Care - Sydney Policy Lab
A woman with a mask speaks at the Westmead people's assembly
Research_

Championing Australia’s Relational Economy

The CARE program
The Sydney Policy Lab is taking a community-led approach to embedding person-centred principles, values and practices in Australian public policy.

The CARE program – Championing Australia’s Relational Economy – at the Sydney Policy Lab seeks to elevate care in society through exploratory and applied research that embeds person-centred principles, values and practices in Australian public policy.

The program is an umbrella for the Lab’s multidisciplinary, community-centred research across the lifespan. We work with people across the University of Sydney alongside the expertise and wisdom of CARE partners in the community. The program’s strength is its commitment to partnership with communities, practitioners, researchers and policymakers in Australia and internationally.

Principles of CARE

Community collaborators in the work of the program have been clear: we must do better. Care policy should be underpinned by an interconnected set of principles and lead to a fundamental redesign of our systems. The four co-designed principles of care that steer the program transcend people, contexts and specialties.

It’s time to transition to a new way of thinking about and doing care policy, to focus on relationships and the relational economy that can drive innovative solutions for the future.

Governments at local, state and federal levels now have the opportunity – and need – to look beyond their near-term agendas in which they have sought to address the most urgent and pressing failures in current systems and policies related to care.

We are now engaged in a program of community-led policy development work that responds to and develops the framework of action co-designed through the Australia Cares project between 2022 and 2024.

Recent publications

We are looking forward to sharing exciting news about upcoming projects in the program soon. Browse recent publications that inform the direction of our work.

2024
2023

Caring communities webinars

We have heard directly from people in communities that they want to talk about what care looks like for people across Australia, hear the latest thinking and discuss what’s working well or could be done differently.

Responding to this, the CARE program has begun a series of online talks on latest thinking across a range of topics followed by opportunity for audience Q&A and discussion.

Past Sydney Policy Lab care projects

Australia Cares aims to radically transform Australia’s systems, practices and cultures of care. Working from 2022 until 2024 and building on the momentum for change generated by the Covid-19 pandemic, this initiative emerged from a diverse coalition of people across care communities, researchers and policymakers. This is not another welfare reform project, but something that aims to challenge the way we live and the way we organise our communities.

Read more about the Australia Cares project.

Data is increasingly used to direct services, secure funding and influence policy. However, for the disability community in Australia, access to high quality data is significantly lacking. 

The National Disability Data Asset (NDDA) is an ambitious initiative involving federal, state and territory governments that aims to better understand the experiences of people with disability by linking de-identified data across a range of domains including education, health, justice and employment. 

In 2022 Sydney Policy Lab was engaged by the NDDA National Project Team to capture the perspectives of members of the disability community to the idea of a NDDA in Australia.

The Lab’s interviews and workshops identified participants’ hopes that the NDDA will improve the quality and availability of data about people with disability, and that this improved data will be used to create positive change for people with disability. 

The clearest single insight to emerge from the research was that participants’ support for the NDDA was dependent on the meaningful involvement of people with disability in the Asset’s design, governance and operation. 

Read the No Data About Us Without Us report here.

Research team: Dr Emma Calgaro, Dr Juliet Bennett, Dr Sheelagh Daniel-Mayes, Dr Leigh-Anne Hepburn, Professor Kimberlee Weatherall, Libby Young, Louise Beehag, Amy Tong and Professor Marc Stears

Project partner: The National Disability Data Asset National Project Team

How do we collectively meet the needs and aspirations of the communities we serve?

One of the fundamental tasks of any government is to ensure the people and communities, especially those experiencing disadvantage, have access to the services and supports they need to lead full lives. But getting it right is extraordinarily difficult. Historically, governments have tried to rise to the task through welfare states and the introduction of corporate principles to public governance, yet many citizens remain dissatisfied with their experience.

Since the late 1990s, “commissioning” as a term has gained steady ground as a promising new approach to the design and delivery of human services, including in Australia. But what is commissioning? How is it different from previous methods of contracting service providers? And, most importantly, can it put people’s needs and aspirations at the centre of service design and delivery? These are the questions we explored with a coalition of peak bodies in the NSW community sector, guided by the central question: what is our collective vision and how do we build the relationships to move forward together to meet the needs of the communities we serve?

The resulting research brought together state-of-the-art academic knowledge, international best-practice expertise and deep local experience. It offers a new framework for commissioners to engage with in any given experiment, called “the commissioning jigsaw” as well four fundamental principles which, when taken together, form a lens through which the government and community sector ought to approach the design of commissioning initiatives in NSW: putting relationships first, letting communities lead, embedding learning and investing in people.

Download the full report (pdf, 8MB) or read more here

Research team: Professor Susan Goodwin, Professor Marc Stears, Dr Elaine Fishwick, Lisa Fennis and Mark Riboldi.

Project partners: The Centre for Volunteering, Churches Housing, Domestic Violence NSW, Fams, Homelessness NSW, Local Community Services Association (LCSA), NSW Council of Social Services (NCOSS), Shelter NSW, Y Foundations and Youth Action.

Despite all the talk of being “in it together”, the COVID-19 pandemic and the resulting lockdowns have had dramatically varied effects on different communities across Australia and the world. Many autistic people felt unsupported. In 2020 the Lab collaborated with Macquarie University, RMIT University, the University of Western Australia and Reframing Autism on a first major investigation into the impact of the COVID-19 lockdowns on autistic people and their families. The report makes five key conclusions intended to influence ongoing policy responses. 

Read the full report here.  

Research team: Professor Liz Pellicano, Dr Simon Brett, Dr Jac den Houting, Dr Melanie Heyworth, Dr Iliana Magiati, Robyn Steward, Dr Anna Urbanowicz and Professor Marc Stears

Project partner: Reframing Autism

In November 2020, globally-acclaimed social reformer, Hilary Cottam, shared her vision and methods with an Australian audience at the Sydney Policy Lab’s annual event. Hilary was joined by Jon Owen, CEO and Pastor at The Wayside Chapel; Sophie Stewart, Campaign Coordinator at Social Reinvest WA; Dean Mosquito, Director and Youth Engagement Night Officer at Olabud Doogethu; Malcolm Edwards, Shire President of Shire of Halls Creek in WA; and Marc Stears, Director of the Sydney Policy Lab. The big question the speakers were asked was: how can we seize the once in a lifetime opportunity the COVID-19 pandemic provides to build a society in which everyone can find the support and care they need to flourish?

Read more about five key things we learnt here.

In 2017 and 2018, Professor Smith-Merry and her team, in collaboration with Community Mental Health Australia, investigated the roll-out of the National Disability Insurance Scheme (NDIS). The project found severe gaps in implementation —91% of people with severe mental illness will fall through the cracks of the NDIS— and worked with consumers, carers and practitioners from over 58 stakeholder organisations to propose solutions.

The report generated significant media interest, was tabled in Parliament and used to question the National Disability Insurance Agency (NDIA). 

Read the report here

Research team: Professor Jennifer Smith-Merry, Dr Nicola Hancock, Dr John Gilroy, Professor Gwynnyth Llewellyn, Ms Ivy Yen and Ms Amanda Bresnan.

Project partner: Community Mental Health Australia

Community-embedded projects are the engine driving the CARE program
Professor Brendan McCormack
Academic chair