"People sometimes say to me 'I know what it's like'. And I sit there and think, you don't know what it's like to be chronically ill at 14, and watch nine of your friends die from cystic fibrosis."
Now 19 years of age, Kylie commends the Chronic Illness Peer Support program (CHIPS) at The Children's Hospital Westmead for helping her deal with cystic fibrosis.
"Before I got my transplant I was in hospital almost all year. I was on a lot of morphine because my lungs were collapsing... I was depressed, I didn't want to see anybody and I just locked myself away. CHIPS was the only thing I got motivated to drag myself out of bed for. I really enjoyed meeting with my group - it's been great to find out how other young people have dealt with their various illnesses."
This year, Kylie had a double lung transplant and returned to school to complete year 12.
"I want to be a social worker. I'd like to use all my horrible experiences in a positive way. I'll be able to say to people, I know what it's like, because I do!"