Associate Professor Sarah Bernays
People_

Associate Professor Sarah Bernays

Associate Professor in Global Health
Sydney School of Public Health
Associate Professor in Global Health
London School of Hygiene and Tropical Medicine
Associate Professor Sarah Bernays

I am co-director of the Masters of Global Health programme and run a social science programme of research focused on supporting community engagement in infectious disease prevention, treatment and care.

A consistent concern throughout all my research to date has been how individuals, households and communities respond to health adversity, risk and vulnerability and what fosters and sustains resilience and hope. Since 2011 I have been developing and leading a large qualitative research programme focusing on adolescent global health in low and high income countries, with a particular focus on sexual and reproductive health as well as substance use. I moved from the London School of Hygiene and Tropical Medicine (LSHTM) and began working at the University of Sydney in 2017.

Having studied Social Anthropology at Edinburgh University, I began working at the Centre for Research on Drugs and Health Behaviour in 2005 which transferred from Imperial College to LSHTMin 2006. Whilst working I completed my PhD in Medical Sociology in 2011, which examined the process of and influences on coping, hoping and community action amongst people living with HIV/AIDS in Serbia. Prior to working at LSHTM I worked in HIV community work in the UK, East and West Africa and the South West Pacific.

My current research focuses on adolescent global health. I run a qualitative longitudinal research programme exploring the experiences of young people growing with HIV and/ or exposed to high HIV risk. The programme includes a number of qualitative studies being run in Uganda, Zimbabwe and South Africa- as well as the United Kingdom and the United States of America.Many of these qualitative research studies are embedded within large international clinical trials and we are developing innovative methods for conducting research with vulnerable families. As such, although my primary expertise is in qualitative methodologies, I tend to work in a large multidisciplinary team and collaborate with clinicians, epidemiologists, ethicists and statisticians to address research questions through multiple methods.My main aim is to develop theoretically informed qualitative evidence, which can have an applied impact on improving adolescent health.

The development of aYouth Trials Boardmodel, which aims to develop a simple low-cost model of meaningful engagement and participationof adolescent patient representatives in paediatric clinical trials and research studies. This is being developed and piloted with teams of young people and clinical researchers in UK, Uganda, Zimbabwe and South Africa.

I am the social science lead on the 'Zvandirai trial', which is alarge evaluation of a community peer support programme in Zimbabwe, employing a cluster randomised trial design. This is an exciting and innovative study aiming to assess whether peer support can have a significant affect on individuals' viral load. Our team are reponsible for an extensive qualitative study and the process evaluation components of this trial. This trial is a collaboration between CeSHAAR, AfricAid, LSHTM and USyd.

'ODYSSEY- social science'is a large qualitative study within a clinical trial based in Uganda and Zimbabwe on the experiences of young people living with HIV who are moved onto second line Anti-retroviral Therapy and is aimed at developing more appropriate and effective adherence support for those on second line. This study is being conducted in collaboration with the Clincial TRials Unit (CTU) at University College London (UCL).

I am in the process of completing the following studies.

BREATHER Plus- Examining the acceptability of the Short Cycle Therapy(five days on anti-retroviral treatment and two days off), which is a behavioural and clinical intervention, to improve adherence amongst young people living with HIV (10-24 years old). This is a longitudinal study (starting in 2011) using mixed qualitative methods with approximately 50 participants (repeat in-depth interviews, focus groups and audio diaries) with a cohort of clinical trial participants and their carers in Uganda, UK and the USA. This has been run in collaboration with the CTU at UCL.

Growing up alongside HIV, is also a longitudinal study exploring the experiences of young people and their carers (a sample of 60 12-24 years olds and 30 carers) in three settings of high HIV prevalence in Uganda. This study examines how risks and harm reduction strategies are influenced by poverty, gender, HIV status and substance use.

Reproductive, Maternal and Child Health
Project titleResearch student
“Are communities leading the way?”: Assessing community stakeholder involvement in Pandemic Prevention, Preparedness and Response (PPPR) planning and oversight in Malawi and ZambiaMaureen LUBA
The Subtle Art of Learning in Health SystemsKyaw Myat THU
Local (Sense-) Making of Health Policies: An Ethnographic Case Study of Policy Formulation and Implementation Addressing Tuberculosis Infection in VietnamDuy TRINH-HOANG

Publications

Edited Books

  • Bernays, S., Bourne, A., Kippax, S., Aggleton, P., Parker, R. (2021). Remaking HIV Prevention in the 21st Century The Promise of TasP, U=U and PrEP. Cham: Springer Nature Switzerland. [More Information]

Book Chapters

  • Nafria Escalera, B., Bernays, S., Conway, M., Getz, K., Jafta, L., Stones, S. (2024). The patients’/parents’ voice within pediatric drug research. In Elke Gasthuys, Karel Allegaert, Lien Dossche, Mark Turner (Eds.), Essentials of Translational Pediatric Drug Development: From Past Needs to Future Opportunities, (pp. 629-661). United Kingdom: Academic Press. [More Information]
  • Bernays, S., Lariat, J. (2023). Innovation in HIV prevention technologies: The currents and eddies of progress within and across contexts. In Peter Aggleton, Rob Cover, Carmen H. Logie, Christy E. Newman, Richard Parker (Eds.), Routledge Handbook of Sexuality, Gender, Health and Rights: Second Edition, (pp. 388-397). Abingdon, Oxon: Routledge. [More Information]
  • Bernays, S., Bourne, A., Kippax, S., Aggleton, P., Parker, R. (2021). Remaking HIV Prevention: The Promise of TasP, U=U and PrEP. In Sarah Bernays, Adam Bourne, Susan Kippax, Peter Aggleton, Richard Parker (Eds.), Remaking HIV Prevention in the 21st Century The Promise of TasP, U=U and PrEP, (pp. 1-18). Cham: Springer Nature Switzerland. [More Information]

Journals

  • Dambi, J., Cowan, F., Martin, F., Sibanda, S., Simms, V., Willis, N., Bernays, S., Mavhu, W. (2024). A conceptualization and psychometric evaluation of positive psychological outcome measures used in adolescents and young adults living with HIV: A mixed scoping and systematic review. PLoS Global Public Health, 4(8). [More Information]
  • Banati, P., Ross, D., Weobong, B., Kapiga, S., Weiss, H., Baltag, V., Nzvere, F., Glozah, F., Nsanya, M., Greco, G., Bernays, S., et al (2024). Adolescent health and well-being check-up programme in three African cities (Y-Check): protocol for a multimethod, prospective, hybrid implementation-effectiveness study. BMJ Open, 14(6). [More Information]
  • Dziva Chikwari, C., Kranzer, K., Simms, V., Patel, A., Tembo, M., Mugurungi, O., Sibanda, E., Mufare, O., Ndlovu, L., Muzangwa, J., Bernays, S., et al (2024). Differentiated care for youth in Zimbabwe: Outcomes across the HIV care cascade. PLoS Global Public Health, 4(2024-02-02 00:00:00). [More Information]

2024

  • Dambi, J., Cowan, F., Martin, F., Sibanda, S., Simms, V., Willis, N., Bernays, S., Mavhu, W. (2024). A conceptualization and psychometric evaluation of positive psychological outcome measures used in adolescents and young adults living with HIV: A mixed scoping and systematic review. PLoS Global Public Health, 4(8). [More Information]
  • Banati, P., Ross, D., Weobong, B., Kapiga, S., Weiss, H., Baltag, V., Nzvere, F., Glozah, F., Nsanya, M., Greco, G., Bernays, S., et al (2024). Adolescent health and well-being check-up programme in three African cities (Y-Check): protocol for a multimethod, prospective, hybrid implementation-effectiveness study. BMJ Open, 14(6). [More Information]
  • Dziva Chikwari, C., Kranzer, K., Simms, V., Patel, A., Tembo, M., Mugurungi, O., Sibanda, E., Mufare, O., Ndlovu, L., Muzangwa, J., Bernays, S., et al (2024). Differentiated care for youth in Zimbabwe: Outcomes across the HIV care cascade. PLoS Global Public Health, 4(2024-02-02 00:00:00). [More Information]

2023

  • Lariat, J., Chikwari, C., Dauya, E., Baumu, V., Kaisi, V., Kafata, L., Meza, E., Simms, V., Mackworth-Young, C., Rochford, H., Bernays, S., et al (2023). "It's not safe for me and what would it achieve?" Acceptability of patient-referral partner notification for sexually transmitted infections to young people, a mixed methods study from Zimbabwe. Sexual and Reproductive Health Matters, 31(1), 2220188. [More Information]
  • Seeley, J., Kawuma, R., Tumwesige, E., Asiimwe, A., Lanyon, C., Bernays, S. (2023). `I now have so many friends!’ how young migrants describe their quest to belong in a town in southern Uganda. International Journal of Adolescence and Youth, 28(1), 2277384. [More Information]
  • Larsson, L., Dziva Chikwari, C., Simms, V., Tembo, M., Mahomva, A., Mugurungi, O., Hayes, R., Mackworth-Young, C., Bernays, S., Mavodza, C., et al (2023). Addressing sociodemographic disparities in COVID-19 vaccine uptake among youth in Zimbabwe. BMJ Global Health, 8(7). [More Information]

2022

  • Thu, K., Bernays, S., Abimbola, F. (2022). A literature review exploring how health systems respond to acute shocks in fragile and conflict-affected countries. Conflict and Health, 16(1). [More Information]
  • Doyle, A., Chikwari, C., Majozi, N., Simwinga, M., Mayingire, G., Simbeye, K., Dringus, S., Bernays, S. (2022). Adolescent Health Series: Engagement with young people as partners in health research: Four case studies from Sub-Saharan Africa. Tropical Medicine & International Health, 27(1), 2-12. [More Information]
  • Patel, P., Muscat, D., Bernays, S., Zachariah, D., Trevena, E. (2022). Approaches to delivering appropriate care to engage and meet the complex needs of refugee and asylum seekers in Australian primary healthcare: A qualitative study. Health and Social Care in the Community, 30(6), e6276-e6285. [More Information]

2021

  • Webb, K., Mavhu, W., Langhaug, L., Chitiyo, V., Matyanga, P., Charashika, P., Patel, D., Prost, A., Ferrand, R., Bernays, S., et al (2021). 'I was trying to get there, but I couldn't': social norms, vulnerability and lived experiences of home delivery in Mashonaland Central Province, Zimbabwe. Health Policy and Planning, 36(9), 1441-1450. [More Information]
  • Patel, P., Bernays, S., Dolan, H., Muscat, D., Trevena, L. (2021). Communication experiences in primary healthcare with refugees and asylum seekers: A literature review and narrative synthesis. International Journal of Environmental Research and Public Health, 18(4), 1-17. [More Information]
  • Mackworth-Young, C., Chingono, R., Mavodza, C., McHugh, G., Tembo, M., Chikwari, C., Weiss, H., Rusakaniko, S., Ruzario, S., Bernays, S., et al (2021). Community perspectives on the COVID-19 response, Zimbabwe. Bulletin of the World Health Organization, 99(2), 85-91. [More Information]

2020

  • Faruqui, N., Bernays, S., Martiniuk, A., Abimbola, S., Arora, R., Lowe, J., Denburg, A., Joshi, R. (2020). Access to care for childhood cancers in India: perspectives of health care providers and the implications for universal health coverage. BMC Public Health, 20(1), 1641. [More Information]
  • Chikwari, C., Bernays, S., Dringus, S., Simms, V., Weiss, H., Sibanda, E., Kranzer, K., Ncube, G., Chikodzore, R., Webb, K., et al (2020). Addressing the challenges and relational aspects of index-linked HIV testing for children and adolescents: insights from the B-GAP study in Zimbabwe. Implementation Science Communications, 1(1), 99. [More Information]
  • Bernays, S., Lanyon, C., Paparini, S. (2020). Adolescents Living With HIV: Checking Unhelpful Terminology. Journal of Adolescent Health, 67(4), 477-478. [More Information]

2019

  • Horter, S., Bernays, S., Thabede, Z., Dlamini, V., Kerschberger, B., Pasipamire, M., Rusch, B., Wringe, A. (2019). "I don't want them to know": how stigma creates dilemmas for engagement with Treat-all HIV care for people living with HIV in Eswatini. African Journal of AIDS Research, 18(1), 27-37. [More Information]
  • Bernays, S., Paparini, S., Namukwaya, S., Seeley, J. (2019). A Failed Method? Reflections on Using Audio Diaries in Uganda With Young People Growing Up With HIV in the BREATHER Trial. Qualitative Health Research, 29(5), 719-730. [More Information]
  • Faruqui, N., Joshi, R., Martiniuk, A., Lowe, J., Arora, R., Anis, H., Kalra, M., Bakhshi, S., Mishra, A., Santa, A., Bernays, S., et al (2019). A health care labyrinth: Perspectives of caregivers on the journey to accessing timely cancer diagnosis and treatment for children in India. BMC Public Health, 19(1), 1-12. [More Information]

2018

  • Kawuma, R., Seeley, J., Mupambireyi, Z., Cowan, F., Bernays, S. (2018). "Treatment is not yet necessary": delays in seeking access to HIV treatment in Uganda and Zimbabwe. African Journal of AIDS Research, 17(3), 217-225. [More Information]
  • Sibanda, E., Bernays, S., Weller, I., Hakim, J., Cowan, F. (2018). "Well, not me, but other women do not register because.."- Barriers to seeking antenatal care in the context of prevention of mother-to-child transmission of HIV among Zimbabwean women: a mixed-methods study. BMC Pregnancy and Childbirth, 18(1), 1-10. [More Information]
  • Bernays, S., Bukenya, D., Thompson, C., Ssembajja, F., Seeley, J. (2018). Being an 'adolescent': The consequences of gendered risks for young people in rural Uganda. Childhood: a global journal of child research, 25(1), 19-33. [More Information]

2017

  • Namukwaya, S., Paparini, S., Seeley, J., Bernays, S. (2017). "How Do We Start? And How Will They React?" Disclosing to Young People with Perinatally Acquired HIV in Uganda". Frontiers in Public Health, 5, 1-10. [More Information]
  • Mavhu, W., Willis, N., Mufuka, J., Mangenah, C., Mvududu, K., Bernays, S., Mangezi, W., Apollo, T., Araya, R., Weiss, H., et al (2017). Evaluating a multi-component, community-based program to improve adherence and retention in care among adolescents living with HIV in Zimbabwe: Study protocol for a cluster randomized controlled trial. Trials, 18(1), 1-11. [More Information]
  • Horter, S., Thabede, Z., Dlamini, V., Bernays, S., Stringer, B., Mazibuko, S., Dube, L., Rusch, B., Jobanputra, K. (2017). Life is so easy on ART once you accept it": Acceptance denial and linkage to HIV care in Shiselweni Swaziland.". Social Science & Medicine, 176, 52-59. [More Information]

2016

  • Butler, K., Inshaw, J., Ford, D., Bernays, S., Scott, K., Kenny, J., Klein, N., Turkova, A., Harper, L., et al (2016). BREATHER (PENTA 16) short-cycle therapy (SCT) (5 days on/2 days off) in young people with chronic human immunodeficiency virus infection: An open, randomised, parallel-group phase II/III trial. Health Technology Assessment, 20(49), 1-107. [More Information]
  • Bernays, S., Paparini, S., Gibb, D., Seeley, J. (2016). When information does not suffice: young people living with HIV and communication about ART adherence in the clinic. Vulnerable Children and Youth Studies, 11(1), 60-68. [More Information]

2015

  • Sibanda, E., Bernays, S., Weller, I., Hakim, J., Cowan, F. (2015). Manuscript title: Facilitators and barriers to cotrimoxazole prophylaxis among HIV exposed babies: A qualitative study from Harare, Zimbabwe. BMC Public Health, 15(1), 1-8. [More Information]
  • Bernays, S., Seeley, J., Rhodes, T., Mupambireyi, Z. (2015). What am I 'living' with? Growing up with HIV in Uganda and Zimbabwe. Sociology of Health & Illness, 37(2), 270-283. [More Information]

2014

  • Mupambireyi, Z., Bernays, S., Bwakura-Dangarembizi, M., Cowan, F. (2014). "I don't feel shy because I will be among others who are just like me.." The role of support groups for children perinatally infected with HIV in Zimbabwe. Children and Youth Services Review, 45(C), 106-113. [More Information]
  • Bernays, S., Jarrett, P., Kranzer, K., Ferrand, R. (2014). Children growing up with HIV infection: The responsibility of success. The Lancet, 383(9925), 1355-1357. [More Information]
  • Kawuma, R., Bernays, S., Siu, G., Rhodes, T., Seeley, J. (2014). Children will always be children: Exploring perceptions and experiences of HIV-positive children who may not take their treatment and why they may not tell. African Journal of AIDS Research, 13(2), 189-195. [More Information]

2012

  • Wilson, S., Houmoller, K., Bernays, S. (2012). 'Home, and not some house': Young people's sensory construction of family relationships in domestic spaces. Children's Geographies, 10(1), 95-107. [More Information]

2011

  • Rhodes, T., Bivol, S., Scutelniciuc, O., Hunt, N., Bernays, S., Busza, J. (2011). Narrating the social relations of initiating injecting drug use: Transitions in self and society. International Journal of Drug Policy, 22(6), 445-454. [More Information]

Selected Grants

2023

  • Delivering differentiated mental health support for young people who are living with HIV: Co-developing and evaluating a pilot intervention for LGBTQI young people in Zimbabwe, Bernays S, Sydney Institute for Infectious Diseases (Sydney ID)/Sydney ID Seed Grants

2021

  • The Zvandiri (As I am) character strength and its constructs among adolescents living with HIV in Zimbabwe, Bernays S, Templeton World Charity Foundation/Research Support
  • COVID Home Qualitative Study - Providers' Perspectives, Bernays S, Royal Prince Alfred Hospital/Research Support

In the media

‘Here, we cannot practice what is preached’: early qualitative learning from community perspectives on Zimbabwe’s response to COVID-19, (2020),Mackworth-Young, CR, Chingono, R, Mavodza C, McHugh, G, Tembo, M, Dziva Chikwari, C, Weiss, H, Rusakaniko, S, Ruzario, S, Bernays, S, Ferrand, R. Bulletin of the World Health Organization