Dr Claudia Rutherford

Research Fellow, Quality of Life Office, School of Psychology

C39Z - The Lifehouse
The University of Sydney

Telephone 02 8627 1583

Website Contact Details
Curriculum vitae Curriculum vitae

Biographical details

Dr Rutherford is a health psychology researcher with experience in conducting systematic reviews, multi-centre qualitative and quantitative research, mixed methods during early phase testing, development and evaluation of health-related conceptual framework and patient-reported outcome (PRO), and psychometrics across multiple health conditions (including cancer). As a PRO specialist, she has a comprehensive set of methodological skills related to multi-centre research conduct and all aspects of PRO inclusion in clinical trial protocols, including: objective and hypotheses, selection of appropriate outcomes and measures, and time-points. Her current interest is in incorporating PROs into information provision, shared decision making, and the nursing curriculum.

Research interests

Research interests relate to patient-reported outcome (PRO) assessment and psycho-oncology:

  • development and evaluation of quality of life and other PRO measures, including symptom indices and cancer-specific modules,
  • development of decision support resources for patients diagnosed with ductal carcinoma in situ to support patients make properly informed, values-based treatment decisions.

Teaching and supervision

Tutor: CEPI 5308 Patient Reported Outcome Measurement (PROM), 30 students, 2016

Teaching: Psychology Honours special fields PRO seminar co-convener, 2015

Teaching: Health Outcome Measurement in Clinical Trials lecture for the Health Science Clinical Research Trials Module, University of Leeds 2011

PhD student supervision: Development and evaluation of a patient-reported outcome measure for locally recurrent rectal cancer, Faculty of Medicine and Health, University of Leeds, from Jan 2012 – Feb 2013

Current research students

Project title Research student
The impact of chemotherapy-induced alopecia and scalp cooling on adult cancer patients Jing HE

Current projects

Cancer Australia Grant: Developing a Patient-Reported Symptom Index for Non-muscle Invasive Bladder Cancer (2016-2019)

Cancer Council WA Grant: Towards development of a decision support tool for women with ductal carcinoma in situ of the breast (2015)

UK Health Technology Assessment Grant: Pressure Relieving Support Surfaces: a Randomised Evaluation (PRESSURE 2) + QOL sub-study (2013-2017)

In her role as the Quality of Life Research Fellow, Dr Rutherford provides high quality, expert advice, training and technical support services relating to the inclusion of patient-reported outcome measures into industry independent cancer clinical trials. She continues collaborations with London- and Leeds-based health outcomes researchers on multiple QOL and other PRO research.

Associations

Australia and New Zealand Breast Cancer Trials Group (ANZBCTG) SAC Supportive Care Subcommittee since Sep 2015

Australia and New Zealand Urogenital and Prostate (ANZUP) Cancer Trials Group since Jan 2015

Sydney Catalyst, Aug 2014

Cancer Research Network, Australia, May 2014

Psycho-oncology Co-operative Research Group (PoCoG), since Nov 2013. Member of the Scientific Advisory Committee.

London School of Hygiene & Tropical Medicine Health Outcomes Methodology Group, since 2007

International Society for Quality of Life Research (ISOQOL) since 2006

Awards and honours

Novice Investigator Award of EPUAP for 2010

New Investigator Poster Presentation Award of ISOQOL 2014

Selected grants

2017

  • RES: Research agreement (incorporating Clinical Data Disclosure Agreement) UoS and Uni of Leeds (Claudia Rutherford, Margaret-ann Tait); Rutherford C; University of Leeds/Research Support.
  • Upskilling our post-graduate research students to world-class standards of incorporating health-related quality of life (HR-QOL) and other patient-reported outcomes (PROs) into clinical research (Open Learning Environment - HDR); King M, Rutherford C, Mercieca-Bebber R, Smith L, Caillaud C, Burns J, March L; DVC Education/Small Educational Innovation Grant.
  • Upskilling our post-graduate research students to world-class standards of incorporating health-related quality of life (HR-QOL) and other patient-reported outcomes (PROS) into clinical research; King M, Rutherford C, Mercieca-Bebber R; University of Sydney/Strategic Education Grant.
  • Sydney Catalyst Travel and Education Award 2016; Rutherford C; University of Sydney - Sydney Catalyst Translational Cancer Research/Travel and Education Award.

2016

  • Supporting informed choice for management of screen-detected Ductal Carcinoma in Situ (DCIS) among older women (70 years and over); Hersch J, McCaffery K, Rutherford C, Houssami N, Spillane A, Saunders C; University of Sydney - Sydney Catalyst Translational Cancer Research/Pilot and Seed Funding.
  • Developing a Patient-Reported Symptom Index for Non-muscle Invasive Bladder Cancer; Patel M, Rutherford C, Hayne D, King M, Smith D, Frydenberg M, Sengupta S, Costa D; Cancer Australia/Priority Driven Collaborative Cancer Research Scheme.
  • Qualitative component of the OA Flare questionnaire development project; Rutherford C; Northern Sydney Local Health District/Research Support.

2015

  • Development of a PRO measure for osteoarthritis flare; Rutherford C; Anonymous Philanthropic/Research Support.
  • Shared decision-making for women with ductal carcinoma in situ: a pilot study; King M, Rutherford C, Butow P, Spillane A, Boxer M; Medibank Health Research Fund/Research Support.
  • Towards development of a decision support tool for women with ductal carcinoma in situ (DCIS) of the breast; Saunders C, Musiello T, King M, Butow P, Rutherford C, Burnett P, Chua B; Cancer Council Western Australia/Research Project Grant.

2014

  • An international field study of the Reliability and Validity of an EORTC breast reconstruction questionnaire to assess quality of life in all types of breast reconstruction � Phase IV; Winters Z, Rutherford C, King M; European Organisation for Research and Treatment of Cancer (EORTC)/Research Support.

2013

  • HTA 11/36/33: Pressure Relieving Support Surfaces: a Randomised Evaluation (PRESSURE 2) + QOL sub- study; Nixon J, Rutherford C, Brown J, McCabe C, Nelson E, McGinnis E, Gray J, Brown S, Hartley S, Wilson L, Stubbs N, et al V; National Institute for Health research (NIHR)/Research Support.

2012

  • Mobility outcomes in multiple sclerosis; Rutherford C, Hobart J; Multiple Sclerosis Society (UK)/Research Grant.
  • Rasch evaluation of neuropathic pain scale; Rutherford C, Nixon J, Cano J, Briggs M; Molnlycke Health Care/Research Grant.

Selected publications

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Journals

  • Rutherford, C., Costa, D., King, M., Smith, D., Patel, M. (2017). A conceptual framework for patient-reported outcomes in non-muscle invasive bladder cancer. Supportive Care in Cancer, 25, 3095-3102. [More Information]
  • Rutherford, C., Costa, D., King, M., Smith, D., Patel, M. (2017). A conceptual framework of patient-reported outcomes in non-muscle invasive bladder cancer. Supportive Care in Cancer, 25, 3095-3102. [More Information]
  • King, M., Winters, Z., Olivotto, I., Spillane, A., Chua, B., Saunders, C., Westenberg, A., Mann, G., Burnett, P., Butow, P., Rutherford, C. (2017). Patient-reported outcomes in ductal carcinoma in situ: A systematic review. European Journal of Cancer, 71, 95-108. [More Information]
  • Rutherford, C., Mercieca-Bebber, R., Butow, P., Wu, J., King, M. (2017). Treatment decision-making in ductal carcinoma in situ: A mixed methods systematic review of women's experiences and information needs. Patient Education and Counseling, 100, 1654-1666. [More Information]
  • Mercieca-Bebber, R., King, M., Boxer, M., Spillane, A., Winters, Z., Butow, P., McPherson, J., Rutherford, C. (2017). What quality-of-life issues do women with ductal carcinoma in situ (DCIS) consider important when making treatment decisions? Breast Cancer, 24, 720-729. [More Information]
  • Rutherford, C., Costa, D., Mercieca-Bebber, R., Rice, H., Gabb, L., King, M. (2016). Mode of administration does not cause bias in patient-reported outcome results: a meta-analysis. Quality of Life Research, 25(3), 559-574. [More Information]
  • Brown, S., Smith, I., Brown, J., Hulme, C., McGinnis, E., Stubbs, N., Nelson, E., Muir, D., Rutherford, C., Walker, K., et al (2016). Pressure RElieving Support SUrfaces: A Randomised Evaluation 2 (PRESSURE 2): Study protocol for a randomised controlled trial. Clinical Trials, 17(1), 1-12. [More Information]
  • Costa, D., Mercieca-Bebber, R., Rutherford, C., Gabb, L., King, M. (2016). The Impact of Cancer on Psychological and Social Outcomes. Australian Psychologist, 51, 89-99. [More Information]
  • Rutherford, C., Nixon, J., Brown, J., Briggs, M., Horton, M. (2016). The Leeds Assessment of Neuropathic Symptoms and Signs Scale (LANSS) is not an adequate outcome measure of pressure ulcer-related neuropathic pain. European Journal of Pain, 20(10), 1710-1720. [More Information]
  • Nixon, J., Nelson, E., Rutherford, C., Coleman, S., Muir, D., Keen, J., McCabe, C., Dealey, C., Briggs, M., Brown, S., et al (2015). Pressure UlceR Programme Of reSEarch (PURPOSE): using mixed methods (systematic reviews, prospective cohort, case study, consensus and psychometrics) to identify patient and organisational risk, develop a risk assessment tool and patient-reported outcome Quality of Life and Health Utility measures. Programme Grants for Applied Research, 3(6). [More Information]
  • McGinnis, E., Nelson, E., Gorecki, C., Nixon, J. (2015). What is different for people with MS who have pressure ulcers: a reflective study of peoples quality of life? Care: Science and Practice, 24(3), 83-90. [More Information]
  • Bryant, M., Ashton, L., Nixon, J., Jebb, S., Wright, J., Roberts, K., Brown, J., Gorecki, C. (2014). Framework of outcome measures recommended for use in the evaluation of childhood obesity treatment interventions: the CoOR framework. Pediatric Obesity, 9(6), e116-e131. [More Information]
  • Gorecki, C., Nixon, J., Lamping, D., Alavi, Y., Brown, J. (2014). Patient-reported outcome measures for chronic wounds with particular reference to pressure ulcer research: A systematic review. International Journal of Nursing Studies, 51(1), 157-165. [More Information]
  • Rutherford, C., Nixon, J., Brown, J., Lamping, D., Cano, S. (2014). Using mixed methods to select optimal mode of administration for a patient-reported outcome instrument for people with pressure ulcers. BMC Medical Research Methodology, 14(1), 1-8. [More Information]
  • Marin, J., Nixon, J., Gorecki, C. (2013). A systematic review of risk factors for the development and recurrence of pressure ulcers in people with spinal cord injuries. Spinal Cord, 51(7), 522-527. [More Information]
  • Gorecki, C., Brown, J., Cano, S., Lamping, D., Briggs, M., Coleman, S., Dealey, C., McGinnis, E., Nelson, A., Stubbs, N., et al (2013). Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: The PU-QOL instrument. Health and Quality of Life Outcomes, 11(1), 1-12. [More Information]
  • Firth, J., Nelson, A., Briggs, M., Gorecki, C. (2013). Experiences of Healthcare Provision for Foot Ulceration Occurring in People with Rheumatoid Arthritis. Musculoskeletal Care, 11(3), 159-167. [More Information]
  • Coleman, S., Gorecki, C., Nelson, E., Closs, S., Defloor, T., Halfens, R., Farrin, A., Brown, J., Schoonhoven, L., Nixon, J. (2013). Patient risk factors for pressure ulcer development: Systematic review. International Journal of Nursing Studies, 50(7), 974-1003. [More Information]
  • Gorecki, C., Lamping, D., Nixon, J., Brown, J., Cano, S. (2012). Applying mixed methods to pretest the Pressure Ulcer Quality of Life (PU-QOL) instrument. Quality of Life Research, 21(3), 441-451. [More Information]
  • Gorecki, C., Nixon, J., Madill, A., Firth, J., Brown, J. (2012). What influences the impact of pressure ulcers on health-related quality of life? A qualitative patient-focused exploration of contributory factors. Care: Science and Practice, 21(1), 3-12. [More Information]
  • Firth, J., Nelson, E., Briggs, M., Gorecki, C. (2011). A qualitative study to explore the impact of foot ulceration on health-related quality of life in patients with rheumatoid arthritis. International Journal of Nursing Studies, 48(11), 1401-1408. [More Information]
  • Sopher, R., Nixon, J., Gorecki, C., Gefen, A. (2011). Effects of Intramuscular Fat Infiltration, Scarring, and Spasticity on the Risk for Sitting-Acquired Deep Tissue Injury in Spinal Cord Injury Patients. Journal of Biomechanical Engineering, 133(2), 021011-1-021011-12. [More Information]
  • Gorecki, C., Closs, S., Nixon, J., Briggs, M. (2011). Patient-Reported Pressure Ulcer Pain: A Mixed-Methods Systematic Review. Journal of Pain and Symptom Management, 42(3), 443-459. [More Information]
  • Gorecki, C., Lamping, D., Brown, J., Madill, A., Firth, J., Nixon, J. (2010). Development of a conceptual framework of health-related quality of life in pressure ulcers: A patient-focused approach. International Journal of Nursing Studies, 47(12), 1525-1534. [More Information]
  • Gorecki, C., Brown, J., Briggs, M., Nixon, J. (2010). Evaluation of five search strategies in retrieving qualitative patient-reported electronic data on the impact of pressure ulcers on quality of life. Journal of Advanced Nursing, 66(3), 645-652. [More Information]
  • Sopher, R., Nixon, J., Gorecki, C., Gefen, A. (2010). Exposure to internal muscle tissue loads under the ischial tuberosities during sitting is elevated at abnormally high or low body mass indices. Journal of Biomechanics, 43(2), 280-286. [More Information]
  • Gorecki, C., Brown, J., Nelson, E., Briggs, M., Schoonhoven, L., Dealey, C., Defloor, T., Nixon, J. (2009). Impact of Pressure Ulcers on Quality of Life in Older Patients: A Systematic Review. Journal of the American Geriatrics Society, 57(7), 1175-1183. [More Information]

2017

  • Rutherford, C., Costa, D., King, M., Smith, D., Patel, M. (2017). A conceptual framework for patient-reported outcomes in non-muscle invasive bladder cancer. Supportive Care in Cancer, 25, 3095-3102. [More Information]
  • Rutherford, C., Costa, D., King, M., Smith, D., Patel, M. (2017). A conceptual framework of patient-reported outcomes in non-muscle invasive bladder cancer. Supportive Care in Cancer, 25, 3095-3102. [More Information]
  • King, M., Winters, Z., Olivotto, I., Spillane, A., Chua, B., Saunders, C., Westenberg, A., Mann, G., Burnett, P., Butow, P., Rutherford, C. (2017). Patient-reported outcomes in ductal carcinoma in situ: A systematic review. European Journal of Cancer, 71, 95-108. [More Information]
  • Rutherford, C., Mercieca-Bebber, R., Butow, P., Wu, J., King, M. (2017). Treatment decision-making in ductal carcinoma in situ: A mixed methods systematic review of women's experiences and information needs. Patient Education and Counseling, 100, 1654-1666. [More Information]
  • Mercieca-Bebber, R., King, M., Boxer, M., Spillane, A., Winters, Z., Butow, P., McPherson, J., Rutherford, C. (2017). What quality-of-life issues do women with ductal carcinoma in situ (DCIS) consider important when making treatment decisions? Breast Cancer, 24, 720-729. [More Information]

2016

  • Rutherford, C., Costa, D., Mercieca-Bebber, R., Rice, H., Gabb, L., King, M. (2016). Mode of administration does not cause bias in patient-reported outcome results: a meta-analysis. Quality of Life Research, 25(3), 559-574. [More Information]
  • Brown, S., Smith, I., Brown, J., Hulme, C., McGinnis, E., Stubbs, N., Nelson, E., Muir, D., Rutherford, C., Walker, K., et al (2016). Pressure RElieving Support SUrfaces: A Randomised Evaluation 2 (PRESSURE 2): Study protocol for a randomised controlled trial. Clinical Trials, 17(1), 1-12. [More Information]
  • Costa, D., Mercieca-Bebber, R., Rutherford, C., Gabb, L., King, M. (2016). The Impact of Cancer on Psychological and Social Outcomes. Australian Psychologist, 51, 89-99. [More Information]
  • Rutherford, C., Nixon, J., Brown, J., Briggs, M., Horton, M. (2016). The Leeds Assessment of Neuropathic Symptoms and Signs Scale (LANSS) is not an adequate outcome measure of pressure ulcer-related neuropathic pain. European Journal of Pain, 20(10), 1710-1720. [More Information]

2015

  • Nixon, J., Nelson, E., Rutherford, C., Coleman, S., Muir, D., Keen, J., McCabe, C., Dealey, C., Briggs, M., Brown, S., et al (2015). Pressure UlceR Programme Of reSEarch (PURPOSE): using mixed methods (systematic reviews, prospective cohort, case study, consensus and psychometrics) to identify patient and organisational risk, develop a risk assessment tool and patient-reported outcome Quality of Life and Health Utility measures. Programme Grants for Applied Research, 3(6). [More Information]
  • McGinnis, E., Nelson, E., Gorecki, C., Nixon, J. (2015). What is different for people with MS who have pressure ulcers: a reflective study of peoples quality of life? Care: Science and Practice, 24(3), 83-90. [More Information]

2014

  • Bryant, M., Ashton, L., Nixon, J., Jebb, S., Wright, J., Roberts, K., Brown, J., Gorecki, C. (2014). Framework of outcome measures recommended for use in the evaluation of childhood obesity treatment interventions: the CoOR framework. Pediatric Obesity, 9(6), e116-e131. [More Information]
  • Gorecki, C., Nixon, J., Lamping, D., Alavi, Y., Brown, J. (2014). Patient-reported outcome measures for chronic wounds with particular reference to pressure ulcer research: A systematic review. International Journal of Nursing Studies, 51(1), 157-165. [More Information]
  • Rutherford, C., Nixon, J., Brown, J., Lamping, D., Cano, S. (2014). Using mixed methods to select optimal mode of administration for a patient-reported outcome instrument for people with pressure ulcers. BMC Medical Research Methodology, 14(1), 1-8. [More Information]

2013

  • Marin, J., Nixon, J., Gorecki, C. (2013). A systematic review of risk factors for the development and recurrence of pressure ulcers in people with spinal cord injuries. Spinal Cord, 51(7), 522-527. [More Information]
  • Gorecki, C., Brown, J., Cano, S., Lamping, D., Briggs, M., Coleman, S., Dealey, C., McGinnis, E., Nelson, A., Stubbs, N., et al (2013). Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: The PU-QOL instrument. Health and Quality of Life Outcomes, 11(1), 1-12. [More Information]
  • Firth, J., Nelson, A., Briggs, M., Gorecki, C. (2013). Experiences of Healthcare Provision for Foot Ulceration Occurring in People with Rheumatoid Arthritis. Musculoskeletal Care, 11(3), 159-167. [More Information]
  • Coleman, S., Gorecki, C., Nelson, E., Closs, S., Defloor, T., Halfens, R., Farrin, A., Brown, J., Schoonhoven, L., Nixon, J. (2013). Patient risk factors for pressure ulcer development: Systematic review. International Journal of Nursing Studies, 50(7), 974-1003. [More Information]

2012

  • Gorecki, C., Lamping, D., Nixon, J., Brown, J., Cano, S. (2012). Applying mixed methods to pretest the Pressure Ulcer Quality of Life (PU-QOL) instrument. Quality of Life Research, 21(3), 441-451. [More Information]
  • Gorecki, C., Nixon, J., Madill, A., Firth, J., Brown, J. (2012). What influences the impact of pressure ulcers on health-related quality of life? A qualitative patient-focused exploration of contributory factors. Care: Science and Practice, 21(1), 3-12. [More Information]

2011

  • Firth, J., Nelson, E., Briggs, M., Gorecki, C. (2011). A qualitative study to explore the impact of foot ulceration on health-related quality of life in patients with rheumatoid arthritis. International Journal of Nursing Studies, 48(11), 1401-1408. [More Information]
  • Sopher, R., Nixon, J., Gorecki, C., Gefen, A. (2011). Effects of Intramuscular Fat Infiltration, Scarring, and Spasticity on the Risk for Sitting-Acquired Deep Tissue Injury in Spinal Cord Injury Patients. Journal of Biomechanical Engineering, 133(2), 021011-1-021011-12. [More Information]
  • Gorecki, C., Closs, S., Nixon, J., Briggs, M. (2011). Patient-Reported Pressure Ulcer Pain: A Mixed-Methods Systematic Review. Journal of Pain and Symptom Management, 42(3), 443-459. [More Information]

2010

  • Gorecki, C., Lamping, D., Brown, J., Madill, A., Firth, J., Nixon, J. (2010). Development of a conceptual framework of health-related quality of life in pressure ulcers: A patient-focused approach. International Journal of Nursing Studies, 47(12), 1525-1534. [More Information]
  • Gorecki, C., Brown, J., Briggs, M., Nixon, J. (2010). Evaluation of five search strategies in retrieving qualitative patient-reported electronic data on the impact of pressure ulcers on quality of life. Journal of Advanced Nursing, 66(3), 645-652. [More Information]
  • Sopher, R., Nixon, J., Gorecki, C., Gefen, A. (2010). Exposure to internal muscle tissue loads under the ischial tuberosities during sitting is elevated at abnormally high or low body mass indices. Journal of Biomechanics, 43(2), 280-286. [More Information]

2009

  • Gorecki, C., Brown, J., Nelson, E., Briggs, M., Schoonhoven, L., Dealey, C., Defloor, T., Nixon, J. (2009). Impact of Pressure Ulcers on Quality of Life in Older Patients: A Systematic Review. Journal of the American Geriatrics Society, 57(7), 1175-1183. [More Information]

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