]
  • Turner, R., Walter, S., Macaskill, P., McCaffery, K., Irwig, L. (2014). Sample size and power when designing a randomized trial for the estimation of treatment, selection, and preference effects. Medical Decision Making, 34(6), 711-719. [More Information]
  • Hoffmann, T., Légaré, F., Simmons, M., McNamara, K., McCaffery, K., Trevena, L., Hudson, B., Glasziou, P., Del Mar, C. (2014). Shared decision making: what do clinicians need to know and why should they bother? Medical Journal of Australia, 201(1), 35-39. [More Information]
  • Ahmed, R., Raynor, D., McCaffery, K., Aslani, P. (2014). The design and user-testing of a question prompt list for attention-deficit/hyperactivity disorder. BMJ Open, 4(12), 1-11. [More Information]
  • Hersch, J., Barratt, A., Jansen, J., Houssami, N., Irwig, L., Jacklyn, G., Dhillon, H., Thornton, H., McGeechan, K., Howard, K., McCaffery, K. (2014). The effect of information about overdetection of breast cancer on women's decision-making about mammography screening: study protocol for a randomised controlled trial. BMJ Open, 4(5), 1-10. [More Information]
  • Laidsaar-Powell, R., McCaffery, K., Mather, T., Juraskova, I. (2014). Vaccination Decision-Making and HPV Knowledge: How Informed and Engaged Are Young Adult HPV Vaccine Recipients in Australia? Journal of Vaccines, 2014, 1-9. [More Information]
  • McCaffery, K., Holmes-Rovner, M., Smith, S., Rovner, D., Nutbeam, D., Clayman, M., Kelly-Blake, K., Wolf, M., Sheridan, S. (2013). Addressing health literacy in patient decision aids. BMC Medical Informatics and Decision Making, 13(Suppl. 2), 1-14. [More Information]
  • Lowe, W., Ballinger, C., Protheroe, J., Lueddeke, J., Nutbeam, D., Armstrong, R., Falzon, L., Edwards, C., Russell, C., McCaffery, K., et al (2013). Effectiveness of musculoskeletal education interventions in people with low literacy levels: a systematic review. Arthritis Care and Research, 65(12), 1976-1985. [More Information]
  • Ahmed, R., McCaffery, K., Aslani, P. (2013). Factors Influencing Parental Decision Making About Stimulant Treatment for Attention-Deficit/Hyperactivity Disorder. Journal of Child and Adolescent Psychopharmacology, 23(3), 163-178. [More Information]
  • Rychetnik, L., McCaffery, K., Morton, R., Thompson, J., Menzies, S., Irwig, L. (2013). Follow-Up of Early Stage Melanoma: Specialist Clinician Perspectives on the Functions of Follow-Up and Implications for Extending Follow-Up Intervals. Journal of Surgical Oncology, 107(5), 463-468. [More Information]
  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., Hayen, A., McCaffery, K. (2013). General practitioners' use of different cardiovascular risk assessment strategies: a qualitative study. Medical Journal of Australia, 199(7), 485-489. [More Information]
  • Smith, S., Nutbeam, D., McCaffery, K. (2013). Insights into the concept and measurement of health literacy from a study of shared decision-making in a low literacy population. Journal of Health Psychology, 18(8), 1011-1022. [More Information]
  • Marlow, L., Zimet, G., McCaffery, K., Ostini, R., Waller, J. (2013). Knowledge of human papillomavirus (HPV) and HPV vaccination: An international comparison. Vaccine, 31(5), 763-769. [More Information]
  • Morton, R., Rychetnik, L., McCaffery, K., Thompson, J., Irwig, L. (2013). Patients' perspectives of long-term follow-up for localised cutaneous melanoma. European Journal of Surgical Oncology, 39, 297-303. [More Information]
  • Laidsaar-Powell, R., Butow, P., Bu, S., Charles, C., Gafni, A., Lam, W., Jansen, J., McCaffery, K., Shepherd, H., Tattersall, M., Juraskova, I. (2013). Physician-patient-companion communication and decision-making: A systematic review of triadic medical consultations. Patient Education and Counseling, 91(1), 3-13. [More Information]
  • Bui, L., Mullan, B., McCaffery, K. (2013). Protection motivation theory and physical activity in the general Population: A systematic literature review. Psychology, Health and Medicine, 18(5), 522-542. [More Information]
  • Sublette, V., Douglas, M., McCaffery, K., George, J., Nicholson Perry, K. (2013). Psychological, lifestyle and social predictors of hepatitis c treatment response: a systematic review. Liver International, 33(6), 894-903. [More Information]
  • Rychetnik, L., McCaffery, K., Morton, R., Irwig, L. (2013). Psychosocial aspects of post-treatment follow-up for stage I/II melanoma: a systematic review of the literature. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, 22(4), 721-736. [More Information]
  • Powell, H., McCaffery, K., Murphy, V., Hensley, M., Clifton, V., Giles, W., Gibson, P. (2013). Psychosocial variables are related to future exacerbation risk and perinatal outcomes in pregnant women with asthma. Journal of Asthma, 50(4), 383-389. [More Information]
  • Vis, J., van Zwieten, M., Bossuyt, P., Moons, K., Dijkgraaf, M., McCaffery, K., Mol, B., Opmeer, B. (2013). The influence of medical testing on patients' health: an overview from the gynecologists' perspective. BMC Medical Informatics and Decision Making, 13(1), 1-7. [More Information]
  • Machalek, D., Grulich, A., Hillman, R., Jin, F., Templeton, D., Tabrizi, S., Garland, S., Prestage, G., McCaffery, K., Howard, K., et al (2013). The Study of the Prevention of Anal Cancer (SPANC): design and methods of a three-year prospective cohort study. BMC Public Health, 13(1), 1-13. [More Information]
  • Waller, J., Ostini, R., Marlow, L., McCaffery, K., Zimet, G. (2013). Validation of a measure of knowledge about human papillomavirus (HPV) using item response theory and classical test theory. Preventive Medicine, 56(1), 35-40. [More Information]
  • Dieng, M., Trevena, L., Turner, R., Wadolowski, M., McCaffery, K. (2013). What Australian women want and when they want it: cervical screening testing preferences, decisionmaking styles and information needs. Health Expectations, 16(2), 177-188. [More Information]
  • Hersch, J., Jansen, J., Barratt, A., Irwig, L., Houssami, N., Howard, K., Dhillon, H., McCaffery, K. (2013). Women's views on overdiagnosis in breast cancer screening: a qualitative study. BMJ, 346(7892), 1-13. [More Information]
  • Smith, S., Barratt, A., Trevena, L., Simpson, J., Jansen, J., McCaffery, K. (2012). A theoretical framework for measuring knowledge in screening decision aid trials. Patient Education and Counseling, 89(2), 330-336. [More Information]
  • Ferrante di Ruffano, L., Hyde, C., McCaffery, K., Bossuyt, P., Deeks, J. (2012). Assessing the value of diagnostic tests: a framework for designing and evaluating trials. BMJ, 344(7847), 1-9. [More Information]
  • Mather, T., McCaffery, K., Juraskova, I. (2012). Does HPV vaccination affect women's attitudes to cervical cancer screening and safe sexual behaviour? Vaccine, 30(21), 3196-3201. [More Information]
  • Juraskova, I., O'Brien, M., Mullan, B., Bari, R., Laidsaar-Powell, R., McCaffery, K. (2012). HPV Vaccination and the Effect of Information Framing on Intentions and Behaviour: An Application of the Theory of Planned Behaviour and Moral Norm. International Journal of Behavioral Medicine, 19(4), 518-525. [More Information]
  • Jansen, J., McCaffery, K., Hayen, A., Ma, D., Reddel, H. (2012). Impact of graphic format on perception of change in biological data: implications for health monitoring in conditions such as asthma. Primary Care Respiratory Journal, 21(1), 94-100. [More Information]
  • Walter, S., Turner, R., Macaskill, P., McCaffery, K., Irwig, L. (2012). Optimal allocation of participants for the estimation of selection, preference and treatment effects in the two-stage randomised trial design. Statistics in Medicine, 31(13), 1307-1322. [More Information]
  • Rychetnik, L., Morton, R., McCaffery, K., Thompson, J., Menzies, S., Irwig, L. (2012). Shared care in the follow-up of early-stage melanoma: a qualitative study of Australian melanoma clinicians' perspectives and models of care. BMC Health Services Research, 12, 1-9. [More Information]
  • Pasquali, S., Spillane, A., de Wilt, J., McCaffery, K., Rossi, C., Quinn, M., Saw, R., Shannon, K., Stretch, J., Thompson, J. (2012). Surgeons' Opinions on Lymphadenectomy in Melanoma Patients with Positive Sentinel Nodes: A Worldwide Web-Based Survey. Annals of Surgical Oncology, 19(13), 4322-4329. [More Information]
  • Longman, T., Turner, R., King, M., McCaffery, K. (2012). The effects of communicating uncertainty in quantitative health risk estimates. Patient Education and Counseling, 89(2), 252-259. [More Information]
  • McCaffery, K., Dixon, A., Hayen, A., Jansen, J., Smith, S., Simpson, J. (2012). The Influence of Graphic Display Format on the Interpretations of Quantitative Risk Information among Adults with Lower Education and Literacy: A Randomized Experimental Study. Medical Decision Making, 32(4), 532-544. [More Information]
  • Bateson, D., Weisberg, E., McCaffery, K., Luscombe, G. (2012). When online becomes offline: attitudes to safer sex practices in older and younger women using an Australian internet dating service. Sexual Health, 9(2), 152-159. [More Information]
  • McCaffery, K., Turner, R., Macaskill, P., Walter, S., Chan, S., Irwig, L. (2011). Determining the Impact of Informed Choice : Separating Treatment Effects from the Effects of Choice and Selection in Randomized Trials. Medical Decision Making, 31(2), 229-236. [More Information]
  • Hersch, J., Jansen, J., Irwig, L., Barratt, A., Thornton, H., Howard, K., McCaffery, K. (2011). How do we achieve informed choice for women considering breast screening? Preventive Medicine, 53(3), 144-146. [More Information]
  • Juraskova, I., Bari, R., O’Brien, M., McCaffery, K. (2011). HPV vaccine promotion: does Referring to Both Cervical Cancer and Genital Warts Affect Intended and Actual Vaccination Behavior? Women's Health Issues, 21(1), 71-79. [More Information]
  • Powell, H., Murphy, V., Taylor, D., Hensley, M., McCaffery, K., Giles, W., Clifton, V., Gibson, P. (2011). Management of asthma in pregnancy guided by measurement of fraction of exhaled nitric oxide: a double-blind, randomised controlled trial. The Lancet, 378(9795), 983-990. [More Information]
  • Powell, H., McCaffery, K., Murphy, V., Hensley, M., Clifton, V., Giles, W., Gibson, P. (2011). Psychosocial outcomes are related to asthma control and quality of life in pregnant women with asthma. Journal of Asthma, 48(10), 1032-1040. [More Information]
  • Hersch, J., Jansen, J., Irwig, L., Barratt, A., Thornton, H., Howard, K., McCaffery, K. (2011). Reply to Braillon and Nicot. Preventive Medicine, 53(6), 438-438. [More Information]
  • McCaffery, K., Smith, S., Shepherd, H., Sze, M., Dhillon, H., Jansen, J., Juraskova, I., Butow, P., Trevena, L., Carey, K., Tattersall, M., Barratt, A. (2011). Shared decision making in Australia in 2011. German Journal for Evidence and Quality in Health Care (Zeitschrift fuer Evidenz, Fortbildung und Qualitaet im Gesundheitswesen), 105(4), 234-239. [More Information]
  • Carter, S., Entwistle, V., McCaffery, K., Rychetnik, L. (2011). Shared Health Governance: The Potential Danger of Oppressive "Healthism". The American Journal of Bioethics, 11(7), 57-59. [More Information]
  • Bernard, D., Cooper, S., McCaffery, K., Scott, C., Skinner, R. (2011). The domino effect: adolescent girls' response to human papillomavirus vaccination. Medical Journal of Australia, 194(6), 297-300. [More Information]
  • Deutekom, M., Vansenne, F., McCaffery, K., Essink-Bot, M., Stronks, K., Bossuyt, P. (2011). The effects of screening on health behaviour: a summary of the results of randomized controlled trials. Journal of Public Health, 33(1), 71-79. [More Information]
  • Cooper, S., Bernard, D., McCaffery, K., Brotherton, J., Skinner, R. (2010). "I just signed": Factors influencing decision-making for school-based HPV vaccination of adolescent girls. Health Psychology, 29(6), 618-625. [More Information]
  • Cooper, S., Bernard, D., McCaffery, K., Brotherton, J., Garland, S., Skinner, R. (2010). "Is cancer contagious?": Australian adolescent girls and their parents: making the most of limited information about HPV and HPV vaccination. Vaccine, 28(19), 3398-3408. [More Information]
  • Cooper, S., Bernard, D., McCaffery, K., Skinner, R. (2010). 'It's a logistical nightmare!' Recommendations for optimising human papillomavirus school-based vaccination experience. Sexual Health, 7(3), 271-278. [More Information]
  • Smith, S., Trevena, L., Simpson, J., Barratt, A., Nutbeam, D., McCaffery, K. (2010). A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial. BMJ: British Medical Journal, 341(2010), 1-13. [More Information]
  • Brotherton, J., Leask, J., Jackson, C., McCaffery, K., Trevena, L. (2010). National survey of general practitioners' experience of delivering the National Human Papillomavirus Vaccination Program. Sexual Health, 7(3), 291-298. [More Information]
  • McCaffery, K., Jansen, J. (2010). Pre-operative MRI for women with newly diagnosed breast cancer: perspectives on clinician and patient decision-making when evidence is uncertain. The Breast, 19(1), 10-12. [More Information]
  • McCaffery, K., Irwig, L., Turner, R., Chan, S., Macaskill, P., Lewicka, M., Clarke, J., Weisberg, E., Barratt, A. (2010). Psychosocial outcomes of three triage methods for the management of borderline abnormal cervical smears: an open randomised trial. BMJ: British Medical Journal, 340, b4491-1-b4491-13. [More Information]
  • Entwistle, V., Carter, S., Cribb, A., McCaffery, K. (2010). Supporting Patient Autonomy: The Importance of Clinician-patientRelationships. Journal of General Internal Medicine, 25(7), 741-745.
  • McCaffery, K., Smith, S., Wolf, M. (2010). The Challenge of Shared Decision Making Among Patients With Lower Literacy: A Framework for Research and Development. Medical Decision Making, 30(1), 35-44. [More Information]
  • Bossuyt, P., McCaffery, K. (2009). Additional patient outcomes and pathways in evaluations of testing. Medical Decision Making, September-October(2009), E31-E38. [More Information]
  • Paasche-Orlow, M., McCaffery, K., Wolf, M. (2009). Bridging the international divide for health literacy research. Patient Education and Counseling, 75(3), 293-4. [More Information]
  • Smith, S., Trevena, L., Barratt, A., Dixon, A., Nutbeam, D., Simpson, J., McCaffery, K. (2009). Development and preliminary evaluation of a bowel cancer screening decision aid for adults with lower literacy. Patient Education and Counseling, 75(3), 358-367. [More Information]
  • Smith, S., Dixon, A., Trevena, L., Nutbeam, D., McCaffery, K. (2009). Exploring patient involvement in healthcare decision making across different education and functional health literacy groups. Social Science and Medicine, 69(12), 1805-1812. [More Information]
  • Weisberg, E., Bateson, D., McCaffery, K., Skinner, R. (2009). HPV vaccination catch up program - utilisation by young Australian women. Australian Family Physician, 38(1-2), 72-76. [More Information]
  • Leask, J., Jackson, C., Trevena, L., McCaffery, K., Brotherton, J. (2009). Implementation of the Australian HPV vaccination program for adult women: Qualitative key informant interviews. Vaccine, 27(40), 5505-5512. [More Information]
  • Entwistle, V., Carter, S., Trevena, L., Flitcroft, K., Irwig, L., McCaffery, K., Salkeld, G. (2008). Communicating about screening. BMJ: British Medical Journal, 337(7673), 789-791. [More Information]
  • Hall, B., Howard, K., McCaffery, K. (2008). Do cervical cancer screening patient information leaflets meet the HPV information needs of women. Patient Education and Counseling, 72(1), 78-87. [More Information]
  • McCaffery, K., Irwig, L., Chan, S., Macaskill, P., Barratt, A., Lewicka, M., Clarke, J., Weisberg, E. (2008). HPV testing versus repeat Pap testing for the management of a minor abnormal Pap smear: Evaluation of a decision aid to support informed choice. Patient Education and Counseling, 73(3), 473-481. [More Information]
  • Smith, S., Trevena, L., Nutbeam, D., Barratt, A., McCaffery, K. (2008). Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening: utilizing a linguistic model. Health Expectations, 11(2), 123-136. [More Information]
  • Power, E., Van Jaarsveld, C., McCaffery, K., Miles, A., Atkin, W., Wardle, J. (2008). Understanding intentions and action in colorectal cancer screening. Annals of Behavioral Medicine, 35(3), 285-294. [More Information]
  • Wallace, C., Weisberg, E., McCaffery, K. (2007). Bug breakfast in the bulletin: human papilloma virus. NSW Public Health Bulletin, 18, 97-8. [More Information]
  • Howard, K., Salkeld, G., McCaffery, K., Irwig, L. (2007). HPV triage testing or repeat Pap smear for the management of atypical squamous cells (ASCUS) on Pap smear: is there evidence of process utility? Health Economics, Published Online: Sep 3 2007, 1-13. [More Information]
  • Raynes-Greenow, C., Roberts, C., McCaffery, K., Clarke, J. (2007). Knowledge and decision-making for labour analgesia of Australian primiparous women. Midwifery, 23(2), 139-145. [More Information]
  • McCaffery, K., Irwig, L., Bossuyt, P. (2007). Patient Decision Aids to Support Clinical Decision Making: Evaluating the Decision or the Outcomes of the Decision. Medical Decision Making, 27(5), 619-625. [More Information]
  • McCaffery, K., Shepherd, H., Trevena, L., Juraskova, I., Barratt, A., Butow, P., Hazell, K., Tattersall, M. (2007). Shared decision-making in Australia. Zeitschrift fuer Aerztliche Fortbildung und Qualitaet Gesundheitswesen, 101(4), 205-211. [More Information]
  • Smith, S., McCaffery, K., Trevena, L. (2007). Using decision aids to facilitate informed health care decision making among adults with low literacy: The case of bowel cancer screening. Health Issues, (92), 28-32.
  • Waller, J., McCaffery, K., Kitchener, H., Nazroo, J., Wardle, J. (2007). Women's experiences of repeated HPV testing in the context of cervical cancer screening: A qualitative study. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, 16, 196-204. [More Information]
  • Waller, J., McCaffery, K., Forrest, S., Szarewski, A., Cadman, L., Austin, J., Wardle, J. (2006). Acceptability of unsupervised HPV self-sampling using written instructions. Journal of Medical Screening, 13(4), 208-13. [More Information]
  • Irwig, L., McCaffery, K., Salkeld, G., Bossuyt, P. (2006). Informed choice for screening: implications for evaluation. BMJ: British Medical Journal, 332(7550), 1148-1150. [More Information]
  • McCaffery, K., Waller, J., Nazroo, J., Wardle, J. (2006). Social and psychological impact of HPV testing in cervical screening: a qualitative study. Sexually Transmitted Infections, 82(2), 169-174. [More Information]
  • McCaffery, K., Irwig, L. (2005). Australian women's needs and preferences for information about human papillomavirus in cervical screening. Journal of Medical Screening, 12(3), 134-41. [More Information]
  • Waller, J., McCaffery, K., Nazroo, J., Wardle, J. (2005). Making sense of information about HPV in cervical screening: a qualitative study. British Journal of Cancer, 92(2), 265-270. [More Information]
  • McCaffery, K., Barratt, A. (2004). Assessing psychosocial/quality of life outcomes in screening: how do we do it better? Journal of Epidemiology and Community Health, 58(12), 968-970.
  • Forrest, S., McCaffery, K., Waller, J., Desai, M., Szarewski, A., Cadman, L., Wardle, J. (2004). Attitudes To Self-Sampling For HPV Among Indian, Pakistani, African-Caribbean And White British Women In Manchester, Uk. Journal of Medical Screening, 11(2), 85-88.
  • Waller, J., McCaffery, K., Wardle, J. (2004). Beliefs About The Risk Factors For Cervical Cancer In A British Population Sample. Preventive Medicine, 38(6), 745-753.
  • Waller, J., McCaffery, K., Forrest, S., Wardle, J. (2004). Human Papillomavirus And Cervical Cancer: Issues For Biobehavioral And Psychosocial Research. Annals of Behavioral Medicine, 27(1), 68-79.
  • Waller, J., McCaffery, K., Wardle, J. (2004). Measuring Cancer Knowledge: Comparing Prompted And Unprompted Recall. British Journal of Psychology, 95(2), 219-234.
  • Roberts, C., Raynes-Greenow, C., Nassar, N., Trevena, L., McCaffery, K. (2004). Protocol For A Randomised Controlled Trial Of A Decision Aid For The Management Of Pain In Labour And Childbirth [Isrctn52287533]. BMC Pregnancy and Childbirth, 4(1), 24-24.
  • McCaffery, K., Waller, J., Forrest, S., Cadman, L., Wardle, J., Szarewski, A. (2004). Testing Positive For Human Papillomavirus In Routine Cervical Screening: Examination Of Psychosocial Impact. BJOG: an international journal of obstetrics and gynaecology, 111(12), 1437-1443.
  • Barratt, A., Trevena, L., Davey, H., McCaffery, K. (2004). Use Of Decision Aids To Support Informed Choices About Screening. BMJ: British Medical Journal, 329, 507-510.
  • McCaffery, K., Forrest, S., Waller, J., Desai, M., Szarewski, A., Wardle, J. (2003). Attitudes towards HPV testing: a qualitative study of beliefs among Indian, Pakistani, African-Caribbean and white British women in the UK. British Journal of Cancer, 88(1), 42-46.
  • Waller, J., McCaffery, K., Forrest, S., Szarewski, A., Cadman, L., Wardle, J. (2003). Awareness of human papillomavirus among women attending a well woman clinic. Sexually Transmitted Infections, 79(4), 320-322.
  • Wardle, J., Williamson, S., McCaffery, K., Sutton, S., Taylor, T., Edwards, R., Atkin, W. (2003). Increasing attendance at colorectal cancer screening: Testing the efficacy of a mailed, psychoeducational intervention in a community sample of older adults. Health Psychology, 22(1), 99-105.
  • McCaffery, K., Wardle, J., Waller, J. (2003). Knowledge, attitudes, and behavioural intentions in relation to the early detection of colorectal cancer in the United Kingdom. Preventive Medicine, 36(5), 525-535.
  • Wardle, J., Williamson, S., Sutton, S., Biran, A., McCaffery, K., Cuzick, J., Atkin, W. (2003). Psychological impact of colorectal cancer screening. Health Psychology, 22(1), 54-59.
  • Miles, A., Wardle, J., McCaffery, K., Williamson, S., Atkin, W. (2003). The effects of colorectal cancer screening on health attitudes and practices. Cancer Epidemiology, Biomarkers and Prevention, 12(7), 651-655.
  • McCaffery, K. (2003). Using qualitative methods in health research: A practical guide to qualitative interviewing. Australasian Epidemiologist, 11, 18-22.
  • Atkin, W., Cook, C., Cuzick, J., Edwards, R., Northover, J., Wardle, J., McCaffery, K. (2002). Single flexible sigmoidoscopy screening to prevent colorectal cancer: baseline findings of a UK multicentre randomised trial. The Lancet, 359(9314), 1291-1300.
  • McCaffery, K., Wardle, J., Nadel, M., Atkin, W. (2002). Socioeconomic variation in participation in colorectal cancer screening. Journal of Medical Screening, 9(3), 104-108.

Conferences

  • Trevena, L., McCaffery, K., Barratt, A., Armstrong, B., O'Connor, A. (2004). Development and evaluation of a decision aid for women considering hormone therapy in the menopause. Fourth Research Conference 2004 "From Cell to Society 4", Sydney: Faculties of Health, University of Sydney.

Magazine / Newspaper Articles

  • Waller, J., McCaffery, K., Wardle, J. (2004). Psychological impact of human papillomavirus testing: could management strategy play a role? BMJ Rapid Response.
  • Trevena, L., Barratt, A., McCaffery, K., Irwig, L. (2003). More haste less speed in the implementation of screening decision aids. BMJ Rapid Response.
  • McCaffery, K., Waller, J., Forrest, S., Wardle, J. (2002). Psychological effects of HPV testing. JAMA, letter (peer reviewed).

Report

  • Trevena, L., McCaffery, K., Barratt, A., Armstrong, B. (2004). Making decisions: Should I take hormone replacement therapy.

2015

  • Davis, E., McCaffery, K., Mullan, B., Juraskova, I. (2015). An exploration of decision aid effectiveness: the impact of promoting affective vs. deliberative processing on a health-related decision. Health Expectations, in press. [More Information]
  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., McCaffery, K. (2015). How Do General Practitioners and Patients Make Decisions About Cardiovascular Disease Risk? Health Psychology, 34(3), 253-261. [More Information]
  • Morony, S., Flynn, M., McCaffery, K., Jansen, J., Webster, A. (2015). Readability of Written Materials for CKD Patients: A Systematic Review. American Journal of Kidney Diseases, 65(6), 842-850. [More Information]
  • Bell, K., McCaffery, K., Irwig, L. (2015). Screening tests for gonorrhoea should first do no harm. Medical Journal of Australia, 202(6), 281-282. [More Information]
  • Sublette, V., Smith, S., George, J., McCaffery, K., Douglas, M. (2015). The Hepatitis C treatment experience: Patients' perceptions of the facilitators of and barriers to uptake, adherence and completion. Psychology & Health, 30(8), 987-1004. [More Information]
  • Hersch, J., Barratt, A., Jansen, J., Irwig, L., McGeechan, K., Jacklyn, G., Thornton, H., Dhillon, H., Houssami, N., McCaffery, K. (2015). Use of a decision aid including information on overdetection to support informed choice about breast cancer screening: A randomised controlled trial. The Lancet, 385(9978), 1642-1652. [More Information]

2014

  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., McCaffery, K. (2014). Communicating cardiovascular disease risk: an interview study of General Practitioners' use of absolute risk within tailored communication strategies. BMC Family Practice, 15(1), 1-8. [More Information]
  • Smith, S., Simpson, J., Trevena, L., McCaffery, K. (2014). Factors associated with informed decisions and participation in bowel cancer screening among adults with lower education and literacy. Medical Decision Making, 34(6), 756-772. [More Information]
  • Jansen, J., Bonner, C., McKinn, S., Irwig, L., Glasziou, P., Doust, J., Teixeira-Pinto, A., Hayden, A., Turner, R., McCaffery, K. (2014). General practitioners' use of absolute risk versus individual risk factors in cardiovascular disease prevention: an experimental study. BMJ Open, 4(5), 1-7. [More Information]
  • Bonner, C., Jansen, J., Newell, B., Irwig, L., Glasziou, P., Doust, J., Dhillon, H., McCaffery, K. (2014). I Don't Believe It, But I'd Better Do Something About It: Patient Experiences of Online Heart Age Risk Calculators. Journal of Medical Internet Research, 16(5), 1-17. [More Information]
  • Smith, S., Kearney, P., Trevena, L., Barratt, A., Nutbeam, D., McCaffery, K. (2014). Informed choice in bowel cancer screening: A qualitative study to explore how adults with lower education use decision aids. Health Expectations, 17(4), 551-522. [More Information]
  • Dodd, R., McCaffery, K., Marlow, L., Ostini, R., Zimet, G., Waller, J. (2014). Knowledge of human papillomavirus (HPV) testing in the USA, the UK and Australia: an international survey. Sexually Transmitted Infections, 90(3), 201-207. [More Information]
  • Hersch, J., Jansen, J., Barratt, A., Irwig, L., Houssami, N., Jacklyn, G., Thornton, H., Dhillon, H., McCaffery, K. (2014). Overdetection in breast cancer screening: development and preliminary evaluation of a decision aid. BMJ Open, 4(9), 1-10. [More Information]
  • De Oliveira, G., Holl, J., McCarthy, R., Butt, Z., Nouriel, J., McCaffery, K., Wolf, M. (2014). Overestimation of mortality risk and preoperative anxiety in patients undergoing elective general surgery procedures: A propensity matched analysis. International Journal of Surgery, 12(12), 1473-1477. [More Information]
  • Turner, R., Walter, S., Macaskill, P., McCaffery, K., Irwig, L. (2014). Sample size and power when designing a randomized trial for the estimation of treatment, selection, and preference effects. Medical Decision Making, 34(6), 711-719. [More Information]
  • Hoffmann, T., Légaré, F., Simmons, M., McNamara, K., McCaffery, K., Trevena, L., Hudson, B., Glasziou, P., Del Mar, C. (2014). Shared decision making: what do clinicians need to know and why should they bother? Medical Journal of Australia, 201(1), 35-39. [More Information]
  • Ahmed, R., Raynor, D., McCaffery, K., Aslani, P. (2014). The design and user-testing of a question prompt list for attention-deficit/hyperactivity disorder. BMJ Open, 4(12), 1-11. [More Information]
  • Hersch, J., Barratt, A., Jansen, J., Houssami, N., Irwig, L., Jacklyn, G., Dhillon, H., Thornton, H., McGeechan, K., Howard, K., McCaffery, K. (2014). The effect of information about overdetection of breast cancer on women's decision-making about mammography screening: study protocol for a randomised controlled trial. BMJ Open, 4(5), 1-10. [More Information]
  • Laidsaar-Powell, R., McCaffery, K., Mather, T., Juraskova, I. (2014). Vaccination Decision-Making and HPV Knowledge: How Informed and Engaged Are Young Adult HPV Vaccine Recipients in Australia? Journal of Vaccines, 2014, 1-9. [More Information]

2013

  • McCaffery, K., Holmes-Rovner, M., Smith, S., Rovner, D., Nutbeam, D., Clayman, M., Kelly-Blake, K., Wolf, M., Sheridan, S. (2013). Addressing health literacy in patient decision aids. BMC Medical Informatics and Decision Making, 13(Suppl. 2), 1-14. [More Information]
  • Lowe, W., Ballinger, C., Protheroe, J., Lueddeke, J., Nutbeam, D., Armstrong, R., Falzon, L., Edwards, C., Russell, C., McCaffery, K., et al (2013). Effectiveness of musculoskeletal education interventions in people with low literacy levels: a systematic review. Arthritis Care and Research, 65(12), 1976-1985. [More Information]
  • Ahmed, R., McCaffery, K., Aslani, P. (2013). Factors Influencing Parental Decision Making About Stimulant Treatment for Attention-Deficit/Hyperactivity Disorder. Journal of Child and Adolescent Psychopharmacology, 23(3), 163-178. [More Information]
  • Rychetnik, L., McCaffery, K., Morton, R., Thompson, J., Menzies, S., Irwig, L. (2013). Follow-Up of Early Stage Melanoma: Specialist Clinician Perspectives on the Functions of Follow-Up and Implications for Extending Follow-Up Intervals. Journal of Surgical Oncology, 107(5), 463-468. [More Information]
  • Bonner, C., Jansen, J., McKinn, S., Irwig, L., Doust, J., Glasziou, P., Hayen, A., McCaffery, K. (2013). General practitioners' use of different cardiovascular risk assessment strategies: a qualitative study. Medical Journal of Australia, 199(7), 485-489. [More Information]
  • Smith, S., Nutbeam, D., McCaffery, K. (2013). Insights into the concept and measurement of health literacy from a study of shared decision-making in a low literacy population. Journal of Health Psychology, 18(8), 1011-1022. [More Information]
  • Marlow, L., Zimet, G., McCaffery, K., Ostini, R., Waller, J. (2013). Knowledge of human papillomavirus (HPV) and HPV vaccination: An international comparison. Vaccine, 31(5), 763-769. [More Information]
  • Morton, R., Rychetnik, L., McCaffery, K., Thompson, J., Irwig, L. (2013). Patients' perspectives of long-term follow-up for localised cutaneous melanoma. European Journal of Surgical Oncology, 39, 297-303. [More Information]
  • Laidsaar-Powell, R., Butow, P., Bu, S., Charles, C., Gafni, A., Lam, W., Jansen, J., McCaffery, K., Shepherd, H., Tattersall, M., Juraskova, I. (2013). Physician-patient-companion communication and decision-making: A systematic review of triadic medical consultations. Patient Education and Counseling, 91(1), 3-13. [More Information]
  • Bui, L., Mullan, B., McCaffery, K. (2013). Protection motivation theory and physical activity in the general Population: A systematic literature review. Psychology, Health and Medicine, 18(5), 522-542. [More Information]
  • Sublette, V., Douglas, M., McCaffery, K., George, J., Nicholson Perry, K. (2013). Psychological, lifestyle and social predictors of hepatitis c treatment response: a systematic review. Liver International, 33(6), 894-903. [More Information]
  • Rychetnik, L., McCaffery, K., Morton, R., Irwig, L. (2013). Psychosocial aspects of post-treatment follow-up for stage I/II melanoma: a systematic review of the literature. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, 22(4), 721-736. [More Information]
  • Powell, H., McCaffery, K., Murphy, V., Hensley, M., Clifton, V., Giles, W., Gibson, P. (2013). Psychosocial variables are related to future exacerbation risk and perinatal outcomes in pregnant women with asthma. Journal of Asthma, 50(4), 383-389. [More Information]
  • Vis, J., van Zwieten, M., Bossuyt, P., Moons, K., Dijkgraaf, M., McCaffery, K., Mol, B., Opmeer, B. (2013). The influence of medical testing on patients' health: an overview from the gynecologists' perspective. BMC Medical Informatics and Decision Making, 13(1), 1-7. [More Information]
  • Machalek, D., Grulich, A., Hillman, R., Jin, F., Templeton, D., Tabrizi, S., Garland, S., Prestage, G., McCaffery, K., Howard, K., et al (2013). The Study of the Prevention of Anal Cancer (SPANC): design and methods of a three-year prospective cohort study. BMC Public Health, 13(1), 1-13. [More Information]
  • Waller, J., Ostini, R., Marlow, L., McCaffery, K., Zimet, G. (2013). Validation of a measure of knowledge about human papillomavirus (HPV) using item response theory and classical test theory. Preventive Medicine, 56(1), 35-40. [More Information]
  • Dieng, M., Trevena, L., Turner, R., Wadolowski, M., McCaffery, K. (2013). What Australian women want and when they want it: cervical screening testing preferences, decisionmaking styles and information needs. Health Expectations, 16(2), 177-188. [More Information]
  • Hersch, J., Jansen, J., Barratt, A., Irwig, L., Houssami, N., Howard, K., Dhillon, H., McCaffery, K. (2013). Women's views on overdiagnosis in breast cancer screening: a qualitative study. BMJ, 346(7892), 1-13. [More Information]

2012

  • Smith, S., Barratt, A., Trevena, L., Simpson, J., Jansen, J., McCaffery, K. (2012). A theoretical framework for measuring knowledge in screening decision aid trials. Patient Education and Counseling, 89(2), 330-336. [More Information]
  • Ferrante di Ruffano, L., Hyde, C., McCaffery, K., Bossuyt, P., Deeks, J. (2012). Assessing the value of diagnostic tests: a framework for designing and evaluating trials. BMJ, 344(7847), 1-9. [More Information]
  • Mather, T., McCaffery, K., Juraskova, I. (2012). Does HPV vaccination affect women's attitudes to cervical cancer screening and safe sexual behaviour? Vaccine, 30(21), 3196-3201. [More Information]
  • Juraskova, I., O'Brien, M., Mullan, B., Bari, R., Laidsaar-Powell, R., McCaffery, K. (2012). HPV Vaccination and the Effect of Information Framing on Intentions and Behaviour: An Application of the Theory of Planned Behaviour and Moral Norm. International Journal of Behavioral Medicine, 19(4), 518-525. [More Information]
  • Jansen, J., McCaffery, K., Hayen, A., Ma, D., Reddel, H. (2012). Impact of graphic format on perception of change in biological data: implications for health monitoring in conditions such as asthma. Primary Care Respiratory Journal, 21(1), 94-100. [More Information]
  • Walter, S., Turner, R., Macaskill, P., McCaffery, K., Irwig, L. (2012). Optimal allocation of participants for the estimation of selection, preference and treatment effects in the two-stage randomised trial design. Statistics in Medicine, 31(13), 1307-1322. [More Information]
  • Rychetnik, L., Morton, R., McCaffery, K., Thompson, J., Menzies, S., Irwig, L. (2012). Shared care in the follow-up of early-stage melanoma: a qualitative study of Australian melanoma clinicians' perspectives and models of care. BMC Health Services Research, 12, 1-9. [More Information]
  • Pasquali, S., Spillane, A., de Wilt, J., McCaffery, K., Rossi, C., Quinn, M., Saw, R., Shannon, K., Stretch, J., Thompson, J. (2012). Surgeons' Opinions on Lymphadenectomy in Melanoma Patients with Positive Sentinel Nodes: A Worldwide Web-Based Survey. Annals of Surgical Oncology, 19(13), 4322-4329. [More Information]
  • Longman, T., Turner, R., King, M., McCaffery, K. (2012). The effects of communicating uncertainty in quantitative health risk estimates. Patient Education and Counseling, 89(2), 252-259. [More Information]
  • McCaffery, K., Dixon, A., Hayen, A., Jansen, J., Smith, S., Simpson, J. (2012). The Influence of Graphic Display Format on the Interpretations of Quantitative Risk Information among Adults with Lower Education and Literacy: A Randomized Experimental Study. Medical Decision Making, 32(4), 532-544. [More Information]
  • Bateson, D., Weisberg, E., McCaffery, K., Luscombe, G. (2012). When online becomes offline: attitudes to safer sex practices in older and younger women using an Australian internet dating service. Sexual Health, 9(2), 152-159. [More Information]

2011

  • McCaffery, K., Turner, R., Macaskill, P., Walter, S., Chan, S., Irwig, L. (2011). Determining the Impact of Informed Choice : Separating Treatment Effects from the Effects of Choice and Selection in Randomized Trials. Medical Decision Making, 31(2), 229-236. [More Information]
  • Hersch, J., Jansen, J., Irwig, L., Barratt, A., Thornton, H., Howard, K., McCaffery, K. (2011). How do we achieve informed choice for women considering breast screening? Preventive Medicine, 53(3), 144-146. [More Information]
  • Juraskova, I., Bari, R., O’Brien, M., McCaffery, K. (2011). HPV vaccine promotion: does Referring to Both Cervical Cancer and Genital Warts Affect Intended and Actual Vaccination Behavior? Women's Health Issues, 21(1), 71-79. [More Information]
  • Powell, H., Murphy, V., Taylor, D., Hensley, M., McCaffery, K., Giles, W., Clifton, V., Gibson, P. (2011). Management of asthma in pregnancy guided by measurement of fraction of exhaled nitric oxide: a double-blind, randomised controlled trial. The Lancet, 378(9795), 983-990. [More Information]
  • Powell, H., McCaffery, K., Murphy, V., Hensley, M., Clifton, V., Giles, W., Gibson, P. (2011). Psychosocial outcomes are related to asthma control and quality of life in pregnant women with asthma. Journal of Asthma, 48(10), 1032-1040. [More Information]
  • Hersch, J., Jansen, J., Irwig, L., Barratt, A., Thornton, H., Howard, K., McCaffery, K. (2011). Reply to Braillon and Nicot. Preventive Medicine, 53(6), 438-438. [More Information]
  • McCaffery, K., Smith, S., Shepherd, H., Sze, M., Dhillon, H., Jansen, J., Juraskova, I., Butow, P., Trevena, L., Carey, K., Tattersall, M., Barratt, A. (2011). Shared decision making in Australia in 2011. German Journal for Evidence and Quality in Health Care (Zeitschrift fuer Evidenz, Fortbildung und Qualitaet im Gesundheitswesen), 105(4), 234-239. [More Information]
  • Carter, S., Entwistle, V., McCaffery, K., Rychetnik, L. (2011). Shared Health Governance: The Potential Danger of Oppressive "Healthism". The American Journal of Bioethics, 11(7), 57-59. [More Information]
  • Bernard, D., Cooper, S., McCaffery, K., Scott, C., Skinner, R. (2011). The domino effect: adolescent girls' response to human papillomavirus vaccination. Medical Journal of Australia, 194(6), 297-300. [More Information]
  • Deutekom, M., Vansenne, F., McCaffery, K., Essink-Bot, M., Stronks, K., Bossuyt, P. (2011). The effects of screening on health behaviour: a summary of the results of randomized controlled trials. Journal of Public Health, 33(1), 71-79. [More Information]

2010

  • Cooper, S., Bernard, D., McCaffery, K., Brotherton, J., Skinner, R. (2010). "I just signed": Factors influencing decision-making for school-based HPV vaccination of adolescent girls. Health Psychology, 29(6), 618-625. [More Information]
  • Cooper, S., Bernard, D., McCaffery, K., Brotherton, J., Garland, S., Skinner, R. (2010). "Is cancer contagious?": Australian adolescent girls and their parents: making the most of limited information about HPV and HPV vaccination. Vaccine, 28(19), 3398-3408. [More Information]
  • Cooper, S., Bernard, D., McCaffery, K., Skinner, R. (2010). 'It's a logistical nightmare!' Recommendations for optimising human papillomavirus school-based vaccination experience. Sexual Health, 7(3), 271-278. [More Information]
  • Smith, S., Trevena, L., Simpson, J., Barratt, A., Nutbeam, D., McCaffery, K. (2010). A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial. BMJ: British Medical Journal, 341(2010), 1-13. [More Information]
  • Wolf, M., Cooper Bailey, S., McCaffery, K. (2010). Health Literacy: A Brief Introduction. In A. Steptoe (Eds.), Handbook of Behavioural Medicine, (pp. 355-366). New York, NY, USA: Springer Science+Business Media.
  • Brotherton, J., Leask, J., Jackson, C., McCaffery, K., Trevena, L. (2010). National survey of general practitioners' experience of delivering the National Human Papillomavirus Vaccination Program. Sexual Health, 7(3), 291-298. [More Information]
  • McCaffery, K., Jansen, J. (2010). Pre-operative MRI for women with newly diagnosed breast cancer: perspectives on clinician and patient decision-making when evidence is uncertain. The Breast, 19(1), 10-12. [More Information]
  • McCaffery, K., Irwig, L., Turner, R., Chan, S., Macaskill, P., Lewicka, M., Clarke, J., Weisberg, E., Barratt, A. (2010). Psychosocial outcomes of three triage methods for the management of borderline abnormal cervical smears: an open randomised trial. BMJ: British Medical Journal, 340, b4491-1-b4491-13. [More Information]
  • Entwistle, V., Carter, S., Cribb, A., McCaffery, K. (2010). Supporting Patient Autonomy: The Importance of Clinician-patientRelationships. Journal of General Internal Medicine, 25(7), 741-745.
  • McCaffery, K., Smith, S., Wolf, M. (2010). The Challenge of Shared Decision Making Among Patients With Lower Literacy: A Framework for Research and Development. Medical Decision Making, 30(1), 35-44. [More Information]

2009

  • Bossuyt, P., McCaffery, K. (2009). Additional patient outcomes and pathways in evaluations of testing. Medical Decision Making, September-October(2009), E31-E38. [More Information]
  • Paasche-Orlow, M., McCaffery, K., Wolf, M. (2009). Bridging the international divide for health literacy research. Patient Education and Counseling, 75(3), 293-4. [More Information]
  • Smith, S., Trevena, L., Barratt, A., Dixon, A., Nutbeam, D., Simpson, J., McCaffery, K. (2009). Development and preliminary evaluation of a bowel cancer screening decision aid for adults with lower literacy. Patient Education and Counseling, 75(3), 358-367. [More Information]
  • Smith, S., Dixon, A., Trevena, L., Nutbeam, D., McCaffery, K. (2009). Exploring patient involvement in healthcare decision making across different education and functional health literacy groups. Social Science and Medicine, 69(12), 1805-1812. [More Information]
  • Weisberg, E., Bateson, D., McCaffery, K., Skinner, R. (2009). HPV vaccination catch up program - utilisation by young Australian women. Australian Family Physician, 38(1-2), 72-76. [More Information]
  • Leask, J., Jackson, C., Trevena, L., McCaffery, K., Brotherton, J. (2009). Implementation of the Australian HPV vaccination program for adult women: Qualitative key informant interviews. Vaccine, 27(40), 5505-5512. [More Information]

2008

  • Entwistle, V., Carter, S., Trevena, L., Flitcroft, K., Irwig, L., McCaffery, K., Salkeld, G. (2008). Communicating about screening. BMJ: British Medical Journal, 337(7673), 789-791. [More Information]
  • Hall, B., Howard, K., McCaffery, K. (2008). Do cervical cancer screening patient information leaflets meet the HPV information needs of women. Patient Education and Counseling, 72(1), 78-87. [More Information]
  • McCaffery, K., Irwig, L., Chan, S., Macaskill, P., Barratt, A., Lewicka, M., Clarke, J., Weisberg, E. (2008). HPV testing versus repeat Pap testing for the management of a minor abnormal Pap smear: Evaluation of a decision aid to support informed choice. Patient Education and Counseling, 73(3), 473-481. [More Information]
  • Smith, S., Trevena, L., Nutbeam, D., Barratt, A., McCaffery, K. (2008). Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening: utilizing a linguistic model. Health Expectations, 11(2), 123-136. [More Information]
  • Michie, S., McCaffery, K., Heneghan, C. (2008). Monitoring as a learning and motivational tool. In P Glasziou, L Irwig and J K Aronson (Eds.), Evidence-based Medical Monitoring:From Principles to Practice, (pp. 123-139). Oxford: Blackwell Publishers.
  • McCaffery, K., Michie, S. (2008). Monitoring from the patient's perspectives: social and psychological implications. In P Glasziou, L Irwig and J K Aronson (Eds.), Evidence-based Medical Monitoring:From Principles to Practice, (pp. 140-157). Oxford: Blackwell Publishers.
  • Power, E., Van Jaarsveld, C., McCaffery, K., Miles, A., Atkin, W., Wardle, J. (2008). Understanding intentions and action in colorectal cancer screening. Annals of Behavioral Medicine, 35(3), 285-294. [More Information]
  • Trevena, L., Barratt, A., McCaffery, K. (2008). Using decision aids to involve clients in clinical decision-making. In Joy Higgs, Mark A Jones, Stephen Loftus, Nicole Christensen (Eds.), Clinical Reasoning in the Health Professions, (pp. 367-376). Oxford, United Kingdom: Butterworth Heinemann.

2007

  • Wallace, C., Weisberg, E., McCaffery, K. (2007). Bug breakfast in the bulletin: human papilloma virus. NSW Public Health Bulletin, 18, 97-8. [More Information]
  • Howard, K., Salkeld, G., McCaffery, K., Irwig, L. (2007). HPV triage testing or repeat Pap smear for the management of atypical squamous cells (ASCUS) on Pap smear: is there evidence of process utility? Health Economics, Published Online: Sep 3 2007, 1-13. [More Information]
  • Raynes-Greenow, C., Roberts, C., McCaffery, K., Clarke, J. (2007). Knowledge and decision-making for labour analgesia of Australian primiparous women. Midwifery, 23(2), 139-145. [More Information]
  • McCaffery, K., Irwig, L., Bossuyt, P. (2007). Patient Decision Aids to Support Clinical Decision Making: Evaluating the Decision or the Outcomes of the Decision. Medical Decision Making, 27(5), 619-625. [More Information]
  • McCaffery, K., Shepherd, H., Trevena, L., Juraskova, I., Barratt, A., Butow, P., Hazell, K., Tattersall, M. (2007). Shared decision-making in Australia. Zeitschrift fuer Aerztliche Fortbildung und Qualitaet Gesundheitswesen, 101(4), 205-211. [More Information]
  • Smith, S., McCaffery, K., Trevena, L. (2007). Using decision aids to facilitate informed health care decision making among adults with low literacy: The case of bowel cancer screening. Health Issues, (92), 28-32.
  • Waller, J., McCaffery, K., Kitchener, H., Nazroo, J., Wardle, J. (2007). Women's experiences of repeated HPV testing in the context of cervical cancer screening: A qualitative study. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, 16, 196-204. [More Information]

2006

  • Waller, J., McCaffery, K., Forrest, S., Szarewski, A., Cadman, L., Austin, J., Wardle, J. (2006). Acceptability of unsupervised HPV self-sampling using written instructions. Journal of Medical Screening, 13(4), 208-13. [More Information]
  • Irwig, L., McCaffery, K., Salkeld, G., Bossuyt, P. (2006). Informed choice for screening: implications for evaluation. BMJ: British Medical Journal, 332(7550), 1148-1150. [More Information]
  • McCaffery, K., Waller, J., Nazroo, J., Wardle, J. (2006). Social and psychological impact of HPV testing in cervical screening: a qualitative study. Sexually Transmitted Infections, 82(2), 169-174. [More Information]

2005

  • McCaffery, K., Irwig, L. (2005). Australian women's needs and preferences for information about human papillomavirus in cervical screening. Journal of Medical Screening, 12(3), 134-41. [More Information]
  • Waller, J., McCaffery, K., Nazroo, J., Wardle, J. (2005). Making sense of information about HPV in cervical screening: a qualitative study. British Journal of Cancer, 92(2), 265-270. [More Information]

2004

  • McCaffery, K., Barratt, A. (2004). Assessing psychosocial/quality of life outcomes in screening: how do we do it better? Journal of Epidemiology and Community Health, 58(12), 968-970.
  • Forrest, S., McCaffery, K., Waller, J., Desai, M., Szarewski, A., Cadman, L., Wardle, J. (2004). Attitudes To Self-Sampling For HPV Among Indian, Pakistani, African-Caribbean And White British Women In Manchester, Uk. Journal of Medical Screening, 11(2), 85-88.
  • Waller, J., McCaffery, K., Wardle, J. (2004). Beliefs About The Risk Factors For Cervical Cancer In A British Population Sample. Preventive Medicine, 38(6), 745-753.
  • Trevena, L., McCaffery, K., Barratt, A., Armstrong, B., O'Connor, A. (2004). Development and evaluation of a decision aid for women considering hormone therapy in the menopause. Fourth Research Conference 2004 "From Cell to Society 4", Sydney: Faculties of Health, University of Sydney.
  • Waller, J., McCaffery, K., Forrest, S., Wardle, J. (2004). Human Papillomavirus And Cervical Cancer: Issues For Biobehavioral And Psychosocial Research. Annals of Behavioral Medicine, 27(1), 68-79.
  • Trevena, L., McCaffery, K., Barratt, A., Armstrong, B. (2004). Making decisions: Should I take hormone replacement therapy.
  • Waller, J., McCaffery, K., Wardle, J. (2004). Measuring Cancer Knowledge: Comparing Prompted And Unprompted Recall. British Journal of Psychology, 95(2), 219-234.
  • Roberts, C., Raynes-Greenow, C., Nassar, N., Trevena, L., McCaffery, K. (2004). Protocol For A Randomised Controlled Trial Of A Decision Aid For The Management Of Pain In Labour And Childbirth [Isrctn52287533]. BMC Pregnancy and Childbirth, 4(1), 24-24.
  • Waller, J., McCaffery, K., Wardle, J. (2004). Psychological impact of human papillomavirus testing: could management strategy play a role? BMJ Rapid Response.
  • McCaffery, K., Waller, J., Forrest, S., Cadman, L., Wardle, J., Szarewski, A. (2004). Testing Positive For Human Papillomavirus In Routine Cervical Screening: Examination Of Psychosocial Impact. BJOG: an international journal of obstetrics and gynaecology, 111(12), 1437-1443.
  • Barratt, A., Trevena, L., Davey, H., McCaffery, K. (2004). Use Of Decision Aids To Support Informed Choices About Screening. BMJ: British Medical Journal, 329, 507-510.

2003

  • McCaffery, K., Forrest, S., Waller, J., Desai, M., Szarewski, A., Wardle, J. (2003). Attitudes towards HPV testing: a qualitative study of beliefs among Indian, Pakistani, African-Caribbean and white British women in the UK. British Journal of Cancer, 88(1), 42-46.
  • Waller, J., McCaffery, K., Forrest, S., Szarewski, A., Cadman, L., Wardle, J. (2003). Awareness of human papillomavirus among women attending a well woman clinic. Sexually Transmitted Infections, 79(4), 320-322.
  • Wardle, J., Williamson, S., McCaffery, K., Sutton, S., Taylor, T., Edwards, R., Atkin, W. (2003). Increasing attendance at colorectal cancer screening: Testing the efficacy of a mailed, psychoeducational intervention in a community sample of older adults. Health Psychology, 22(1), 99-105.
  • McCaffery, K., Wardle, J., Waller, J. (2003). Knowledge, attitudes, and behavioural intentions in relation to the early detection of colorectal cancer in the United Kingdom. Preventive Medicine, 36(5), 525-535.
  • Trevena, L., Barratt, A., McCaffery, K., Irwig, L. (2003). More haste less speed in the implementation of screening decision aids. BMJ Rapid Response.
  • Wardle, J., Williamson, S., Sutton, S., Biran, A., McCaffery, K., Cuzick, J., Atkin, W. (2003). Psychological impact of colorectal cancer screening. Health Psychology, 22(1), 54-59.
  • Miles, A., Wardle, J., McCaffery, K., Williamson, S., Atkin, W. (2003). The effects of colorectal cancer screening on health attitudes and practices. Cancer Epidemiology, Biomarkers and Prevention, 12(7), 651-655.
  • McCaffery, K. (2003). Using qualitative methods in health research: A practical guide to qualitative interviewing. Australasian Epidemiologist, 11, 18-22.

2002

  • McCaffery, K., Waller, J., Forrest, S., Wardle, J. (2002). Psychological effects of HPV testing. JAMA, letter (peer reviewed).
  • Atkin, W., Cook, C., Cuzick, J., Edwards, R., Northover, J., Wardle, J., McCaffery, K. (2002). Single flexible sigmoidoscopy screening to prevent colorectal cancer: baseline findings of a UK multicentre randomised trial. The Lancet, 359(9314), 1291-1300.
  • McCaffery, K., Wardle, J., Nadel, M., Atkin, W. (2002). Socioeconomic variation in participation in colorectal cancer screening. Journal of Medical Screening, 9(3), 104-108.

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