Dr Sarah McIntyre

Senior Research Fellow, Cerebral Palsy Alliance, University of Sydney
NH&
MRC Early Career Fellow, Discipline of Child and Adolescent Health, University of Sydney


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Biographical details

Sarah is a Senior Research Fellow at Cerebral Palsy Alliance, University of Sydney, and holds an NHMRC Early Career Fellowship with the Discipline of Child and Adolescent Health, University of Sydney. She is also an honorary researcher at Telethon Kids Institute, Perth and Sydney Children's Hospital Network.Sarah is a member of mutliple professional organisations across the globe leading research in cerebral palsy and childhood disability, including: Australasian Academy of Cerebral Palsy and Developmental Medicine, American Academy of Cerebral Palsy and Developmental Medicine and the European Academy of Childhood Disability.

Research interests

Sarah is responsible for running the NSW/ACT Cerebral Palsy Register. Her research focus is population based aetiology research for neonatal encephalopathy, congenital anomalies and cerebral palsy with long term aim of identifying avenues for prevention of neurodisability. Additional research interests include evidence based interventions aimed at making and maintaining friends and education opportunities and outcomes forpeople with a neurodisability.

Current research students

Project title Research student
An exploration of cerebral palsy aetiology: assisted reproductive technology and congenital anomalies. Shona GOLDSMITH
Phenotype-genotype studies of multiplex families with cerebral palsy and other neurodevelopmental disorders. Yana WILSON

Associations

Australasian Academy of Cerebral Palsy and Developmental Medicine
American Academy of Cerebral Palsy and Developmental Medicine
European Academy of Childhood Disability
Perinatal Society of Australia and New Zealand
National Birth Defects Prevention Network
Australasian Epidemiology Association
Society of Pediatric and Perinatal Epidmiology Research

Awards and honours

  • 2017 – Perpetual’s IMPACT Philanthropy Award (AI) Bioinformatics and database development for an International CP Genomics Consortium $80,000
  • 2017 – Motor Accident Iinsurance Commission (CI) Trialing PEERS for adolescents in the CP and ABI population $125,000 with Dr Leanne Sakzewski
  • 2016 – NHMRC (CI) Early career fellowship $320,000
  • 2016 – NHMRC (AI) Centre of Research Excellence (AusCP-CTN) $2,499,287 with Prof Ros Boyd
  • 2014 – NHMRC (AI) with Dr Paul Dawson $720,437 UQ. Neuroprotective role of sulphate among preterm babies (SuPreme study)
  • 2013 – Cerebral Palsy Foundation (AI) with Prof Caroline Crowther $250,000. Working to improve the survival and good health for babies born preterm: The WISH Project Follow Up Study
  • 2013 – Macquarie Bank 200/200 Award (CI) with Prof Nadia Badia $200,000 Developing IMPACT for CP
  • 2011 – NHMRC (AI) with Prof Caroline Crowther and ARCH $1,978,760. MAGENTA trial: Does antenatal magnesium sulphate given to women at risk of preterm birth between 30 and 34 weeks' gestation reduce the risk of death or cerebral palsy in their children? - a randomised controlled trial
  • 2010 – Star Scientific Foundation $170,000 (CI). Creating a roadmap for the prevention of cerebral palsy
  • 2010 - Cerebral Palsy Foundation $250,000 (AI) with Prof Caroline Crowther and ARCH. WiSH study; Magnesium Sulphate for neuroprotection – Evidence into practice
  • 2010 – Corio Foundation $10,000 (CI). Analysis of WA Case Control Study
  • 2010 – Universtiy of Sydney Postgraduate Research Scholarship $600 (CI). Analysis of WA Case Control Study
  • 2009 – Balnaves Foundation $450,000 (Co-CI) with Prof Nadia Badawi and AProf Iona Novak The Cerebral Palsy Curative Research Program
  • 2009 – James Kirby Foundation $20,000 (Co-CI) with A Prof Iona Novak and Hayley Smithers-Sheedy ACPR – Phase II Outcomes database
  • 2008 – University of Sydney Postgraduate Research Scholarship $1000 (CI). Analysis of WA Case Control Study
  • 2008 – AVANT $2,000,000 (Co-CI) with A Prof Iona Novak. Australian Cerebral Palsy Register and CP Institute Grant Program
  • 2008 – Department of Ageing, Disability and Home Care $200,000 (Project manager). International Cerebral Palsy Conference
  • 2008 - Department of Family, Housing, Community Service and Indigenous Affairs $20,000. (Project manager) Parent and clients free registration to International CP Conference
  • 2007 – Allergan $150,000 (Co-CI) with A Prof Iona Novak. International Cerebral Palsy Conference
  • 2007 – NHMRC $495,000 (AI; NSW Project Manager) with University of South Australia. A genomic basis for cerebral palsy – studies on a large Australian cohort
  • 2007 – Cerebral Palsy Foundation $120,000 (AI) with Prof Enrico Coiera and UNSW. Accelerating our understanding of CP with a computer supported discovery system

Selected publications

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Journals

  • Schiariti, V., Fowler, E., Brandenburg, J., Levey, E., McIntyre, S., Sukal-Moulton, T., Ramey, S., Rose, J., Sienko, S., Stashinko, E., et al (2018). A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Developmental Medicine and Child Neurology, 60(10), 976-986. [More Information]
  • Goldsmith, S., McIntyre, S., Badawi, N., Hansen, M. (2018). Cerebral palsy after assisted reproductive technology: a cohort study. Developmental Medicine and Child Neurology, 60(1), 73-80. [More Information]
  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Han, S., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2018). Neonatal interventions for preventing cerebral palsy: An overview of Cochrane Systematic Reviews. Cochrane Database of Systematic Reviews, 2018 (6), 1-176. [More Information]
  • McIntyre, S. (2018). The continually changing epidemiology of cerebral palsy. Acta Paediatrica, 107(3), 374-375. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2017). Antenatal and intrapartum interventions for preventing cerebral palsy: An overview of Cochrane systematic reviews. Cochrane Database of Systematic Reviews, 2017 (8), 1-99. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Novak, I., Morgan, C., Adde, L., Blackman, J., Boyd, R., Brunstom-Hernandez, J., Cioni, G., Damiano, D., Darrah, J., Eliasson, A., Karlsson, P., Loughran-Fowlds, A., McIntyre, S., Shepherd, R., Thornton, M., Walker, K., White, R., Badawi, N., et al (2017). Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy: Advances in Diagnosis and Treatment. JAMA Pediatrics, 171(9), 897-907. [More Information]
  • Mehta, S., Joshi, A., Bajuk, B., Badawi, N., McIntyre, S., Lui, K. (2017). Eligibility criteria for therapeutic hypothermia: From trials to clinical practice. Journal of Paediatrics and Child Health, 53(3), 295-300. [More Information]
  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Shepherd, E., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2016). Antenatal and intrapartum interventions for prevening cerebral palsy: an overview of Cochrane systematic reviews (Protocol). Cochrane Database of Systematic Reviews, 2, 1-12. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Reid, S., Meehan, E., McIntyre, S., Goldsmith, S., Badawi, N., Reddihough, D. (2016). Temporal trends in cerebral palsy by impairment severity and birth gestation. Developmental Medicine and Child Neurology, 58(Suppl. 2), 25-35. [More Information]
  • Hines, M., Swinburn, K., McIntyre, S., Novak, I., Badawi, N. (2015). Infants at risk of cerebral palsy: a systematic review of outcomes used in Cochrane studies of pregnancy, childbirth and neonatology. The Journal of Maternal-Fetal and Neonatal Medicine, 28(16), 1871-1883. [More Information]
  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]
  • Campbell, L., Novak, I., McIntyre, S., Lord, S. (2013). A KT intervention including the evidence alert system to improve clinician's evidence-based practice behavior-a cluster randomized controlled trial. Implementation Science, 8(1), 1-15. [More Information]
  • Novak, I., McIntyre, S., Morgan, C., Campbell, L., Dark, L., Morton, N., Stumbles, E., Wilson, S., Goldsmith, S. (2013). A systematic review of interventions for children with cerebral palsy: state of the evidence. Developmental Medicine and Child Neurology, 55(10), 885-910. [More Information]
  • Bain, E., Goodchild, L., Lontis, R., McIntyre, S., Ashwood, P., Bubner, T., Middleton, P., Crowther, C. (2013). Magnesium sulphate for the prevention of cerebral palsy in Australia and New Zealand. Australian Nursing Journal, 21(1), 34-37.
  • Crowther, C., Middleton, P., Bain, E., Ashwood, P., Bubner, T., Flenady, V., Morris, J., McIntyre, S. (2013). Working to improve survival and health for babies born very preterm: The WISH project protocol. BMC Pregnancy and Childbirth, 13, 1-7. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-Don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • Shatrov, J., Birch, S., Lam, L., Quinlivan, J., McIntyre, S., Mendz, G. (2010). Chorioamnionitis and cerebral palsy: a meta-analysis. Obstetrics and Gynecology, 116(2 Pt 1), 387-392. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus Research Priorities for Cerebral Palsy: A Delphi Survey of Consumers, Researchers and Clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus research priorities for cerebral palsy: A Delphi survey of consumers, researchers, and clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., Foy, L. (2010). Just like you': a disability awareness programme for children that enhanced knowledge, attitudes and acceptance: pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. [More Information]
  • Novak, I., McIntyre, S. (2010). The effect of education with workplace supports on practitioners' evidence-based practice knowledge and implementation behaviours. Australian Occupational Therapy Journal, 57(6), 386-393. [More Information]
  • Cusick, A., Convey, M., Novak, I., McIntyre, S. (2009). Employer sponsored occupational therapy professional development in a multi-campus facility: a quality project. Australian Occupational Therapy Journal, 56(4), 229-238. [More Information]

2018

  • Schiariti, V., Fowler, E., Brandenburg, J., Levey, E., McIntyre, S., Sukal-Moulton, T., Ramey, S., Rose, J., Sienko, S., Stashinko, E., et al (2018). A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Developmental Medicine and Child Neurology, 60(10), 976-986. [More Information]
  • Goldsmith, S., McIntyre, S., Badawi, N., Hansen, M. (2018). Cerebral palsy after assisted reproductive technology: a cohort study. Developmental Medicine and Child Neurology, 60(1), 73-80. [More Information]
  • Goldsmith, S., Garcia Jalon, G., Badawi, N., Blair, E., Garne, E., Gibson, C., McIntyre, S., Scott, H., Smithers-Sheedy, H., Andersen, G. (2018). Comprehensive investigation of congenital anomalies in cerebral palsy: protocol for a European-Australian population-based data linkage study (The Comprehensive CA-CP Study). BMJ Open, 8(7), e022190. [More Information]
  • Shepherd, E., Salam, R., Middleton, P., Han, S., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2018). Neonatal interventions for preventing cerebral palsy: An overview of Cochrane Systematic Reviews. Cochrane Database of Systematic Reviews, 2018 (6), 1-176. [More Information]
  • McIntyre, S. (2018). The continually changing epidemiology of cerebral palsy. Acta Paediatrica, 107(3), 374-375. [More Information]

2017

  • Shepherd, E., Salam, R., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2017). Antenatal and intrapartum interventions for preventing cerebral palsy: An overview of Cochrane systematic reviews. Cochrane Database of Systematic Reviews, 2017 (8), 1-99. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital cytomegalovirus among children with cerebral palsy. Obstetrical and Gynecological Survey, 72(7), 403-405. [More Information]
  • Smithers-Sheedy, H., Raynes-Greenow, C., Badawi, N., Fernandez, M., Kesson, A., McIntyre, S., Leung, K., Jones, C. (2017). Congenital Cytomegalovirus among Children with Cerebral Palsy. The Journal of Pediatrics, 181, 267-271. [More Information]
  • Novak, I., Morgan, C., Adde, L., Blackman, J., Boyd, R., Brunstom-Hernandez, J., Cioni, G., Damiano, D., Darrah, J., Eliasson, A., Karlsson, P., Loughran-Fowlds, A., McIntyre, S., Shepherd, R., Thornton, M., Walker, K., White, R., Badawi, N., et al (2017). Early, Accurate Diagnosis and Early Intervention in Cerebral Palsy: Advances in Diagnosis and Treatment. JAMA Pediatrics, 171(9), 897-907. [More Information]
  • Mehta, S., Joshi, A., Bajuk, B., Badawi, N., McIntyre, S., Lui, K. (2017). Eligibility criteria for therapeutic hypothermia: From trials to clinical practice. Journal of Paediatrics and Child Health, 53(3), 295-300. [More Information]

2016

  • Smithers-Sheedy, H., McIntyre, S., Gibson, C., Meehan, E., Scott, H., Goldsmith, S., Watson, L., Badawi, N., Walker, K., Novak, I., et al (2016). A special supplement: findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 5-10. [More Information]
  • Goldsmith, S., McIntyre, S., Smithers-Sheedy, H., Blair, E., Cans, C., Watson, L., Yeargin-Allsopp, M. (2016). An international survey of cerebral palsy registers and surveillance systems. Developmental Medicine and Child Neurology, 58(Suppl. 2), 11-17. [More Information]
  • Shepherd, E., Middleton, P., Makrides, M., McIntyre, S., Badawi, N., Crowther, C. (2016). Antenatal and intrapartum interventions for prevening cerebral palsy: an overview of Cochrane systematic reviews (Protocol). Cochrane Database of Systematic Reviews, 2, 1-12. [More Information]
  • Badawi, N., Balde, I., Goldsmith, S., Karlsson, P., McIntyre, S., Novak, I., Smithers-Sheedy, H., Edwards, K., O'Kearney, E., Tessman, K., et al (2016). Australia and the Australian Cerebral Palsy Register for the birth cohort 1993 to 2006. Developmental Medicine and Child Neurology, 58(Suppl. 2), 3-4. [More Information]
  • McIntyre, S., Blair, E., Goldsmith, S., Badawi, N., Gibson, C., Scott, H., Smithers-Sheedy, H. (2016). Congenital anomalies in cerebral palsy: Where to from here? Developmental Medicine and Child Neurology, 58(Suppl. 2), 71-75. [More Information]
  • Reid, S., Meehan, E., McIntyre, S., Goldsmith, S., Badawi, N., Reddihough, D. (2016). Temporal trends in cerebral palsy by impairment severity and birth gestation. Developmental Medicine and Child Neurology, 58(Suppl. 2), 25-35. [More Information]

2015

  • Hines, M., Swinburn, K., McIntyre, S., Novak, I., Badawi, N. (2015). Infants at risk of cerebral palsy: a systematic review of outcomes used in Cochrane studies of pregnancy, childbirth and neonatology. The Journal of Maternal-Fetal and Neonatal Medicine, 28(16), 1871-1883. [More Information]

2014

  • Smithers-Sheedy, H., Badawi, N., Blair, E., Cans, C., Himmelmann, K., Krageloh-mann, I., McIntyre, S., Slee, J., Uldall, P., Watson, L., Wilson, M. (2014). What constitutes cerebral palsy in the twenty-first century? Developmental Medicine and Child Neurology, 56(4), 323-328. [More Information]

2013

  • Campbell, L., Novak, I., McIntyre, S., Lord, S. (2013). A KT intervention including the evidence alert system to improve clinician's evidence-based practice behavior-a cluster randomized controlled trial. Implementation Science, 8(1), 1-15. [More Information]
  • Novak, I., McIntyre, S., Morgan, C., Campbell, L., Dark, L., Morton, N., Stumbles, E., Wilson, S., Goldsmith, S. (2013). A systematic review of interventions for children with cerebral palsy: state of the evidence. Developmental Medicine and Child Neurology, 55(10), 885-910. [More Information]
  • Bain, E., Goodchild, L., Lontis, R., McIntyre, S., Ashwood, P., Bubner, T., Middleton, P., Crowther, C. (2013). Magnesium sulphate for the prevention of cerebral palsy in Australia and New Zealand. Australian Nursing Journal, 21(1), 34-37.
  • Crowther, C., Middleton, P., Bain, E., Ashwood, P., Bubner, T., Flenady, V., Morris, J., McIntyre, S. (2013). Working to improve survival and health for babies born very preterm: The WISH project protocol. BMC Pregnancy and Childbirth, 13, 1-7. [More Information]

2011

  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]
  • McIntyre, S., Morgan, C., Walker, K., Novak, I. (2011). Cerebral palsy-Don't delay. Developmental Disabilities Research Reviews, 17(2), 114-129. [More Information]

2010

  • Shatrov, J., Birch, S., Lam, L., Quinlivan, J., McIntyre, S., Mendz, G. (2010). Chorioamnionitis and cerebral palsy: a meta-analysis. Obstetrics and Gynecology, 116(2 Pt 1), 387-392. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus Research Priorities for Cerebral Palsy: A Delphi Survey of Consumers, Researchers and Clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • McIntyre, S., Novak, I., Cusick, A. (2010). Consensus research priorities for cerebral palsy: A Delphi survey of consumers, researchers, and clinicians. Developmental Medicine and Child Neurology, 52(3), 270-275. [More Information]
  • Ison, N., McIntyre, S., Rothery, S., Smithers-Sheedy, H., Goldsmith, S., Parsonage, S., Foy, L. (2010). Just like you': a disability awareness programme for children that enhanced knowledge, attitudes and acceptance: pilot study findings. Developmental Neurorehabilitation, 13(5), 360-368. [More Information]
  • Novak, I., McIntyre, S. (2010). The effect of education with workplace supports on practitioners' evidence-based practice knowledge and implementation behaviours. Australian Occupational Therapy Journal, 57(6), 386-393. [More Information]

2009

  • Cusick, A., Convey, M., Novak, I., McIntyre, S. (2009). Employer sponsored occupational therapy professional development in a multi-campus facility: a quality project. Australian Occupational Therapy Journal, 56(4), 229-238. [More Information]

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