About Professor Gwynnyth Llewellyn

My passion is to find health and social policy and practice solutions to enable disabled individuals and their families to fully participate in our societies.

Professor Gwynnyth Llewellyn is the international leading authority on family and disability. Her work on parenting with intellectual disability has lead national strategies in Australia, Sweden and most recently in The Netherlands.

Professor Llewellyn is Dean of the Faculty of Health Sciences, University of Sydney and Director of the Australian Family and Disability Studies Research Collaboration (www.afdsrc.org). Her research areas are in family and disability studies and in the ageing field. Her work is funded by the Australian Research Council and the National Health and Medical Research Council and by state and federal government departments. She has published widely in international and national journals and contributed book chapters and consumer resources in the field of parental disability and families with children with disabilities. She continues to supervise research candidates from many disciplines in these areas. She is currently Consulting Editor for the Scandinavian Journal of Disability Research and is an editorial board member of several international journals including the Journal of Applied Research in Intellectual Disabilities. Gwynnyth serves as a ministerial appointee to the NSW Children’s Court Advisory Committee, the NSW Department of Community Services Research Advisory Council and she is a Director of the Royal Rehabilitation Centre Sydney.    Current large scale research and development projects include Healthy Start: A national strategy for children of parents with intellectual disability in collaboration with the Parenting Research Centre; Maintaining family-based placement for children and young people with disabilities an Australian Research Council Linkage Grant with Industry Partner Department of Ageing, Disability and Home Care; and Improving the life chances of young disabled Australians an Australian Research Council Discovery Project.

Selected publications

  • Mayes, R., & Llewellyn, G. (2009). What happens to parents with intellectual disability following removal of their child in child protection proceedings? Journal of Intellectual & Developmental Disability. 34(1), 92-95.
  • Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21(4), 351-366.
  • Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2008). The reliability, validity practical utility of measuring supports using the I-CAN instrument: Part II. Journal of Applied Research in Intellectual Disability, DOI 10.1111/j.468-48.2008.00467.x
  • Riches, V., Parmenter, T., Llewellyn, G., Hindmarsh, G., & Chan, J. (2008). I-CAN: A new instrument to classify support needs of people with disability: Part 1. Journal of Applied Research in Intellectual Disability, DOI 10.1111/j.468-31.2008.00466.x
  • McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (2008). “Healthy Start”. A national strategy for children of parents with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5(3), 194-202.
  • McConnell, D., Llewellyn, G., & Mayes, R. (2008). Women with intellectual disabilities at risk of adverse pregnancy and birth outcomes. Journal of Intellectual Disability Research, 52(6), 529-535.
  • McConnell, D., Mayes, R., & Llewellyn, G. (2008). Prepartum distress in women with intellectual disabilities. Journal of Intellectual & Developmental Disability, 33(2), 177-183.
  • McConnell, D., Dalziel, A., Llewellyn, G., Laidlaw, K., & Hindmarsh, G. (2008). Strengthening the social relationships of mothers with learning difficulties. British Journal of Learning Disabilities, 37(1), 66-75.
  • Mayes, R., Llewellyn, G., & McConnell, D. (2008). Active negotiation: mothers with intellectual disabilities creating their social support networks. Journal of Applied Research in Intellectual Disability, 21(4), 341-350.
  • Llewellyn, G., Mayes, R., & McConnell, D. (2008). Towards acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellectual Disability, 21(4), 293-295.
  • Grace, R., Llewellyn, G., Wedgwood, N. Fenech, M., & McConnell D. (2008). Far from ideal: Everyday experiences of parents and teachers negotiating an inclusive early childhood experience in the Australian context. Topics in Early Childhood Special Education. 28(1), 18-30.
  • Emerson, E., & Llewellyn, G. (2008). The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health, 32(1), 53-59.
  • Emerson, E., Graham, H., McCulloch, A., Blacher, J., Hatton, C., & Llewellyn, G. (2008). The social context of parenting three year old children with developmental delay in the UK. Child: Care, Health & Development, 35(1), 65-70.
  • Emerson, E., Honey, A. & Llewellyn, G. (2008). The well-being and aspirations of Australian adolescents and young adults with a long-term health condition, disability or impairment. Report for ARACY. http://www.aracy.org.au//AM/Common/pdf/Wellbeing.pdf
  • Dew, A., Balandin, S., Llewellyn, G. (2008). The psychosocial impact on siblings of people with lifelong physical disability: A review of the literature. Journal of Developmental and Physical Disabilities, 20(5), 485-507.
  • Spencer, M., & Llewellyn, G. (2007). Working things out together: A collaborative approach to supporting parents with intellectual disabilities. In C. Bigby, C. Fyffe & E. Ozanne (Eds.). Planning and support for people with intellectual disabilities. Issues for case managers and other professionals (pp.171-190). London: Jessica Kingsley Press.
  • Llewellyn, G. & Wedgwood, N. (2007). What do mothers want? Why mothers of children with disabilities send their children to mainstream early childhood settings. In Alexandra M. Columbus (Ed.), Advances in Psychology Research, Vol 49, 107-135. New York: Nova.
  • Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50(12), 926-396.
  • Balandin, S., Llewellyn, G., Dew, A., Ballin, L., & Schneider, J. (2006). Older disabled workers' perceptions of volunteering. Disability and Society, 21(7), 677-692.
  • Emerson, E., Hatton, C., Llewellyn, G., Blacher, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862-873. PubMedId: 17100947
  • Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50(12), 926-936. PubMedId: 17100953
  • Balandin, S., Llewellyn, G., Dew, A., Ballin, L., & Schneider, J. (2006).  Older disabled workers’ perceptions of volunteering. Disability and Society, 21(7), 677-692. PubMedId: 16609324
  • Dew, A., Llewellyn, G., & Gorman, J. (2006). Having the time of my life: and exploratory study of women with intellectual disability growing older. Healthy Care for Women International, 27(10), 908-929. PubMedId: 17050333
  • Balandin, S., Llewellyn, G., Dew, A., & Ballin, L. (2006). We couldn’t function without volunteers: Volunteers with a disability, the perspective of the not-for-profit agencies. International Journal of Rehabilitation on Research, 29(2), 131-136. PubMedId: 16609324
  • McConnell, D., Llewellyn, G., Matthews, J., Hindmarsh, G., Mildon, R., & Wade, C. (2006). Healthy Start: a national strategy for children of parents with learning difficulties. Developing practice: The Child Youth and Family Work Journal, 16, 34-42.
  • Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 29 (12), 767-778. PubMedId: 16754574
  • Mayes, R,. Llewellyn, G., McConnell, D. (2006).  Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research, 8 (2-3), 120-131.
  • McConnell, D., Llewellyn, G., & Ferronato, L. (2006). Context contingent decision-making in child protection practice. International Journal of Social Welfare, 15, 230-239.
  • Poulos, A., Balandin, S., Llewellyn, G., & Dew, A. (2006) Women with cerebral palsy and breast cancer screening by mammography. Archives of Physical Medicine and Rehabilitation. 87(2), 304 -307. PubMedId: 16442991
  • Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household compostion, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862-873.