Artful: Art and Dementia program
In 2016, Philip noticed a change in his communication. His speech became slower, and he struggled to find the right words. "I was having problems finding words and pronouncing them," he says. Concerned, he sought specialist consultations, which eventually led to a diagnosis in 2018—Philip was diagnosed with the logopenic variant of primary progressive aphasia at the young age of 56.
Philip's journey reflects a shared experience among those diagnosed during their midlife. He's a research participant with the FRONTIER Research Group, a specialist research group in younger onset dementias—diagnoses occurring before the age of 65.
Philip's diagnosis forced him to retire and find new ways to fill his days. "I now try to keep active in other ways," he shares. "I jog, go to the gym, visit the beach, volunteer at Salvos, play the drums, and sing in a choir."
This year, FRONTIER partnered with The Artful: Art and Dementia program at the Museum of Contemporary Art.
"We wanted to capitalise on our existing partnership with the Brain and Mind Centre and the MCA Artful program to highlight ways to live well with dementia and shed light on younger-onset dementias,” says Dr David Foxe, Senior Research Officer with FRONTIER. “Working with Michelle Heldon, the Artful Producer, has been exceptionally fruitful."
Through FRONTIER, Philip was able to participate in this term’s art program, even though he had no prior art experience.
I have really enjoyed it. Everyone is very nice and gets along really well. I've been enjoying the classes and even doing my art homework.
Philip was diagnosed with the logopenic variant of primary progressive aphasia at the young age of 56.
I'm encouraged by all the participants' willingness to share their stories right from the start. Phil's sharing was a standout moment, despite his word-finding difficulties. Moments like this, which people like Phil bring, highlight the supportive, connective space created in Artful. Creativity can reignite hope, bring joy, foster new connections, and facilitate healing.
The culmination of this term’s Artful program will be celebrated with an exhibition at the MCA, showcasing the participants' artworks.
More information and help
For more information on younger-onset dementias and primary progressive aphasia, visit the FRONTIER Research Group website. Clinicians interested in referring patients to the FRONTIER Research Group at the Brain and Mind Centre can email frontier@sydney.edu.au.
Acknowledgements
Artful: Art and Dementia Major Patron
Leyla Stevens, Labours for Colour, 2021, installation view MCA Collection: Artists in Focus, Museum of Contemporary Art Australia, dual-channel video, colour, stereo sound, Museum of Contemporary Art Australia, purchased with funds provided by the MCA Foundation 2022, image courtesy and © the artist.