Dr Sarah McIntyre

Senior Research Fellow, Cerebral Palsy Alliance, University of Sydney
NH&
MRC Early Career Fellow, Discipline of Child and Adolescent Health, University of Sydney


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Biographical details

Sarah is a Senior Research Fellow at Cerebral Palsy Alliance, University of Sydney, and holds an NHMRC Early Career Fellowship with the Discipline of Child and Adolescent Health, University of Sydney. She is also an honorary researcher at Telethon Kids Institute, Perth and Sydney Children's Hospital Network. Sarah is a Board member of the Australasian Academy of Cerebral Palsy and Developmental Medicine.She is responsible for the day to day running of the NSW/ACT CP Register and isa Policy Group member for the Australian Cerebral Palsy Register. Sarah is the Research Lead of CP Quest: Community and Researchers together.

Research interests

Her research focus is population based aetiology research for cerebral palsy, neonatal encephalopathy andcongenital anomalieswith the long term aim of identifying avenues for prevention of neurodisability. Additional research interests include evidence based interventions aimed at making and maintaining friends and education opportunities and outcomes for people with a neurodisability.

Current research students

Project title Research student
An exploration of cerebral palsy aetiology: assisted reproductive technology and congenital anomalies. Shona GOLDSMITH
The relationship between early life determinants, health service utilisation and hip health in childhood cerebral palsy Simon PAGET
Investigating the aetiological risk factors and opportunities for prevention of post-neonatally acquired cerebral palsy Emma WAIGHT
Phenotype-genotype studies of multiplex families with cerebral palsy and other neurodevelopmental disorders. Yana WILSON

Current projects

Comprehensive Congenital Anomalies and Cerebral Palsy Study: An Australian and European Linkage study

Australian Cerebral Palsy Register

NSW/ACT Cerebral Palsy Register

International Cerebral Palsy Genomics Consortium

Associations

Australasian Academy of Cerebral Palsy and Developmental Medicine
American Academy of Cerebral Palsy and Developmental Medicine
Perinatal Society of Australia and New Zealand
National Birth Defects Prevention Network
Australasian Epidemiology Association
Society of Pediatric and Perinatal Epidmiology Research

Awards and honours

National Health & Medical Research Centre, Early Career Fellowship 1111270(2016-2020)

University of Sydney, School of Medicine, Peter Bancroft Prize fo PH.D (2013)

University of Western Sydney Occupational Therapy,University Medal for Outstanding Academic Achievement (2001)

Selected publications

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Journals

  • Galea, C., McIntyre, S., Smithers-Sheedy, H., Reid, S., Gibson, C., deLacy, M., Watson, L., Goldsmith, S., Badawi, N., Blair, E. (2019). Cerebral palsy trends in Australia (1995-2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. [More Information]
  • Schiariti, V., Fowler, E., Brandenburg, J., Levey, E., McIntyre, S., Sukal-Moulton, T., Ramey, S., Rose, J., Sienko, S., Stashinko, E., et al (2018). A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Developmental Medicine and Child Neurology, 60(10), 976-986. [More Information]
  • Goldsmith, S., McIntyre, S., Badawi, N., Hansen, M. (2018). Cerebral palsy after assisted reproductive technology: a cohort study. Developmental Medicine and Child Neurology, 60(1), 73-80. [More Information]
  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Han, S., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2018). Neonatal interventions for preventing cerebral palsy: An overview of Cochrane Systematic Reviews. Cochrane Database of Systematic Reviews, 2018 (6), 1-176. [More Information]
  • McIntyre, S. (2018). The continually changing epidemiology of cerebral palsy. Acta Paediatrica, 107(3), 374-375. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2017). Antenatal and intrapartum interventions for preventing cerebral palsy: An overview of Cochrane systematic reviews. Cochrane Database of Systematic Reviews, 2017 (8), 1-99. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Novak, I., Morgan, C., Adde, L., Blackman, J., Boyd, R., Brunstom-Hernandez, J., Cioni, G., Damiano, D., Darrah, J., Eliasson, A., Karlsson, P., Loughran-Fowlds, A., McIntyre, S., Shepherd, R., Thornton, M., Walker, K., White, R., Badawi, N., et al (2017). Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy: Advances in Diagnosis and Treatment. JAMA Pediatrics, 171(9), 897-907. [More Information]
  • Mehta, S., Joshi, A., Bajuk, B., Badawi, N., McIntyre, S., Lui, K. (2017). Eligibility criteria for therapeutic hypothermia: From trials to clinical practice. Journal of Paediatrics and Child Health, 53(3), 295-300. [More Information]
  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Shepherd, E., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2016). Antenatal and intrapartum interventions for prevening cerebral palsy: an overview of Cochrane systematic reviews (Protocol). Cochrane Database of Systematic Reviews, 2, 1-12. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Reid, S., Meehan, E., McIntyre, S., Goldsmith, S., Badawi, N., Reddihough, D. (2016). Temporal trends in cerebral palsy by impairment severity and birth gestation. Developmental Medicine and Child Neurology, 58(Suppl. 2), 25-35. [More Information]
  • Hines, M., Swinburn, K., McIntyre, S., Novak, I., Badawi, N. (2015). Infants at risk of cerebral palsy: a systematic review of outcomes used in Cochrane studies of pregnancy, childbirth and neonatology. The Journal of Maternal-Fetal and Neonatal Medicine, 28(16), 1871-1883. [More Information]
  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]
  • Campbell, L., Novak, I., McIntyre, S., Lord, S. (2013). A KT intervention including the evidence alert system to improve clinician's evidence-based practice behavior-a cluster randomized controlled trial. Implementation Science, 8(1), 1-15. [More Information]
  • Novak, I., McIntyre, S., Morgan, C., Campbell, L., Dark, L., Morton, N., Stumbles, E., Wilson, S., Goldsmith, S. (2013). A systematic review of interventions for children with cerebral palsy: state of the evidence. Developmental Medicine and Child Neurology, 55(10), 885-910. [More Information]
  • Bain, E., Goodchild, L., Lontis, R., McIntyre, S., Ashwood, P., Bubner, T., Middleton, P., Crowther, C. (2013). Magnesium sulphate for the prevention of cerebral palsy in Australia and New Zealand. Australian Nursing Journal, 21(1), 34-37.
  • Crowther, C., Middleton, P., Bain, E., Ashwood, P., Bubner, T., Flenady, V., Morris, J., McIntyre, S. (2013). Working to improve survival and health for babies born very preterm: The WISH project protocol. BMC Pregnancy and Childbirth, 13, 1-7. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-Don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • Shatrov, J., Birch, S., Lam, L., Quinlivan, J., McIntyre, S., Mendz, G. (2010). Chorioamnionitis and cerebral palsy: a meta-analysis. Obstetrics and Gynecology, 116(2 Pt 1), 387-392. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus Research Priorities for Cerebral Palsy: A Delphi Survey of Consumers, Researchers and Clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus research priorities for cerebral palsy: A Delphi survey of consumers, researchers, and clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., Foy, L. (2010). Just like you': a disability awareness programme for children that enhanced knowledge, attitudes and acceptance: pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. [More Information]
  • Novak, I., McIntyre, S. (2010). The effect of education with workplace supports on practitioners' evidence-based practice knowledge and implementation behaviours. Australian Occupational Therapy Journal, 57(6), 386-393. [More Information]
  • Cusick, A., Convey, M., Novak, I., McIntyre, S. (2009). Employer sponsored occupational therapy professional development in a multi-campus facility: a quality project. Australian Occupational Therapy Journal, 56(4), 229-238. [More Information]

2019

  • Galea, C., McIntyre, S., Smithers-Sheedy, H., Reid, S., Gibson, C., deLacy, M., Watson, L., Goldsmith, S., Badawi, N., Blair, E. (2019). Cerebral palsy trends in Australia (1995-2009): a population-based observational study. Developmental Medicine and Child Neurology, 61(2), 186-193. [More Information]

2018

  • Schiariti, V., Fowler, E., Brandenburg, J., Levey, E., McIntyre, S., Sukal-Moulton, T., Ramey, S., Rose, J., Sienko, S., Stashinko, E., et al (2018). A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Developmental Medicine and Child Neurology, 60(10), 976-986. [More Information]
  • Goldsmith, S., McIntyre, S., Badawi, N., Hansen, M. (2018). Cerebral palsy after assisted reproductive technology: a cohort study. Developmental Medicine and Child Neurology, 60(1), 73-80. [More Information]
  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Han, S., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2018). Neonatal interventions for preventing cerebral palsy: An overview of Cochrane Systematic Reviews. Cochrane Database of Systematic Reviews, 2018 (6), 1-176. [More Information]
  • McIntyre, S. (2018). The continually changing epidemiology of cerebral palsy. Acta Paediatrica, 107(3), 374-375. [More Information]

2017

  • Shepherd, E., Salam, R., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2017). Antenatal and intrapartum interventions for preventing cerebral palsy: An overview of Cochrane systematic reviews. Cochrane Database of Systematic Reviews, 2017 (8), 1-99. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Novak, I., Morgan, C., Adde, L., Blackman, J., Boyd, R., Brunstom-Hernandez, J., Cioni, G., Damiano, D., Darrah, J., Eliasson, A., Karlsson, P., Loughran-Fowlds, A., McIntyre, S., Shepherd, R., Thornton, M., Walker, K., White, R., Badawi, N., et al (2017). Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy: Advances in Diagnosis and Treatment. JAMA Pediatrics, 171(9), 897-907. [More Information]
  • Mehta, S., Joshi, A., Bajuk, B., Badawi, N., McIntyre, S., Lui, K. (2017). Eligibility criteria for therapeutic hypothermia: From trials to clinical practice. Journal of Paediatrics and Child Health, 53(3), 295-300. [More Information]

2016

  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Shepherd, E., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2016). Antenatal and intrapartum interventions for prevening cerebral palsy: an overview of Cochrane systematic reviews (Protocol). Cochrane Database of Systematic Reviews, 2, 1-12. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Reid, S., Meehan, E., McIntyre, S., Goldsmith, S., Badawi, N., Reddihough, D. (2016). Temporal trends in cerebral palsy by impairment severity and birth gestation. Developmental Medicine and Child Neurology, 58(Suppl. 2), 25-35. [More Information]

2015

  • Hines, M., Swinburn, K., McIntyre, S., Novak, I., Badawi, N. (2015). Infants at risk of cerebral palsy: a systematic review of outcomes used in Cochrane studies of pregnancy, childbirth and neonatology. The Journal of Maternal-Fetal and Neonatal Medicine, 28(16), 1871-1883. [More Information]

2014

  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]

2013

  • Campbell, L., Novak, I., McIntyre, S., Lord, S. (2013). A KT intervention including the evidence alert system to improve clinician's evidence-based practice behavior-a cluster randomized controlled trial. Implementation Science, 8(1), 1-15. [More Information]
  • Novak, I., McIntyre, S., Morgan, C., Campbell, L., Dark, L., Morton, N., Stumbles, E., Wilson, S., Goldsmith, S. (2013). A systematic review of interventions for children with cerebral palsy: state of the evidence. Developmental Medicine and Child Neurology, 55(10), 885-910. [More Information]
  • Bain, E., Goodchild, L., Lontis, R., McIntyre, S., Ashwood, P., Bubner, T., Middleton, P., Crowther, C. (2013). Magnesium sulphate for the prevention of cerebral palsy in Australia and New Zealand. Australian Nursing Journal, 21(1), 34-37.
  • Crowther, C., Middleton, P., Bain, E., Ashwood, P., Bubner, T., Flenady, V., Morris, J., McIntyre, S. (2013). Working to improve survival and health for babies born very preterm: The WISH project protocol. BMC Pregnancy and Childbirth, 13, 1-7. [More Information]

2011

  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-Don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]

2010

  • Shatrov, J., Birch, S., Lam, L., Quinlivan, J., McIntyre, S., Mendz, G. (2010). Chorioamnionitis and cerebral palsy: a meta-analysis. Obstetrics and Gynecology, 116(2 Pt 1), 387-392. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus Research Priorities for Cerebral Palsy: A Delphi Survey of Consumers, Researchers and Clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus research priorities for cerebral palsy: A Delphi survey of consumers, researchers, and clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., Foy, L. (2010). Just like you': a disability awareness programme for children that enhanced knowledge, attitudes and acceptance: pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. [More Information]
  • Novak, I., McIntyre, S. (2010). The effect of education with workplace supports on practitioners' evidence-based practice knowledge and implementation behaviours. Australian Occupational Therapy Journal, 57(6), 386-393. [More Information]

2009

  • Cusick, A., Convey, M., Novak, I., McIntyre, S. (2009). Employer sponsored occupational therapy professional development in a multi-campus facility: a quality project. Australian Occupational Therapy Journal, 56(4), 229-238. [More Information]

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